Palliative Medicine, Journal Year: 2025, Volume and Issue: unknown
Published: April 1, 2025
Background: For people in receipt of palliative care, where polypharmacy is common and medication burden high, there remains limited knowledge around the decision-making processes that underpin deprescribing; for example, recent deprescribing studies have focused on wider issues identifying care contexts. However, little known about specific challenges of, preferences towards, to support care. Aim: To explore approaches, based experiences their family member(s). Design: An explorative qualitative study involving in-person semi-structured interviews, analysed using reflexive thematic analysis. Setting/participants: Twenty-five interviews were conducted with ( n = 25), 12 these undertaken as dyads, both patient a member together. Interviews across range settings, spanning: hospice outpatient day units 11), inpatient wards 4), home 1) patients’ own homes 9), involved diverse diagnoses (including: cancer 52%, heart failure 20%, motor neurone disease 12%, pulmonary fibrosis 4% chronic obstructive 4%). Results: Two overarching themes developed – first reflected need address understanding by ‘laying foundations decision-making’. The second theme, ‘having voice decision-making’, desires (pro)-actively involve patients member(s) within processes. Conclusion: There take balanced, person-centred shared approach receiving Co-design strategies offer one further this.
Language: Английский