Defining and Promoting Pediatric Pulmonary Health: Leveraging Patient Reported Outcomes DOI Creative Commons
Christian Rosas‐Salazar, Leonard B. Bacharier, Lisa Buckley

et al.

PEDIATRICS, Journal Year: 2023, Volume and Issue: 152(Supplement 2)

Published: Sept. 1, 2023

Patient-reported outcomes are based on patient (or caregiver) descriptions without direct measurement by a health care provider. To capture patient-reported outcomes, various outcome measures (PROMs) have been created. Using PROMs has linked to improved satisfaction, patient-provider communication, and clinical in many pediatric fields. Despite long-standing history of utilizing for the evaluation management childhood asthma, pulmonologists lag behind other subspecialists use PROMs. During National Heart, Lung, Blood Institute's "Defining Promoting Pediatric Pulmonary Health" workshop, critical knowledge gaps research opportunities respiratory were reviewed. In particular, can be employed as screening tools general population primary or secondary prevention lung diseases. Incorporating these into setting would especially impactful. addition, asthma suggests that they applied Ongoing multicenter studies national consortia study diseases could leveraged conduct designed develop, validate, assess utility health. Harnessing electronic record will successful adoption children with Ultimately, an integrative approach systematically address numerous barriers at level provider, patient, system needed attain this goal achieve sustainability.

Language: Английский

Patient-Reported Outcomes Measurement Information System as a Clinical Tool for Capturing the Patient Perspective in Pediatric Inflammatory Bowel Disease: A Narrative Review DOI Creative Commons
Sara Azevedo,

Ana Isabel Lopes

Children, Journal Year: 2024, Volume and Issue: 11(12), P. 1492 - 1492

Published: Dec. 6, 2024

Inflammatory bowel disease (IBD) is an immune-mediated chronic with a significant impact on quality of life. In pediatric patients, diagnosing and managing IBD particularly challenging, often presents as more severe progressive disease. Patient-reported outcomes (PROs) are measures treatment management reported by patients and/or caregivers. These evaluate several aspects from the patient/caregiver perspective, emphasizing patient’s real-life experience its treatment. PROs represent model patient-centered care, facilitating better-informed healthcare decisions. The Patient-Reported Outcomes Measurement Information System (PROMIS) was developed to promote use among conditions. Its primary objective provide for research clinical practice throughout lifespan. PROMIS non-disease-specific instrument both adults assessing domains physical, psychological, social health, well life (QOL). instruments designed be applicable wide range diseases. Despite initial expectation concerning in outcomes, data this area have only recently begun emerge. This narrative review, based selection reliable articles recognized PubMed Cochrane Library, aimed identify summarize previously published evidence usefulness PROs, PROMIS, population. We present updated including identification their general applications most relevant previous studies, mentioned areas knowledge gaps.

Language: Английский

Citations

0
Defining and Promoting Pediatric Pulmonary Health: Leveraging Patient Reported Outcomes DOI Creative Commons
Christian Rosas‐Salazar, Leonard B. Bacharier, Lisa Buckley

et al.

PEDIATRICS, Journal Year: 2023, Volume and Issue: 152(Supplement 2)

Published: Sept. 1, 2023

Patient-reported outcomes are based on patient (or caregiver) descriptions without direct measurement by a health care provider. To capture patient-reported outcomes, various outcome measures (PROMs) have been created. Using PROMs has linked to improved satisfaction, patient-provider communication, and clinical in many pediatric fields. Despite long-standing history of utilizing for the evaluation management childhood asthma, pulmonologists lag behind other subspecialists use PROMs. During National Heart, Lung, Blood Institute's "Defining Promoting Pediatric Pulmonary Health" workshop, critical knowledge gaps research opportunities respiratory were reviewed. In particular, can be employed as screening tools general population primary or secondary prevention lung diseases. Incorporating these into setting would especially impactful. addition, asthma suggests that they applied Ongoing multicenter studies national consortia study diseases could leveraged conduct designed develop, validate, assess utility health. Harnessing electronic record will successful adoption children with Ultimately, an integrative approach systematically address numerous barriers at level provider, patient, system needed attain this goal achieve sustainability.

Language: Английский

Citations

1