Exploring research team members’ and trial participants’ perceptions of acceptability and implementation within one videoconference-based supportive care program for individuals affected by systemic sclerosis during COVID-19: a qualitative interview study

Translational Behavioral Medicine, Journal Year: 2023, Volume and Issue: 13(7), P. 442 - 452

Published: March 31, 2023

The SPIN-CHAT Program was designed to support mental health among individuals with systemic sclerosis (SSc; commonly known as scleroderma) and at least mild anxiety symptoms the onset of COVID-19. program formally evaluated in Trial. Little is about trial acceptability, factors impacting implementation from perspectives research team members participants. Thus, propose this follow-up study explore members' participants' experiences identify acceptability successful implementation. Data were collected cross-sectionally through one-on-one, videoconference-based, semi-structured interviews 22 30 purposefully recruited participants (Mage = 54.9, SD 13.0 years). A social constructivist paradigm adopted, data analyzed thematically. organized into seven themes: (i) getting started: importance prolonged engagement exceeding expectations; (ii) designing trial: including multiple features; (iii) training: are critical positive experiences; (iv) offering it needs be flexible patient-oriented; (v) maximizing engagement: navigating managing group dynamics; (vi) delivering a videoconference-based supportive care intervention: necessary, appreciated, associated some barriers; (vii) refining considering modification when offered beyond period COVID-19 restrictions. Trial satisfied found acceptable. Results offer that can guide design, development, refinement other programs seeking promote psychological during

Language: Английский

The COVID-19 pandemic highlights the need for a psychological support in systemic sclerosis patients.

Clinical and Experimental Rheumatology, Journal Year: 2023, Volume and Issue: unknown

Published: July 17, 2023

Language: Английский