Exploring experiences of dementia post-diagnosis support and ideas for improving practice: A co-produced study

Dementia, Journal Year: 2025, Volume and Issue: unknown

Published: Jan. 28, 2025

It takes time to adjust a diagnosis of dementia. Post-diagnosis support has an important part play in navigating this transition. However, it is often scarce and variable according location. This co-produced study explored experiences across the UK. The project was co-designed implemented with people living Five focus groups were attended by 18 dementia 10 spouses from aim find out what currently received, aspects they valued, would like see done differently. Most participants reported feeling abandoned after diagnosis, little continuity care. Many felt burden post-diagnosis life on them their loved ones, perceived scarcity support, difficulties benefits system. Peer/voluntary seen as vital promoting confidence, source relational finding crucial information relating benefits, healthcare, management symptoms. Participants stigmatised, receiving less than other medical conditions. identified collaborated ideas for structures services introduced. In concluding study, we argue that could be improved input reduce those advice outside health social care systems. For future research, financial implications have rarely been discussed warrants further exploration.

Language: Английский

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Analysis of self-efficacy and resilience as determinants of psychological well-being in situations of psychological stress in students

Multidisciplinary Reviews, Journal Year: 2025, Volume and Issue: 8(9), P. 2025274 - 2025274

Published: March 18, 2025

High psychological pressure is often experienced by students in academic and social environments, potentially reducing their well-being. Self-efficacy resilience are known as two factors that can help improve students' well-being when facing pressure. This study aims to analyze the influence of self-efficacy on who experience high stress. The design this quantitative, using a survey approach, it involved 112 from Soegijapranata Catholic University Indonesia were selected purposive sampling technique. Data collected through questionnaire measured three main variables: self-efficacy, resilience, data was analyzed Moderated Regression Analysis (MRA) determine contribution each independent variable results analysis showed had significant positive well-being, meaning higher level students, better In addition, has also been proven contribute positively improving so with good adaptability tend even amid heavy research underlines importance developing environment.

Language: Английский

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Dementia subtype and living well: results from the Improving the experience of Dementia and Enhancing Active Life (IDEAL) study

BMC Medicine, Journal Year: 2018, Volume and Issue: 16(1)

Published: Aug. 9, 2018

The heterogeneity of symptoms across dementia subtypes has important implications for clinical practice and research. Variation in associated may influence the capability to live well people with carers. aim this study is investigate potential impact on both their carers.The analysis was based 1283 dyads community-dwelling carers Improving experience Dementia Enhancing Active Life (IDEAL) project, a large cohort Great Britain. Capability defined using three measures: quality life, life satisfaction wellbeing. Structural equation modelling used seven subtypes: Alzheimer's disease (AD), Vascular (VaD), mixed AD/VaD, frontotemporal (FTD), Parkinson's (PDD), Lewy body (LBD) unspecified/other, accounting dyadic data structure adjusting age sex, type relationship between person carer number chronic conditions.The major population were AD (56%), VaD (11%) AD/VaD (21%). Compared participants AD, non-AD generally reported lower well. Carers PDD (- 1.71; 95% confidence interval (CI) - 3.24, 0.18) LBD 2.29; CI 3.84, 0.75) also than AD. After demographic factors comorbidity, 4.28; 5.65, 2.91) 3.76; 5.14, 2.39) continued have strongest carers.This suggests variation subtypes. It care providers consider different needs Health professionals who provide post-diagnostic support need pay more attention complex living

Language: Английский

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Psychological predictors of ‘living well’ with dementia: findings from the IDEAL study

Aging & Mental Health, Journal Year: 2019, Volume and Issue: 24(6), P. 956 - 964

Published: March 5, 2019

Objectives: Increasingly, research has explored how psychological resources enable adaptation to illness. However, it is unclear whether protect against the potential negative effects on living well with a progressive and life-limiting condition such as dementia. This paper examines association between ability 'live well' dementia.Method: Data from 1547 people mild-to-moderate dementia in Improving experience of Dementia Enhancing Active Life (IDEAL) cohort were used. Multivariate linear regression was employed examine self-reported measures (self-efficacy, optimism self-esteem) indices capability (quality life, well-being life satisfaction).Results: All three had positive independent associations effect sizes similar. Effect reduced when accounting for shared variance resources, showing some overlap these constructs.Conclusion: Self-efficacy, self-esteem each associated well'. Overlap evident combined they may provide greater resilience dealing challenges Interventions could seek improve levels potentially-modifiable resources.

Language: Английский

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The relationship between perceived functional difficulties and the ability to live well with mild‐to‐moderate dementia: Findings from the IDEAL programme

International Journal of Geriatric Psychiatry, Journal Year: 2019, Volume and Issue: 34(8), P. 1251 - 1261

Published: May 1, 2019

The objectives of the study are to investigate how different levels functional ability relate quality life, well-being, and satisfaction with conceptualised as reflecting capability "live well" in people dementia.

Language: Английский

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