Health Expectations, Journal Year: 2024, Volume and Issue: 27(5)
Published: Aug. 29, 2024
Multiple sclerosis (MS) is a complex immune-mediated disease with no currently known cure. There growing evidence to support the role of diet in reducing some symptoms and progression MS, we previously developed tested feasibility digital nutrition education program for people MS.
Language: Английский
Nutrients, Journal Year: 2025, Volume and Issue: 17(3), P. 385 - 385
Published: Jan. 22, 2025
Background/Objectives: Registered dietitian nutritionists (RDNs) are allied healthcare professionals who can help people with multiple sclerosis (MS) incorporate healthy eating, but little is known about their involvement in MS care. Thus, the objective of this survey was to investigate perceptions and utilization RDNs care among multidisciplinary providers United States Canada. Methods: An online disseminated via Consortium Centers email listserv MS-specific scientific conferences. The queried practitioner type, RDN referrals, perceived benefits care, proportion patients follow ‘MS diets’ or have nutrition-related issues. Reasons for against referral beneficial resources were also queried. Results: Of 60 completed surveys, respondents primarily neurologists (n = 27, 45.0%). Most 43, 71.7%) indicated that half more inquire diet, n 32 (53.3%) very few an diet’ 47 (78.3%) decline disease-modifying therapies diet’. 45, 77.6%) referring a lack nutrition knowledge/general eating advice 34, 73.9%) overweight/obesity 31, 67.4%) as being most common reasons referral. reported helpful extremely by 38 (84.4%) RDNs. 46, 79.3%) would benefit from having MS-specialized training member staff. Conclusions: support need specialized
Language: Английский
Citations
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Journal of Human Nutrition and Dietetics, Journal Year: 2025, Volume and Issue: 38(2)
Published: March 19, 2025
ABSTRACT Background People living with multiple sclerosis (plwMS) expect to receive nutrition information from healthcare professionals (HCPs), self‐manage their disease. This study aimed explore plwMS' experiences nutrition‐related care and generate an understanding of needs preferences for how it could be delivered in routine care. Methods qualitative study, informed by interpretive phenomenological approach, was undertaken using online focus groups Australian adults MS. The discussions were recorded transcribed verbatim. Transcribed data analysed inductive, reflexive thematic analysis framework. Results Twenty‐five plwMS participated one six group discussions. Three key themes seven subthemes representing participants' generated: (1) guidance is overlooked MS due HCPs prioritising medication over nutrition, resulting the perception that are own educators; (2) needed , highlighting desire accessible meaningful MS‐related knowledge MS; (3) person‐centred a priority importance acknowledging no one‐size‐fits‐all approach exists plwMS, providing holistic coordination access dietetic services. Conclusions generated insights into gaps between during care, which may impact journey. PlwMS seek credible, simple, consistent MS‐specific advice provided routinely Our findings underscore need individualised nutrition‐qualified HCP or dietitian.
Language: Английский
Citations
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Medical Science of Ukraine (MSU), Journal Year: 2025, Volume and Issue: 21(1), P. 37 - 44
Published: March 31, 2025
Background. Nutrition knowledge is a potential tool for improving disease management in multiple sclerosis (MS). Understanding how patients perceive and utilize dietary advice crucial optimizing support strategies to improve MS course management. Aim: To evaluate patient satisfaction with advice, explore awareness the need tailored educational materials. Materials methods. A total of 52 diagnosed (MS) participated this single-center survey-based cross-sectional study. Data were collected through structured online questionnaires from receiving treatment at Kyiv City Clinical Hospital №4 Ukraine between November 2024 January 2025, descriptive statistics calculated. Results. 59 invited participate survey, 7 declining participate. The median age was 36 (IQR: 29-42). group included 38 (65,4%) inpatient 14 (34,6%) outpatient participants, 65,4% being female. Patients categorized as having relapsing-remitting (86.5%), primary progressive (9.6%), secondary (3.9%) forms MS. majority (70.6%) considered nutrition recommendations important, while 49% initiated dialogue about physicians, 67.4% sought information online. Satisfaction resources averaged 3.7/5 (n=30), compared 3.6/5 (n=23) provided by physicians. Conclusion. This study indicates moderate physicians-provided sources, underscoring necessity improvement. value express interest evidence-based guidance, highlighting better
Language: Английский
Citations
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Biochemical Pharmacology, Journal Year: 2024, Volume and Issue: unknown, P. 116667 - 116667
Published: Dec. 1, 2024
Language: Английский
Citations
1
Health Expectations, Journal Year: 2024, Volume and Issue: 27(5)
Published: Aug. 29, 2024
Multiple sclerosis (MS) is a complex immune-mediated disease with no currently known cure. There growing evidence to support the role of diet in reducing some symptoms and progression MS, we previously developed tested feasibility digital nutrition education program for people MS.
Language: Английский
Citations
0