Development of the SCNS-TARGET: a new tool to assess unmet needs in cancer patients utilising immuno-, biological or precision therapies DOI Creative Commons
Lisa Crowe, Morven C. Brown, Jan Lecouturier

et al.

Journal of Cancer Survivorship, Journal Year: 2025, Volume and Issue: unknown

Published: April 10, 2025

Abstract Purpose Develop an instrument to assess unmet needs in cancer patients using immuno-, biological and precision (IBP) therapies. Methods Development followed COSMIN guidance. Instruments of advanced were identified, quality content evaluated a systematic review (Phase 1). Semi-structured interviews with utilising IBP therapies ( n = 31) healthcare professionals 22) explored supportive care 2). Phase 3 selected base adapt, generated new items iteratively refined these through six meetings involving 8) public patient involvement representatives 9) cognitive 16). 4 piloted the 50 patients). Results Twenty-four instruments identified; none was developed for Ten domains identified from interview data SCNS-SF34 as instrument. Informed by data, “add-on module” (SCNS-TARGET) comprising 25 questions (psychological domain, 7 items; information, 6; healthcare, 5; economic, 3; role, 2; physical, 1; social, 3). Levels missingness low; reliability varied across questions, and, on average, reported 7.40 (standard deviation 8.43) SCNS-TARGET 4). Conclusions is designed use alongside those Content face validity have been established. Implications Cancer Survivors can help researchers determine inform requirements services interventions, among

Language: Английский

Development of the SCNS-TARGET: a new tool to assess unmet needs in cancer patients utilising immuno-, biological or precision therapies DOI Creative Commons
Lisa Crowe, Morven C. Brown, Jan Lecouturier

et al.

Journal of Cancer Survivorship, Journal Year: 2025, Volume and Issue: unknown

Published: April 10, 2025

Abstract Purpose Develop an instrument to assess unmet needs in cancer patients using immuno-, biological and precision (IBP) therapies. Methods Development followed COSMIN guidance. Instruments of advanced were identified, quality content evaluated a systematic review (Phase 1). Semi-structured interviews with utilising IBP therapies ( n = 31) healthcare professionals 22) explored supportive care 2). Phase 3 selected base adapt, generated new items iteratively refined these through six meetings involving 8) public patient involvement representatives 9) cognitive 16). 4 piloted the 50 patients). Results Twenty-four instruments identified; none was developed for Ten domains identified from interview data SCNS-SF34 as instrument. Informed by data, “add-on module” (SCNS-TARGET) comprising 25 questions (psychological domain, 7 items; information, 6; healthcare, 5; economic, 3; role, 2; physical, 1; social, 3). Levels missingness low; reliability varied across questions, and, on average, reported 7.40 (standard deviation 8.43) SCNS-TARGET 4). Conclusions is designed use alongside those Content face validity have been established. Implications Cancer Survivors can help researchers determine inform requirements services interventions, among

Language: Английский

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