Value in Health, Journal Year: 2024, Volume and Issue: unknown
Published: Oct. 1, 2024
Language: Английский
Gerontology and Geriatric Medicine, Journal Year: 2022, Volume and Issue: 8
Published: Jan. 1, 2022
The COVID-19 pandemic has been a major source of stress for informal caregivers people with dementia. Studies show the unique challenges face, such as social isolation, extended work hours, and adherence to public health guidelines. We conducted narrative review factors impacting well-being older adults dementia during pandemic. Sixty-four papers were identified published between June 2020 December 2021. All studies in U.S. or other Western countries cross-sectional prior vaccines. Articles highlighted increasing burdens financial physical stress, well worsened psychological from anxiety depression. Protective support telehealth interventions also emerged. Limitations include lack longitudinal information identify broader themes on caregiving not only new, pandemic-related risk factors, but heightened effect pre-existing (e.g., income, living situation) caregiver burden.
Language: Английский
Citations
10
Journal of Geriatric Psychiatry and Neurology, Journal Year: 2022, Volume and Issue: 36(3), P. 233 - 245
Published: Oct. 21, 2022
Informal caregivers can experience various demands when providing care and support for People with Parkinson's disease (PwP) in their own homes. The outbreak of SARS-CoV-2 public health strategies employed to mitigate the spread COVID-19 have presented challenges general populace on a global basis. present study used qualitative research design explore how pandemic has impacted informal role PwP A series 1:1 semi-structured interviews were conducted 11 (M age = 72.64 years, SD 8.94 years). thematic analysis indicated that 1) vulnerabilities COVID-19, 2) home maintenance & activities daily living 3) engagement healthcare services 3 themes provided indications PwP. provides illustrations being an caregiver identified as high risk process caring loved ones who are also vulnerable SARS-CoV-2. results highlights necessity develop ensure necessary resources provide homes maintain well-being post era.
Language: Английский
Citations
9
International Journal of Environmental Research and Public Health, Journal Year: 2023, Volume and Issue: 20(4), P. 3417 - 3417
Published: Feb. 15, 2023
COVID-19 has amplified long-standing emotional distress for vulnerable families. While abundant research highlights the importance of resilience under adverse circumstances, little been undertaken to understand its effectiveness in helping caregivers individuals with eating disorders (ED) navigate pandemic-related challenges. This paper presents findings a cross-sectional study investigating effects COVID-19-related life disruptions (COLD) and psychological (CORPD) on caregivers’ depression, anxiety stress, as well moderation role individual (IR) family (FR) during post-pandemic period China. A total 201 experiencing ED participated our online survey from May 2022 June 2022. The association between stressors (i.e., COLD CORPD) mental health conditions were confirmed. FR moderated relationship CORPD outcomes, while IR independently contributed low distress. We call intervention programs strengthening IR, which might benefit both patients well-being period.
Language: Английский
Citations
5
Aging & Mental Health, Journal Year: 2023, Volume and Issue: 28(1), P. 103 - 111
Published: July 23, 2023
Objectives Older carers play a vital role supporting population health and protecting social care systems, yet there has been little research on understanding the effect of pandemic this group. In paper, we investigate caring as factor contributing to mental self-rated health.Methods We cross-sectional longitudinal associations between provision family wellbeing using data from 5,149 members English Longitudinal Study Ageing who responded Wave 9 (2018/2019) two COVID-19 sub-studies (June/July 2020; November/December 2020). use logistic or linear regression models depending outcome measures, controlling for pre-pandemic socioeconomic, demographic, health-related variables.Results Before pandemic, 21% respondents cared friends. people someone inside household mostly continued provide during with more than quarter reporting an increase in amount provided. Co-resident were disproportionately female, older, lowest wealth quintile, likely report disability chronic conditions. Both analyses suggest that, compared those living outside household, co-resident significantly poorer health.Conclusion The older worsened first year period also characterised by disruptions support closure respite services. Support carers' physical requires greater policy attention, especially
Language: Английский
Citations
4
Disability & Society, Journal Year: 2024, Volume and Issue: unknown, P. 1 - 20
Published: March 11, 2024
Previous research has shown that pre-existing social and economic inequalities deepened during the COVID–19 pandemic. Persons with disabilities were among most affected groups. This article focuses on support persons their families received coronavirus pandemic in Europe. A semi-systematic literature review was conducted: 578 records identified, 31 empirical papers included. Four themes emerged from thematic analysis: (1) challenges formal care, (2) informal (3) access to information assistive technology, (4) positive practices, innovative methods opportunities. In public policy, health-related needs overshadowed be met by system, revealing already existing dysfunctions of protection systems.
Language: Английский
Citations
1
Health Expectations, Journal Year: 2024, Volume and Issue: 27(6)
Published: Nov. 6, 2024
ABSTRACT Background Through an in‐depth exploration of mental health family carers' experiences during the COVID‐19 pandemic in Australia, this co‐produced study identified recommendations for advocacy, practice and policy implications to uphold carer wellbeing. Government‐enforced restrictions, changed service availability difficulties accessing hospitals, led additional anxiety, depression elevated distress, especially people experiencing challenges before pandemic. The National Mental Health Consumer Carer Forum alongside two academic researchers aimed discern impact care provision, levels unmet needs, benefits providing support, across geographic locations diverse communities. Methods This article reports on survey component a co‐designed mixed‐methods exploratory experiences. A project steering group worked with researchers, members SWITCH Research Group, Monash University, develop 71‐question online 9‐domains. Results Family carers were relied upon provide support when services or closed. Carers more than one person typically daily high‐level needs. Caring increased from 26‐h average 40‐h week roles complexity. Heightened demands became stress‐inducing point ill suicidality some carers. Conclusion Government responses failed address financial, practical emotional resources needed fulfil role provision unwell extremely distressed new ongoing psychological ill‐health. Patient Public Contribution From its inception, was users based their expertise understanding ways best explore these benefit wellbeing families distress. research partners both have active experience supporting challenges. each phases, lived (family users) co‐facilitated process. At times leading process, such as recruitment strategies, at other acting guides. Guidance provided by reflecting literature review understand what had been researched internationally would be important Australia. advised possible processes data collection, experts decided methodology that advice. Both focus questions developed scrutinised perspective team. Difficult conversations handled respect, within team gently addressed areas enquiry may suggest stigma feed into societal stereotypes able consider wording still concern including domestic violence unit suicide. Dissemination strategies planned together user representatives being co‐presenters conferences. report submission Commission (Australia) written reviewed all partners. committee carers, partners, launch August 2023. co‐authorship peer‐reviewed articles has included Forum.
Language: Английский
Citations
1
Nursing Open, Journal Year: 2023, Volume and Issue: 10(8), P. 5177 - 5184
Published: April 10, 2023
Abstract Aim We aim to assess the effects of COVID‐19 pandemic on self‐reported health and quality life among family caregivers children with disabilities across Europe. Design Cross‐sectional study. Methods Data from survey by Eurocarers IRCCS‐INRCA were used. The data collected between November 2020 March 2021 16 European countries. analysis was done using regression identify caregivers' well‐being predictors. Results This study included 289 caregivers. mean age 12 years. Their caregiver's 44, they mainly women. Experience lack freedom predicted poor life. Children's interrupted social services also mental well‐being. Longitudinal evidence pandemic's a diverse view are needed plan effective post‐pandemic nursing practice. No Patient or Public Contribution.
Language: Английский
Citations
3
Social Inclusion, Journal Year: 2022, Volume and Issue: 11(1)
Published: Oct. 24, 2022
<p>The Coronavirus pandemic has caused significant disruption and change in most aspects of society, there are concerns that disabled people may be particularly disadvantaged. This article, written by activists non‐disabled allies, shares data extrapolated from focus groups regarding the lived experiences twelve disability allies during Covid‐19 pandemic, eleven whom were based UK, one Iraq. We describe key issues learning points this data, arguing measures taken government organisations to protect public have instead brought fore long‐standing ableist narratives which bodies valuable society. agenda acted control silence voices objectifying defining “pre‐existing health conditions” as being more expendable, therefore less worthy attention pandemic. In presenting our position for call action, we will argue it is only when people’s heard decision‐making policymakers can begin learn inequalities been demonstrated through Here, introduce Wellcome Trust‐funded “We Are People” Disability Research Collective programme (2021–2026). develops a new activist‐led research network, whereby conduct into topics important them.</p>
Language: Английский
Citations
5
The British Journal of Social Work, Journal Year: 2022, Volume and Issue: 53(3), P. 1483 - 1505
Published: Dec. 26, 2022
Abstract Internationally, people experiencing mental health challenges and psychosocial distress faced service disruptions, increased uncertainties isolation, during the COVID-19 pandemic. Mental family carers in turn experienced high levels of demand to fill gaps responses within a context fear uncertainty. A scoping narrative review methodology was undertaken account for varying methodologies studies recency Six databases were searched: Proquest, Ovid, Psych Info, CINAHL, Scopus, WHO database January 2022. total 147 articles identified, with 19 included final review. Findings revealed few focused on experiences Studies that elevated voices identified they more likely provide emotional support than other carers, less receive government income support. Higher present who lived low independence, supported one person provided higher care. Family concerns about—family members becoming infected hospitalisations, accessing services, inappropriate early discharges, care provision if became unwell need targeted quality online services.
Language: Английский
Citations
5
Journal of Social Work, Journal Year: 2023, Volume and Issue: 24(1), P. 73 - 92
Published: Sept. 27, 2023
Summary Unpaid carers were profoundly impacted by the coronavirus disease 2019 pandemic and public health responses. In UK, in March 2020, people identified as clinically extremely vulnerable their household members advised to “shield” for an initial 12-week period, which meant minimizing all contacts from outside not leaving house at all, unless emergency. a modified form, shielding guidance remained place until August 2020 was reinstituted December April 1, 2021. This article, reporting on qualitative interviews with 47 unpaid Wales, thematically analyzed using coding framework, explores experiences of affected this wider implications social work future. Findings Participants our study described ways caring role expanded, due need provide additional practical emotional support loved ones who shielding, lost access other avenues support. Some also becoming more involved complex declining or self-care capacity person cared-for direct consequence restrictions. Alongside increase responsibilities, reported losing important own well-being. Applications We draw ecological systems theory highlight importance during care planning management exploring carer's mesosystem identify optimize sustaining forces, attending microsystem involving carer cared-for.
Language: Английский
Citations
1