Towards integrated paediatric rehabilitation through a shared health portal for children with disabilities: A qualitative study on professionals’ perspectives (Preprint) DOI Creative Commons

Marietta Kersalé,

Thomas Richard,

Quan Nha Hong

et al.

Published: Feb. 24, 2025

BACKGROUND Providing integrated care is essential in paediatric rehabilitation, given the multiplicity of settings and professions involved children’s rehabilitation pathways need for a strong partnership between children with disabilities, families professionals to improve participation. E-health tools, such as shared patient health portals, can support care. OBJECTIVE This study aims explore perspectives on usefulness desired features portal well perceived challenges its use. METHODS An interpretive descriptive qualitative was conducted. Data were collected through 32 semi-structured, online interviews healthcare (n=15), education (n=11), recreation (n=5) social (n=1) motor cognitive disabilities France. Recruitment maximum variation snowball sampling. Interview verbatims analysed using NVivo14 by an interdisciplinary team researchers, including parents clinicians, following thematic analysis approach. saturation reached. RESULTS Three main themes identified: 1) opportunities portal, 2) proposals features, 3) sources ambivalence towards use, along strategies overcome these concerns. Professionals opportunity facilitate collaboration healthcare, education, community services create continuum, exchanges about child's participation different living environments develop skills everyday life, continuous engagement throughout process. To fulfil opportunities, participants suggested be into portal: calendar across sectors providers, photos, videos, reports child functioning activities, ability share progress maintain their rehabilitation. Participants expressed use tool, regarding confidentiality transparency, especially non-medical professionals; increased screen time; parental control portal; time spent portal. Despite barriers, they showed interest CONCLUSIONS highlighted foster true children, parents, disabilities. Concrete proposed enhance stakeholder some challenges, significant benefits reflecting intention it practice. These results will inform development digital tools designed quality offered children. CLINICALTRIAL The procedures registered at ClinicalTrials.gov under identifier NCT06570148.

Language: Английский

Participation as a means-implications for intervention reasoning DOI Creative Commons
Mats Granlund, Christine Imms

Frontiers in Rehabilitation Sciences, Journal Year: 2024, Volume and Issue: 5

Published: June 27, 2024

Introduction The increased focus among researchers and professionals on participation as an explicit intervention outcome has prompted a paradigm shift in both thought practice. However, much research centers altering outcomes specific life situations stages. This discussion paper considers “participation means” pediatric rehabilitation special education interventions, emphasizing its role achieving lasting outcomes. Method uses Venn diagram approach to consider relations between three core concepts—participation, intervention, outcomes—and their intersection. paper's central theme revolves around the intersection of these concepts, wherein serves means achieve enduring within realms education. is supported by contemporary empirical work from literature identified two recent scoping reviews focusing process. Results Achieving through process necessitates creating learning experience, with children families actively participating every step: identifying issues, seeking explanations, prioritizing goals, selecting methods, implementing evaluating Discussion structured supports foster skills capacity required for impairments.

Language: Английский

Citations

4

Rehabilitation of a Patient with Knee Arthrofibrosis after Tibial Spine Fracture: a Case Report in Paediatrics DOI Creative Commons

Kseniya I. Rupasova,

Olga O. Gukkina,

Alexander Zakharov

et al.

Bulletin of Rehabilitation Medicine, Journal Year: 2025, Volume and Issue: 23(6), P. 83 - 89

Published: Feb. 3, 2025

INTRODUCTION. Tibial spine fracture (TSF) is a rare injury, the incidence higher among children. The common complication of treatment arthrofibrosis. Early rehabilitation important for its prevention. Guidelines haven’t been worked out. CASE REPORT. Patient A., 11 years old, was operated TSF. When she had hospitalized in medical center after 4 months, knee arthrofibrosis diagnosed. Examination: range motion 180–155°. Edema periarticular tissues. gait pattern impaired. She couldn’t maintained balance Trendelenburg test on affected leg. Psychological diagnostics: fear flexion, decreased motivation. Rehabilitation aims: A. will begin to bend while walking 10–14 procedures d450.3.2–d450.2.1, b7100.2–b7100.1. not afraid during exercises by end d240.2.0–d240.1.0. program: physical exercises, mechanotherapy (treadmill, ladder with ramp, continuous passive motion), electrical myostimulation, aquajet therapy, vibrotherapy, kinesiotaping, hardware massage, sessions psychologist, magnetic laser. RESULTS AND DISCUSSION. Range 180–135°. tibia and hip has decreased. minimally bends when walking, flexion appeared. can maintain test. bending according self-assessment, but it difficult cope situation discomfort her own. aims have partially achieved. potential low because long period surgery personal characteristics. Life quality didn’t decrease, made setting aims. team decided focus psychological work improving motion. CONCLUSION. Teamwork guidelines are due variety complexity pathology.

Language: Английский

Citations

0

Towards integrated paediatric rehabilitation through a shared health portal for children with disabilities: A qualitative study on professionals’ perspectives (Preprint) DOI Creative Commons

Marietta Kersalé,

Thomas Richard,

Quan Nha Hong

et al.

Published: Feb. 24, 2025

BACKGROUND Providing integrated care is essential in paediatric rehabilitation, given the multiplicity of settings and professions involved children’s rehabilitation pathways need for a strong partnership between children with disabilities, families professionals to improve participation. E-health tools, such as shared patient health portals, can support care. OBJECTIVE This study aims explore perspectives on usefulness desired features portal well perceived challenges its use. METHODS An interpretive descriptive qualitative was conducted. Data were collected through 32 semi-structured, online interviews healthcare (n=15), education (n=11), recreation (n=5) social (n=1) motor cognitive disabilities France. Recruitment maximum variation snowball sampling. Interview verbatims analysed using NVivo14 by an interdisciplinary team researchers, including parents clinicians, following thematic analysis approach. saturation reached. RESULTS Three main themes identified: 1) opportunities portal, 2) proposals features, 3) sources ambivalence towards use, along strategies overcome these concerns. Professionals opportunity facilitate collaboration healthcare, education, community services create continuum, exchanges about child's participation different living environments develop skills everyday life, continuous engagement throughout process. To fulfil opportunities, participants suggested be into portal: calendar across sectors providers, photos, videos, reports child functioning activities, ability share progress maintain their rehabilitation. Participants expressed use tool, regarding confidentiality transparency, especially non-medical professionals; increased screen time; parental control portal; time spent portal. Despite barriers, they showed interest CONCLUSIONS highlighted foster true children, parents, disabilities. Concrete proposed enhance stakeholder some challenges, significant benefits reflecting intention it practice. These results will inform development digital tools designed quality offered children. CLINICALTRIAL The procedures registered at ClinicalTrials.gov under identifier NCT06570148.

Language: Английский

Citations

0