Geographical inequalities in dementia diagnosis and care: A systematic review

International Psychogeriatrics, Journal Year: 2025, Volume and Issue: unknown, P. 100051 - 100051

Published: Feb. 1, 2025

People with dementia can be disadvantaged in accessing health and social care services for diagnosis depending on where they live (including rural vs suburban vs. urban; postcode; country). Without an existing comprehensive synthesis of the evidence to date, aim this systematic review was explore geographical inequalities care. Five databases were searched June 2024, including studies conducted any country, published from 2010 onwards, English or German. Titles abstracts, then full texts, screened by at least two reviewers each. Any discrepancies resolved discussion a third reviewer. Data extracted researchers synthesised narratively. From 1321 49 texts read, 32 included final review. Most US, followed UK. Geographical are most often evidenced relation availability suitability different regions within lack thereof. residing areas experience challenges receiving timely No research has addressed residential Innovative models improving efficiency quantity rates Canada Australia emerged. Health need increased made more suitable needs people dementia. More experienced rarer forms National strategies overhaul system focus rurality issue recommend improve service access.

Language: Английский

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Co‐producing a board game to learn and engage about dementia inequalities: First impacts on knowledge in the general population

Health Expectations, Journal Year: 2024, Volume and Issue: 27(1)

Published: Jan. 17, 2024

Receiving and accessing care after a diagnosis of dementia, both for the person their carer, are fraught with inequalities. The aim this public engagement activity was to co-produce board game about dementia inequalities facilitate learning, dialogue educate different barriers, facilitators, test game's impact on knowledge general public.

Language: Английский

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A new model to understand the complexity of inequalities in dementia

International Journal for Equity in Health, Journal Year: 2024, Volume and Issue: 23(1)

Published: Aug. 14, 2024

Abstract Many people living with dementia and unpaid carers experience inequalities in care related to challenges receiving a correct diagnosis, support. Whilst complexities of the evidence are well recognised including barriers diagnosis or post-diagnostic care, no coherent model has captured far-reaching types levels date. Building on established Dahlgren & Whitehead Rainbow health determinants, this paper introduces new Dementia Inequalities model. The model, similar original general rainbow categorises determinants well-being into three layers: (1) Individual; (2) Social community networks; (3) Society infrastructure. Each layer comprises which have been identified but also may be different dementia, such as age (specifically referring young- versus late-onset dementia) ethnicity, dementia-specific rare subtype, having an carer, knowledge about social workforce. its individual discussed existing research syntheses field, arguing for need A total 48 lived, caring, professional experiences consulted process development provides coherent, evidence-based overview can used commissioning services, support their better try create more equity care.

Language: Английский

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Engaging With a Community of Practice in Dementia: Impacts on Skills, Knowledge, Networks and Accessing Support

Health Expectations, Journal Year: 2025, Volume and Issue: 28(1)

Published: Jan. 15, 2025

To deliver implementable, meaningful research and advance knowledge, different stakeholders need to be brought together regularly via a suitable platform or community of practice. The Liverpool Dementia & Ageing Research Forum, set up in 2019, is public/professional practice, providing in-person remote events activities connect people living with dementia, unpaid carers, health social care professionals, Third Sector representatives commissioners. aim this study was qualitatively explore the experiences impacts engaging Forum by stakeholders. Attendees any were eligible take part. We conducted semi-structured interviews about between November 2023 April 2024. Anonymised transcripts coded three team members, including trained public advisor (unpaid carer), using inductive thematic analysis. Seventeen attendees participated study. These included representatives, academics providers. Four overarching themes identified data: facilitated networking within outside personal expertise, improved knowledge capacity, empowerment having one's voice heard diversity but not background. utilised on drop- -out basis for most attendees, often picking that immediate interest them, whilst some attended almost all events. Engaging found strongly facilitate increased building relationships, especially stakeholder background, backgrounds such as ethnic diversity, lacking. This Community Practice has successfully diverse network expand their capacity groups. Whilst considered inclusive, future outreach work needs ensure greater reflected continuous flow new joins. One carer involved supported coding two anonymised interpreting findings. They also helped codesign topic guide.

Language: Английский

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Living with dementia and other long-term conditions: what works for patient/caregiver dyads? A realist review

Research Square (Research Square), Journal Year: 2025, Volume and Issue: unknown

Published: Jan. 23, 2025

Objectives Globally, increasing numbers of people are living with multiple long-term conditions. When dementia is a co-occurring condition, contact services complicated due to the person’s cognitive difficulties and often achieved as dyad (person carer). This realist review aimed explain how dyads alongside other conditions enabled (or not) access navigate health care systems. Method An iterative, three stage approach synthesised evidence from empirical studies stakeholders lived professional experience (ethics reference 23/LO/0829). Results Evidence 61 (30 participants, 68 consulted) built refined five programme theories for systems can achieve continuity support, anticipate adverse events maintain quality life. Belief that concerns would be listened acted upon led seek assistance. Time permission discuss priorities, prognosis acceptable levels burden uncertainties managed shared endeavour. The collective capacity was enhanced by peer expertise they accrued over time professionals who helped points change. Conclusion Despite years system changes, structural factors still create excessive burdens accessing constrain professionals’ ability respond complex needs.

Language: Английский

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Living with dementia and other long-term conditions: what works for patient-caregiver dyads? A realist review

Aging & Mental Health, Journal Year: 2025, Volume and Issue: unknown, P. 1 - 11

Published: April 3, 2025

Globally, increasing numbers of people are living with multiple long-term conditions. When dementia is a co-occurring condition, contact services complicated due to cognitive difficulties and often achieved as dyad (person-carer). This realist review aimed explain how dyads alongside other conditions enabled access navigate health care systems. An iterative, three-stage approach synthesised evidence from empirical studies stakeholders lived professional experience (ethics reference 23/LO/0829). Evidence 61 (30 participants, 68 consulted) built refined five programme theories for systems can achieve continuity support, anticipate adverse events maintain quality life. Belief that concerns would be listened acted upon led seek assistance. Time permission discuss priorities, prognosis acceptable levels burden uncertainties managed shared endeavour. The collective capacity the was enhanced by peer expertise they accrued professionals who helped points change. Despite years system changes, structural factors still create excessive burdens accessing constrain professionals' ability respond complex needs.

Language: Английский

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Barriers and facilitators to accessing and engaging with arts-based non-pharmacological interventions for people living with dementia: A systematic review

Dementia, Journal Year: 2025, Volume and Issue: unknown

Published: April 12, 2025

Background and AimsNon-pharmacological arts interventions are increasingly being recognised as effective beneficial ways to support improve cognition general well-being for people with dementia. However, accessing engaging services can be challenging dementia their carers it is important understand barriers facilitators that may impede access. This systematic review aimed synthesise evidence on the living dementia.MethodsWe systematically searched five electronic databases (PubMed, PsycINFO, CINAHL, Scopus, Web of Science) studies reporting in July 2024, screening a total 7815 articles. Nineteen papers were deemed eligible inclusion this including 567 dementia, 320 unpaid 355 paid carers.ResultsThis highlights key Key included assistance volunteers, sessions, facilitation sessions. Barriers access engagement identified such increased reliance lack training time carers.ConclusionsIncreased awareness these could aid designing future promote wider carers.

Language: Английский

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Barriers and Facilitators to Accessing and Engaging With Community‐Based Singing Support Services in Dementia

Health & Social Care in the Community, Journal Year: 2025, Volume and Issue: 2025(1)

Published: Jan. 1, 2025

Background: Community‐based singing services can offer beneficial post‐diagnostic support for people living with dementia and their carers. However, despite the benefits, many carers encounter barriers when trying to access engage such groups. This study examined facilitators engagement a community group. Methods: Semi‐structured interviews were conducted dementia, carers, session leaders volunteers who attended or involved service named “Lyrics Lunch.” The focused on accessibility of service. Interviews analysed using thematic analysis which was supported by public advisors. Results: Twenty‐six participated in study. consisted seven eleven unpaid four volunteers. Three overarching themes found relating intervention services: (1) travel, (2) increased reliance (3) health comorbidities. Two further found: music promoting effective communication accessibility. Conclusions: A wider availability is needed improve ease access, promote continued reduce travel demands. greater understanding these could help current community‐based

Language: Английский

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Unpaid carers’ experiences of supporting people with dementia to use social media

Aging & Mental Health, Journal Year: 2024, Volume and Issue: 28(7), P. 977 - 984

Published: Jan. 12, 2024

Objectives: The aim of this study was to explore unpaid carers' experiences supporting people with dementia use social media.

Language: Английский

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Do people with dementia and carers get what they need? Barriers in social care and carers needs assessments

Dementia, Journal Year: 2024, Volume and Issue: 23(4), P. 550 - 566

Published: March 1, 2024

Background People with dementia and unpaid carers need to go through a social care or needs assessment access receive subsidised fully-funded care. With no previous evidence, this qualitative study aimed provide insights into the to, experiences of receiving conducting assessments, Methods Unpaid people professionals living working in England were interviewed remotely about their between April August 2023. Topic guides co-produced two carers, both supported code anonymised transcripts. Thematic analysis was used analyse data. Findings Twenty-seven ( n = 21) 6) participated. Four themes generated: (1) Issues accessing not process; (2) Knowledge assessments health system; (3) Expectations carers; (4) Post-assessment unmet needs. The most prominent barriers relatives encountered awareness assessment. mostly unaware existence entitlement assessment, sometimes realised they had participated one without knowledge. Professionals described pressures on time lack financial resources within services. Conclusions To facilitate improved support for pathway be clearer, better integration communication

Language: Английский

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