Paediatric and Perinatal Epidemiology,
Journal Year:
2025,
Volume and Issue:
unknown
Published: Feb. 18, 2025
ABSTRACT
Background
The
New
South
Wales
(NSW)
and
Australian
Capital
Territory
(ACT)
Cerebral
Palsy
(CP)
Register
is
a
database
of
clinical
demographic
information
from
children
with
CP.
A
child
CP
resulting
an
insult
to
the
developing
brain
sustained
between
29
days
2
years
age
classified
as
having
post‐neonatally
acquired
(PNN‐CP).
In
services,
may
meet
criteria
timing
for
PNN‐CP
but
have
singular
diagnosis
acquired/traumatic
injury.
Objectives
To
implement
evaluate
new
register
ascertainment
strategy
focused
on
identifying
attending
injury
rehabilitation
services.
Methods
Electronic
medical
records
Sydney
Children's
Hospitals
Network
John
Hunter
Hospital
departments
2019–2024
were
reviewed
by
researchers
paediatricians
identify
PNN‐CP.
Children
who
fulfilled
invited
participate
in
Register.
this
strategy,
we
(i)
ran
descriptive
statistics
analyse
proportional
changes
(ii)
calculated
temporal
trends
prevalence
per
10,000
live
births
birth
2003–2016,
before
after
record
period.
Results
Of
1051
injury,
46
had
(2003–2019)
not
previously
been
included
register.
This
resulted
increased
all
2‐year
time
points
2003
2016
equated
31%
improvement
Conclusions
Ascertainment
NSW/ACT
has
improved
systematically
reviewing
now
part
standard
practice,
other
registers
should
consider
whether
improve
their
regions.
Developmental Medicine & Child Neurology,
Journal Year:
2025,
Volume and Issue:
unknown
Published: April 11, 2025
Abstract
‘Cerebral
palsy’
(‘CP’)
is
a
widely
used
descriptive
label
for
spectrum
of
motor
impairments
caused
by
non‐progressive
brain
injury
or
malformation
occurring
during
early
development.
Advances
in
research
have
significantly
refined
our
understanding
CP,
including
insights
into
its
genetic,
inflammatory,
and
neurophysiological
underpinnings.
Research
across
global
contexts,
low‐
middle‐income
countries,
has
expanded
knowledge
clinical
features.
Shifting
societal
perceptions,
driven
individuals
with
lived
experience,
further
influenced
how
CP
understood,
challenging
ableist
attitudes
promoting
inclusive
frameworks.
Additionally,
increased
recognition
the
needs
experiences
adults
highlighted
importance
developing
appropriate
services.
The
primary
aim
this
paper
to
propose
an
updated
description
developed
through
collaborative,
multidisciplinary
process,
as
preliminary
formulation
that
integrates
stakeholder
perspectives
at
stage
process.
By
framing
it
foundation
discussion
refinement,
manuscript
emphasizes
output
itself
rather
than
process
A
comprehensive
analysis
mapping
approach
ensured
broad
representation,
families,
clinicians,
researchers,
advocacy
groups,
others.
Data
were
collected
surveys,
interviews,
focus
workshops,
facilitating
dialogue
combined
expertise
those
experience
clinicians.
proposed
offers
framework
guide
practice,
research,
policy,
fostering
shared
CP.
intended
serve
emphasizing
thus
lays
continued
collaboration
advancing
care
inclusion
Healthcare,
Journal Year:
2024,
Volume and Issue:
12(4), P. 493 - 493
Published: Feb. 18, 2024
Children
with
developmental
central
hypotonia
have
reduced
muscle
tone
secondary
to
non-progressive
damage
the
brain
or
brainstem.
may
transient
delays,
mild
global
functional
impairments,
and
lack
of
a
clear
understanding
this
diagnosis
makes
evaluating
appropriate
interventions
challenging.
This
overview
aimed
systematically
describe
best
available
evidence
for
tools
identify
evaluate
children
aged
2
months
6
years.
A
systematic
review
reviews
syntheses
was
conducted
electronic
searches
in
PubMed,
Medline,
CINAHL,
Scopus,
Cochrane
Database
Systematic
Reviews,
Google
Scholar,
PEDro
supplemented
hand-searching.
Methodological
quality
risk-of-bias
were
evaluated,
included
compared
contrasted.
Three
reviews,
an
evidence-based
clinical
assessment
algorithm,
three
measurement
protocols,
two
additional
identified.
For
years,
Hammersmith
Infant
Neurological
Examination
has
strongest
properties
contains
subset
items
that
be
useful
quantifying
severity
hypotonia.
2–6
algorithm
individual
provide
guidance.
Further
research
is
required
develop
validate
all
evaluative
Developmental Medicine & Child Neurology,
Journal Year:
2024,
Volume and Issue:
66(9), P. 1148 - 1156
Published: March 26, 2024
Abstract
Aim
To
identify
cerebral
palsy
(CP)
variables
collected
in
CP
registries
from
high‐income
countries
(HICs)
and
low‐
middle‐income
(LMICs)
to
assist
with
the
development
of
a
regional
registry
relevant
African
region.
Method
A
systematic
search
online
databases
peer‐reviewed
publications
grey
literature
about
risk‐factor
variables,
using
Ovid
MEDLINE,
Embase
Ovid,
CINAHL,
Google
Scholar.
Results
total
197
studies
published
global
between
1990
2023
were
identified.
both
HICs
LMICs
included
on
prenatal
risk
factors.
LMIC
focused
more
socioeconomic
factors
(the
physical
structure
family
home
[21.1%,
n
=
8,
vs
1.7%,
2,
HICs]).
Prenatal
modifiable
non‐modifiable
emphasized
HICs.
postnatal
than
HIC
registries,
including
history
jaundice
(15.8%,
6,
6.9%,
HICs)
head
trauma
(10.5%,
4,
5.2%,
HICs).
Interpretation
are
currently
available
LMICs.
Differences
account
for
most
differences
Comparing
used
by
suggests
importance
understanding
contextually
design.
Developmental Medicine & Child Neurology,
Journal Year:
2024,
Volume and Issue:
unknown
Published: Oct. 21, 2024
Abstract
Aim
To
describe
what
is
known
about
hip
problems
in
individuals
with
developmental
central
hypotonia.
Method
Searches
were
conducted
five
databases
to
October
2023.
Down
syndrome
was
excluded
from
this
analysis
of
less
well‐known
genetic
diagnoses.
At
least
two
reviewers
independently
screened
titles,
abstracts,
read
full‐text
articles,
and
extracted
data.
Results
Of
89
79
met
inclusion
criteria.
Studies
included
544
aged
1
month
63
years
Kabuki,
49,
XXXXY,
Prader–Willi,
PURA,
Koolen
de
Vries,
Emanuel,
TRPM3,
Wolf–Hirschhorn,
other
rare
syndromes.
Most
diagnoses
may
be
associated
a
combination
differences
structure
or
stability
that
are
evident
at
birth,
develop
early
infancy,
increasing
dysplasia
subluxation
over
time.
Joint
ligamentous
laxity
most
reported
along
hypotonia
hypermobility
as
risk
factors.
Limited
data
identified
conservative
surgical
intervention
outcomes
these
populations.
Interpretation
Children
significant
hypotonia,
without
confirmed
diagnosis,
increased
missed
standard
neonatal
screening.
Ultrasound
recommended
between
6
weeks
months,
annual
orthopaedic
review
regular
radiographs
for
older
children
adults
persistent
Nutrients,
Journal Year:
2024,
Volume and Issue:
16(15), P. 2394 - 2394
Published: July 24, 2024
Cerebral
palsy
(CP)
often
correlates
with
a
higher
risk
of
malnutrition,
negatively
affecting
the
quality
life
patients
and
their
families.
Enteral
nutrition
via
feeding
tube
should
be
considered
to
improve
nutritional
status
CP
patients.
To
date,
there
has
been
no
nationwide
registry
in
Poland.
This
study
aimed
assess
prevalence
home
enteral
(HEN)
provision
pediatric
adult
CP.
medRxiv (Cold Spring Harbor Laboratory),
Journal Year:
2024,
Volume and Issue:
unknown
Published: Aug. 9, 2024
To
describe
a
standardized
methodology
for
capturing
clinically
valuable
information
on
young
people
with
cerebral
palsy
(CP)
from
caregivers
and
clinicians
during
routine
clinical
care.
