Co-constructing engagement in pediatric rehabilitation: a multiple case study approach DOI
Gillian King, Lisa A. Chiarello, Michelle Phoenix

et al.

Disability and Rehabilitation, Journal Year: 2021, Volume and Issue: 44(16), P. 4429 - 4440

Published: April 18, 2021

Purpose To explore engagement principles and contextual conditions in high-engagement therapy sessions involving youth with disabilities service providers.Method From a larger project on engagement, dyadic case analysis was conducted three ages 8–15 their providers. Participants were interviewed about experiences after focusing speech articulation, transition goals, physical mobility. Data analyzed thematically, an emphasis illustrated by the cases.Results There four provider principles: (a) clients differ what engages them how they display (Individual Variation Principle), (b) there are multiple ways to engage (Personalizing (c) is cultivated through relationship (Relationship (d) it important monitor be attuned client's level of over session (Monitoring Principle). Service providers' use strategies varied due conditions, including type youths' interests preferences.Conclusions The findings indicate value awareness dynamics personalized clients, fundamental importance cultivating good monitoring client during therapy.IMPLICATIONS FOR REHABILITATIONService providers may benefit from being aware common underlying co-construction between clients.Service can variety heighten work cultivate positive relationship.It clients' non-verbal verbal signs respond disengagement therapy.Contextual affecting include nature provided preferences.

Language: Английский

The Role of Family Influence and Academic Satisfaction on Career Decision-Making Self-Efficacy and Happiness DOI Open Access
Orhan Koçak, Namık Ak,

Sezer Seçkin Erdem

et al.

International Journal of Environmental Research and Public Health, Journal Year: 2021, Volume and Issue: 18(11), P. 5919 - 5919

Published: May 31, 2021

Careers are a reality of life that need to be considered as multi-dimensional in today’s modern societies. Choosing career is complex process coincides with high school and university ages, creating psycho-social stress. Considering the literature, effects different environmental factors have been revealed separate studies. This study examines both individual together. By adopting quantitative research method, we collected cross-sectional data through online questionnaires from 1130 students. The association family influence academic satisfaction happiness decision self-efficacy was meaningful using gender, age, income, parents’ education control variables. Family were positively correlated happiness. In conclusion, found support, students’ work, significant terms It understood should holistic view includes family, school, work experience.

Language: Английский

Citations

72

The Nature, Value, and Experience of Engagement in Pediatric Rehabilitation: Perspectives of Youth, Caregivers, and Service Providers DOI
Gillian King, Lisa A. Chiarello, Roger Ideishi

et al.

Developmental Neurorehabilitation, Journal Year: 2019, Volume and Issue: 23(1), P. 18 - 30

Published: May 1, 2019

Purpose: To conduct a qualitative investigation of engagement in pediatric rehabilitation therapy.Methods: Interviews were conducted with 10 youth, caregivers, and service providers. Transcripts analyzed thematically using an inductive approach.Results: Themes illustrated three perspectives: as connection components the therapy process, working together, affective motivational process. Engagement created valued connections forward momentum for therapy.Conclusions: The themes supported view complex, transactional, multidimensional. Participants focused on different, yet not discrepant, aspects engagement. Youth having fun personal Caregivers provided more complex perspective encompassing both their own child's engagement, emphasis relationship, understanding what is taking place, feeling Service providers highlighted goal attainment value bringing about outcomes.

Language: Английский

Citations

41

The Feasibility of Occupation-Based Coaching for Autistic Children and Primary Caregivers DOI Creative Commons
Melanie Morriss Tkach, Winnie Dunn, Timothy Wolf

et al.

OTJR Occupational Therapy Journal of Research, Journal Year: 2025, Volume and Issue: unknown

Published: Jan. 6, 2025

Autistic children participate less and have fewer opportunities to develop participation skills than nonautistic peers. The extent which occupation-based coaching (OBC), a metacognitive strategy training intervention, affects in school-age autistic is unknown. We conducted single-group pretest-posttest design evaluate the feasibility preliminary effect of telehealth OBC for (

Language: Английский

Citations

0

Occupational Balance and Life Satisfaction in Parents of Children With Autism DOI Open Access
Gülşah Zengin Yazıcı, Kardelen Yıldırım

Child Care Health and Development, Journal Year: 2025, Volume and Issue: 51(2)

Published: Feb. 8, 2025

Having a child with disabilities can affect occupational balance, which is known risk factor for health and well-being. The objective of this study was to examine the balance life satisfaction parents children autism neurotypical development in Turkey. cross-sectional included 140 typical neurodevelopment. evaluated using Turkish Occupational Balance Questionnaire-11 (OBQ11-T), while their assessed Contentment Life Scale (CLAS). A significant difference observed between groups regard OBQ11-T total score scores Items 4 9 (p < 0.05). Additionally, discrepancy CLAS two groups. positive correlation (r = 0.875; p 0.001). findings suggest that therapists should support by addressing obligatory discretionary activities, as well connections work, home, family, leisure, rest sleep. Assessing its influencing factors also essential. Therapists implement tailored interventions promote roles, routines participation, ultimately improving satisfaction. These highlight importance targeted strategies enhance Future research explore causal mechanisms through longitudinal interventional studies deepen understanding improve outcomes.

Language: Английский

Citations

0

Caregiver determinants and capacity for participation in constraint-induced movement therapy DOI Creative Commons
Heather Moore,

Amy Ayala,

Bhooma R. Aravamuthan

et al.

Frontiers in Pediatrics, Journal Year: 2025, Volume and Issue: 13

Published: Feb. 20, 2025

Hemiplegic cerebral palsy affects 1 in every 1,100 children, making it the most common pediatric motor disability. Constraint-Induced Movement Therapy (CIMT) is an evidence-based intervention that significantly improves upper extremity function when implemented with high fidelity. Despite its effectiveness, CIMT's intensive nature-requiring daily therapy for up to twenty days-limits availability. This study examined caregivers' perspectives on implementing and adapting home-based CIMT identify practical solutions improving accessibility. Caregivers of a child who has diagnosis associated impairment consistent were recruited from Cerebral Palsy Center at St. Louis Children's Hospital. completed semi-structured interview share their experiences, as well ideas opinions related modified versions CIMT. All interviews coded analyzed themes using descriptive analysis. Twelve conducted revealed caregivers would be interested at-home model. Those had experience stated they found meaningful results participation communicated potential challenges such remaining engaged therapy, caregiver confidence time required caregiver-led, Study findings identified see value modified, program. Developing version needed increase access this beneficial intervention.

Language: Английский

Citations

0

The Silent Struggle: Parents' Lived Experiences Raising Children with Behavioral Problems DOI Creative Commons

Jeeve C. Bonjibon

Published: April 22, 2025

Parents experienced difficulties in handling children with disruptive behavior. This study explored the lived experiences of parents behavioral disabilities. Specifically, examined parents' attitudes toward effectiveness behavior management strategies, perceived subjective norms, and control. Using qualitative-phenomenological method purposive sampling, I used semi-structured interviews ten focus group discussions eight parents. extracted three themes related to attitude: perceptions emotional psychological impact on parents, parental beliefs child Additionally, two were for control, namely, self-efficacy self-perception well-being. Moreover, four social perception parenting, negative judgments or criticism, role support systems extended networks, fear labeling misinterpretation. Furthermore, intention, coping strategies external influences intention. The results suggest that shape intentions. Longitudinal studies are recommended deeper insights into factors drive hinder management.

Language: Английский

Citations

0

Parent Engagement in Child-Focused Interventions: A Systematised Review of Qualitative Allied Health Literature DOI Creative Commons
Victoria Burney, Clare McCann, Angela Arnold‐Saritepe

et al.

Child & Youth Care Forum, Journal Year: 2024, Volume and Issue: 53(6), P. 1451 - 1486

Published: March 3, 2024

Abstract Background Parent engagement in child-focused interventions is increasingly recognised as an important aspect of effective intervention delivery. While several fields have emerging literature around parent engagement, no reviews currently exist which combine findings across allied health literatures. Objective This review aimed to explore factors relevant understanding interventions, described qualitative disciplines, toward informing the clinical practice helping professionals effectively engaging parents. Methods A systematised was carried out, with a comprehensive search five online databases (CINAHL, Embase, MEDLINE, PsycINFO, Scopus) for (specifically: behaviour analysis, occupational therapy, psychology, and speech-language therapy) using key words. Reference searching citation tracking steps supported search. Thematic synthesis used overarching framework analysis approach. Results 8824 unique studies were generated Of 71 met inclusion criteria, 38 reported included analysis. Five themes identified including: societal context, interpersonal clinician features, family relationship engagement. Conclusions Findings support conceptual explanations complex dynamic process, emphasising joint contributions parents clinicians developing therapeutic relationships promote Across research there are consistency understandings supporting conclusion that can look literatures from various inform interventions.

Language: Английский

Citations

3

The experiences of families of children with cerebral palsy and complex disability after three years accessing the National Disability Insurance Scheme DOI Creative Commons

Maddison O'Neill,

Helen Bourke‐Taylor, Anoo Bhopti

et al.

Australian Occupational Therapy Journal, Journal Year: 2024, Volume and Issue: unknown

Published: June 5, 2024

Abstract Introduction In Australia, children with cerebral palsy and complex disability receive funded supports through the National Disability Insurance Scheme (NDIS). This individualised funding scheme requires parents to navigate advocate on behalf of their child, supported by expert reports, recommendations, allied health services. Supports aim enable participation in all areas daily life, which may be otherwise largely inaccessible families. study aimed explore experiences families after 3 years accessing NDIS. Methods A qualitative research design a demographic questionnaire in‐depth interview was undertaken. Purposive sampling used recruit participants from one organisation providing occupational therapy other Data analysis implemented Braun Clarke's thematic approach examine participants. Consumer Community Involvement conducted registered provider give voice parent consumers who raise disability. Findings Seven mothers father (N = 8) were interviewed. Most reported increased success satisfaction navigating scheme. Five overall themes generated data: pivotal roles , parental empowerment life‐changing equipment fallibility critical . Conclusion Parents reliance for child's basic care more enriched life child family. grateful but experienced inconsistencies, navigation difficulties, variable choice control. had fears about sustainability scheme, translating into uncertainty future. Allied professionals, including therapists, are key advocates Collaboration sharing knowledge skills support children, families, carers is empowering PLAIN LANGUAGE SUMMARY The (NDIS) provides people permanent significant Children (and disability) lifetime users For disability, crucial ensuring that needs being met, medication. Previous indicated rely NDIS children; however, there have been various challenges such as long wait times difficulty understanding how use explored than an participant. Eight service completed short themselves, family, followed first author. Four authors (occupational therapists) worked together implement this study. findings highlighted several points: important role caregivers; became knowledgeable confident time; life‐changing; has ongoing issues; nature Occupational therapists can extremely supporting advocating them. must stay current they provide support, prescribing equipment, technology, home modifications.

Language: Английский

Citations

3

A measure of parent engagement: plan appropriateness, partnering, and positive outcome expectancy in pediatric rehabilitation sessions DOI
Gillian King, Lisa A. Chiarello, Matthew J. W. McLarnon

et al.

Disability and Rehabilitation, Journal Year: 2021, Volume and Issue: 44(14), P. 3459 - 3468

Published: Jan. 4, 2021

Purpose To examine the psychometric properties of a parent-report measure engagement in pediatric rehabilitation.Method 113 parents (of children 4 months to 18 years, varying diagnoses) were recruited from standard outpatient/inpatient, early intervention, and life skills programs, sampled different sites Canada, US, Australia. Parents completed Pediatric Rehabilitation Intervention Measure Engagement—Parent version (PRIME-P) twice, after two therapy sessions approximately weeks apart. Analyses examined factor structure, internal consistency, test-retest reliability, assessed construct validity hypotheses concerning participant characteristics contextual factors.Results The resulting 11-item PRIME-P has three factors capturing terms Plan Appropriateness, Partnering, Positive Outcome Expectancy. displayed strong consistency reliability (Partnering demonstrated slightly weaker reliability). Construct was shown by significant associations between scales parents' presence versus absence during sessions, as well service providers' years experience.Conclusions captures parent multifaceted involving appropriateness plan, sense active partnership intervention process, an expectation for positive outcome. promise research, clinical practice, educational purposes.IMPLICATIONS FOR REHABILITATIONThe is psychometrically sound tool that fills gap how researchers practitioners can process.To enhance engagement, providers encourage collaboration planning, foster working partnership, convey hope.The findings point need pay attention beliefs about plan outcomes, addition their behavioral involvement.The promising rehabilitation be used investigate role crucial, yet poorly understood variable process.

Language: Английский

Citations

18

A scoping review of parental roles in rehabilitation interventions for children with developmental delay, disability, or long-term health condition DOI
Katherine A. Smith, Alecia Samuels

Research in Developmental Disabilities, Journal Year: 2021, Volume and Issue: 111, P. 103887 - 103887

Published: Feb. 5, 2021

Language: Английский

Citations

18