‘There is Something Missing Out There…’: A Performative Portrait Approach to Understanding the Experience of Living with Dementia DOI Creative Commons
Tharin Phenwan, Edgar Rodríguez-Dorans

Illness Crisis & Loss, Journal Year: 2024, Volume and Issue: unknown

Published: Nov. 21, 2024

People with dementia (PwD) often face symptoms that influence their memories and capabilities to express themselves meaningfully. These make it particularly challenging for qualitative researchers capture demonstrate PwD's complex experiences the traditional reliance on textual outputs. This paper offers a novel approach through performative portraiture argue use of this is needed as an alternative academic output diverges from reliance. The begins overview research, which aimed improve understanding initiation revision process advance care planning PwD was used baseline create ‘Dave’ young based verbatim interview transcripts 13 PwD. methodological outlined, findings are then chronologically discussed. concludes strengths limitations well its future implications.

Language: Английский

Research-Induced Distress Among Qualitative Researchers Who Engage in Research on Child Maltreatment: A Qualitative Systematic Review of Risk and Resilience DOI Open Access

Sachet R. Valjee,

Steven Collings,

Denise Rowlett

et al.

International Journal of Environmental Research and Public Health, Journal Year: 2025, Volume and Issue: 22(3), P. 329 - 329

Published: Feb. 23, 2025

We aimed to review and synthesize the literature on risk resilience factors for research-induced distress (RID) among qualitative child abuse researchers, with guided by Lippencott-Joanna Briggs Institute methodology reviews. searched Scopus, PsychINFO, MEDLINE, ProQuest, two researchers independently reviewing title/abstracts full-text articles inclusion, additional found using citation searches of identified through a perusal in key research journals. synthesized 30 unique studies, this synthesis revealing that salutary RID outcomes emanate from all levels ecology and, consequently, optimal strategies primary secondary prevention could profitably adopt multi-systemic perspective. Findings provide members academia detailed systematic overview potential threats influences be used (1) inform development comprehensive pre-research (and ongoing) training programmes (2) guide designed mitigate outcomes. With respect future research, suggests focus usefully extended order to: more perspective experiences living low- middle-income countries, ensure children's rights heard, participate matters affect them, are comprehensively addressed.

Language: Английский

Citations

0
Reflecting on the changing practice of qualitative health research: Enduring learning on care-full practice beyond the COVID-19 pandemic DOI Creative Commons
Nicola Boydell, Debbie Cavers, Victoria Cluley

et al.

SSM - Qualitative Research in Health, Journal Year: 2024, Volume and Issue: unknown, P. 100500 - 100500

Published: Nov. 1, 2024

Language: Английский

Citations

0
‘There is Something Missing Out There…’: A Performative Portrait Approach to Understanding the Experience of Living with Dementia DOI Creative Commons
Tharin Phenwan, Edgar Rodríguez-Dorans

Illness Crisis & Loss, Journal Year: 2024, Volume and Issue: unknown

Published: Nov. 21, 2024

People with dementia (PwD) often face symptoms that influence their memories and capabilities to express themselves meaningfully. These make it particularly challenging for qualitative researchers capture demonstrate PwD's complex experiences the traditional reliance on textual outputs. This paper offers a novel approach through performative portraiture argue use of this is needed as an alternative academic output diverges from reliance. The begins overview research, which aimed improve understanding initiation revision process advance care planning PwD was used baseline create ‘Dave’ young based verbatim interview transcripts 13 PwD. methodological outlined, findings are then chronologically discussed. concludes strengths limitations well its future implications.

Language: Английский

Citations

0