Mothers’ perspectives on the use and acceptability of 3d printed prosthesis by their children with congenital upper limb difference in India: a qualitative study DOI Creative Commons

Oksana Yakova Dimintiyanova,

Agnes Meershoek,

Nicolai Henri de Kuyper

et al.

Disability and Rehabilitation, Journal Year: 2024, Volume and Issue: unknown, P. 1 - 11

Published: Nov. 1, 2024

Purpose Children with congenital upper limb difference (CULD) in India have limited access to treatment conventional prostheses. 3D printed prosthetic devices (3DPP) can function as transitional prostheses for growing children transverse deficiency. They are low-cost and the designs easily customized. However, functional outcomes, access, acceptability still unexplored many clinical settings. This qualitative study sought perspectives from Indian mothers of CULD using 3DPP first time. The objective was enhance understanding explore how their utilized these devices.

Language: Английский

Exploring the “shared” in shared decision-making in the care for children with chronic diseases or disabilities: what are the roles of parents and professionals? DOI
Mattijs W. Alsem,

Anouk Bakkum,

Marjolijn Ketelaar

et al.

European Journal of Pediatrics, Journal Year: 2024, Volume and Issue: 184(1)

Published: Dec. 19, 2024

Language: Английский

Citations

1
Caring for Children With Congenital Upper Extremity Differences DOI
Nina Lightdale-Miric, Sarah Tuberty,

Danielle Nelson

et al.

The Journal Of Hand Surgery, Journal Year: 2021, Volume and Issue: 46(12), P. 1105 - 1111

Published: Sept. 20, 2021

Language: Английский

Citations

6
Adolescents with congenital limb reduction deficiency: Perceptions of treatment during childhood and its meaning for their current and future situation DOI Creative Commons
Lis Sjöberg, Liselotte Hermansson, Helen Lindner

et al.

Child Care Health and Development, Journal Year: 2022, Volume and Issue: 48(4), P. 613 - 622

Published: Jan. 19, 2022

Children with congenital limb reduction deficiency live the decisions made by their parents and healthcare professionals about treatments to be carried out during first years of life. To understand better meaning treatment childhood, it is necessary listen adolescents who have had this experience. The aim study was investigate perceptions concerning they received childhood what meant them currently in future.A descriptive design a qualitative approach used. Semi-structured interviews were conducted 10 (six girls four boys) upper and/or lower deficiency, median age 17.5 (range 16-19). interview data analysed using phenomenographic approach.The contributed shaping adolescents, as shown emerging description categories Creating opportunities, Choosing one's own path Belonging context. Their current situation fell into three categories: A continuous journey, indicating that still used skills learned childhood; Leaving door open, not but felt there could opportunities ahead; Closing chapter, stopped prosthesis or assistive devices no longer needed those skills. Further, adolescents' thoughts future are portrayed Uncertainty Confidence future.An understanding may help improve delivery continued support meet needs children short long term.

Language: Английский

Citations

4
Patterns of use of a myoelectric prosthesis in a cohort of children with transverse defects below the level of the elbow DOI
Lucía Ros Dopico,

Ejessie Alfonso Barrera,

Berta Valero Telleria

et al.

Prosthetics and Orthotics International, Journal Year: 2024, Volume and Issue: unknown

Published: April 18, 2024

Background: Myoelectric prostheses have become the accepted standard of care for pediatric upper-limb amputees. Objectives: To describe clinical characteristics and patterns prosthesis use to analyze changes that occur during growth process these patients. Study design: This is a longitudinal retrospective study comparing results surveys carried out in 2015 2022. Methods: The variables measured included demographic characteristics, use, satisfaction with prosthesis. Results: Twenty-one patients transverse defects were fitted myoelectric prostheses. With increasing age, there was statistically nonsignificant decrease duration number using activities daily living from 13 10 ( p = 0.045), 28% dropout rate, higher more distal defects. Conclusions: Since 2015, we observed hours while maintaining high percentage

Language: Английский

Citations

0
Mothers’ perspectives on the use and acceptability of 3d printed prosthesis by their children with congenital upper limb difference in India: a qualitative study DOI Creative Commons

Oksana Yakova Dimintiyanova,

Agnes Meershoek,

Nicolai Henri de Kuyper

et al.

Disability and Rehabilitation, Journal Year: 2024, Volume and Issue: unknown, P. 1 - 11

Published: Nov. 1, 2024

Purpose Children with congenital upper limb difference (CULD) in India have limited access to treatment conventional prostheses. 3D printed prosthetic devices (3DPP) can function as transitional prostheses for growing children transverse deficiency. They are low-cost and the designs easily customized. However, functional outcomes, access, acceptability still unexplored many clinical settings. This qualitative study sought perspectives from Indian mothers of CULD using 3DPP first time. The objective was enhance understanding explore how their utilized these devices.

Language: Английский

Citations

0