The role of identity in the experiences of dementia care workers from a minority ethnic background during the COVID‐19 pandemic: A qualitative study DOI Creative Commons

Mishca Hughes,

Sarah Butchard, Clarissa Giebel

et al.

Health Expectations, Journal Year: 2023, Volume and Issue: 26(4), P. 1668 - 1678

Published: April 20, 2023

Care home staff working during the COVID-19 pandemic experienced higher levels of stress and increased workloads. People from diverse ethnic backgrounds were disproportionately affected by pandemic. This study explored identity experiences care in context

Language: Английский

The effect of volunteer-led activities on the quality of life of volunteers, residents, and employees of a long-term care institution: a cohort study DOI Creative Commons
Luísa Veras de Sandes-Guimarães, Patrícia Carla dos Santos,

Carla Patricia Grossi Palácio Alves

et al.

BMC Geriatrics, Journal Year: 2023, Volume and Issue: 23(1)

Published: March 20, 2023

The COVID-19 pandemic primarily impacted long-term care facilities by restricting visiting and circulation of visitors, affecting the quality life (QoL) older adults living in these institutions. Volunteer activities, essential for adults' daily life, were also interrupted potentially negatively QoL adults, volunteers themselves, employees In this context, study aims to evaluate impact return volunteer-led activities a institution on adult residents, employees, volunteers.This used pre-test post-test design within same group. first round data collection was conducted before returned second after 1 month return. instrument assess EUROHIS-QoL-8 scale. This nursing home São Paulo, Brazil, created 1937 members Israeli community Brazil. Volunteer-led part residents' pandemic, when about 20 months. A total 79 individuals participated both rounds (pre post), which: 29 27 volunteers, 23 institution.Using Wilcoxon signed-rank test, analyses indicated improvements different aspects three groups. Volunteers improved their personal relationships (Z - 2.332, p < .05), residents overall health 2.409, .05) perception 2.714, .05). Influencing factors number (3 or more), gender (male), education (undergraduate/graduate). For those who assumed additional due interruption had significant QoL.Evidence from suggests that volunteers' positively employees.

Language: Английский

Citations

7

Barriers to accessing and receiving mental health care for paid and unpaid carers of older adults DOI Creative Commons
Clarissa Giebel, Laura Prato,

Sue Metcalfe

et al.

Health Expectations, Journal Year: 2024, Volume and Issue: 27(2)

Published: March 25, 2024

Abstract Aim The aim of this qualitative study was to explore the barriers and facilitators accessing receiving mental health care for paid unpaid carers older adults. Methods Unpaid adults in England were interviewed remotely between May December 2022. Participants asked about their experiences needs support. Reflexive thematic analysis used analyse data. Results Thirty‐seven participated ( n = 9; 28), with majority caring a parent dementia. Thematic generated four themes: lack healthcare support, social system failing enable time off, personal unsupportive work culture. Healthcare professionals failed provide any link services, including when dementia diagnosis received. Structural organisational evidenced by being unable take off from duties or role, due an absence support relative. Conclusions This is first have explored suggests that structural, cause severe difficulties required relatives, services users residents. Public Involvement Two aided development topic guides, data analysis, interpretation dissemination. Both supported trained code anonymised transcripts.

Language: Английский

Citations

2

“We Did More Damage”: How COVID-19 Collapsed the Care Convoys of Residents Living With Dementia DOI
Sara Hackett, Lindsay Peterson, Carlyn Vogel

et al.

Journal of Applied Gerontology, Journal Year: 2023, Volume and Issue: 42(7), P. 1565 - 1573

Published: March 11, 2023

COVID-19 regulations have posed challenges for long-term care (LTC). However, few studies examined how such influenced the of residents living with dementia. Our objective was to gain an understanding LTC administrative leaders’ perceptions regarding impact response on this population. Using convoys framework, we conducted a qualitative descriptive study. Forty-three participants, representing 60 facilities, completed one interview where they described policies shaped Results from deductive thematic analysis revealed that participants believed dementia were strained. Participants emphasized diminished family involvement, increased staff responsibilities, and industry’s heightened regulatory climate contributed disrupted care. Further, highlighted pandemic-focused safety guidelines did not always consider unique needs those Consequently, study may inform policy by outlining considerations future emergencies.

Language: Английский

Citations

4

COVID-19-related trauma and the need for organizational healing in a Dutch nursing home DOI Creative Commons
Anne Lia Cremers,

Cato Janssen

Social Science & Medicine, Journal Year: 2023, Volume and Issue: 327, P. 115799 - 115799

Published: April 15, 2023

The nursing home sector was disproportionally affected by the COVID-19 pandemic and consequently, extreme mitigation strategies were taken in order to halt spread of virus. This research scrutinizes manifestations organizational trauma healing amongst employees during slow-burning pandemic. We aim advance contemporary debate around that exclusively investigates fast-burning crises translating these theories a crisis. Using participatory action research, we conducted two months visual ethnographic fieldwork small-scale located Amsterdam, Netherlands from October December 2021. Here, present our findings constituting text short videos according following four themes: (1) Emotional challenges workplace; (2) Cultural incompatibility infection control strategies; (3) Navigating ethics decision-making; (4) Organizational scars perspectives. propose new concept distillation describe analyse how simmering wounds are re-opened purified trigger prolonged process context crises. Ultimately, this may lead acknowledgement acceptance such as multi-layered intractable, aiming for theoretical empirical understanding heal these. Our use methods offers opportunity share their stories, make suffering heard, contribute homes' processes healing.

Language: Английский

Citations

4

‘Smart’ BLE wearables for digital contact tracing in care homes during the COVID-19 pandemic—a process evaluation of the CONTACT feasibility study DOI Creative Commons
Carl Thompson, Amrit Daffu-O’Reilly, Thomas A. Willis

et al.

Implementation Science Communications, Journal Year: 2023, Volume and Issue: 4(1)

Published: Dec. 4, 2023

Rapid and mass transmission of the SARS-CoV-2 virus amongst vulnerable people led to devastating effects from COVID-19 in care homes. The CONTACT intervention introduced Bluetooth Low Energy 'smart' wearable devices (BLE wearables) as a basis for automated contact tracing in, feedback on infection risks patterns to, homes try improve prevention control (IPC). We planned cluster randomised controlled trial (RCT) CONTACT. To be feasible, had adopt CONTACT's technology new ways working. This paper reports process evaluation conducted alongside feasibility study explains why it lacked acceptability definitive RCT.This mixed method used Normalisation Process Theory (NPT) qualitative (interviews, field notes, case report forms documents, observation) quantitative (survey instruments, counts activity) data plan, implement, analyse mechanisms, effects, contextual factors that shaped intervention.Thirteen themes within four core NPT constructs explained lack feasibility. Coherence: home's varied scale extent commitment understanding procedures. Leadership credibility was important but compromised by competing priorities. Management direct staff saw differently. Work promote (cognitive participation) enact (collective action) burdensome failed prioritised over COVID-19-related demands time scarce human cognitive resources. Ultimately, appraisal value CONTACT-generated information procedures (reflexivity) any utility IPC insufficient outweigh perceived burden complexity involved.Despite implementation failure, dismissing BLE wearables' potential is premature. In non-pandemic conditions, with more time, better co-design integration theory-driven strategies tailored homes' unique contexts, researchers could enhance normalisation readiness future pandemic challenges.ISRCTN registration: 11,204,126 registered 17/02/2021.

Language: Английский

Citations

4

Priorities to Support Care Partners of People Living With Dementia: Results of a Modified Delphi Process DOI
Sherril B. Gelmon,

Jenn Reed,

Walter D Dawson

et al.

Journal of Applied Gerontology, Journal Year: 2024, Volume and Issue: unknown

Published: Nov. 6, 2024

Objective: To determine priorities for services and policies that better support care partners of people living with dementia. Methods: A modified Delphi process engaged participants from organizations serving dementia partners, focusing on historically currently underserved communities. Eight thematic areas were identified. Participants ( N = 40) responded to three surveys, generating ideas, rating each, ranking priorities. Results: Each survey received 13–17 responses. Top ranked ideas arrayed across six areas: partner supports; programs; funding; information; coordination; workforce development. Discussion: The empowered share knowledge, respected their opinions. Anonymity removed power imbalances. iterations blended qualitative quantitative approaches, built consensus. invited the voices diverse participants; all weighed equally. This could be extended efforts further engage helping value in decision-making policies.

Language: Английский

Citations

1

Abuse and Wellbeing of Long-Term Care Workers in the COVID-19 Era: Evidence from the UK DOI Open Access
Eirini‐Christina Saloniki, Ágnes Turnpenny, Grace Collins

et al.

Sustainability, Journal Year: 2022, Volume and Issue: 14(15), P. 9620 - 9620

Published: Aug. 4, 2022

The UK long-term care workforce has endured difficult working conditions for many years. During the pandemic, sector faced unprecedented challenges, which further exacerbated these and brought concerns about workplace abuse violence. Such experiences can vary by personal work characteristics, particularly affecting minority ethnic groups. They subsequently impact workers’ wellbeing overall. Drawing on first wave of a longitudinal survey, this article examined COVID-19 social conditions, general health wellbeing, intentions to leave employer altogether. analysis is based both quantitative qualitative responses 1037 valid received between April June 2021. respondents were predominantly female, in direct roles mainly serving older adults (including those with dementia). findings highlighted worrying relation COVID-19, differed significantly nationality, ethnicity settings. showcased negative experienced work-life balance current or emphasise need targeted measures that promote physical, emotional financial wellbeing.

Language: Английский

Citations

6

The long-term psycho-social impact of the pandemic on people with intellectual disability and their carers DOI Creative Commons

Alexandra Gabrielsson,

Meissam Moghaddassian,

Indermeet Sawhney

et al.

International Journal of Social Psychiatry, Journal Year: 2023, Volume and Issue: 69(7), P. 1781 - 1789

Published: May 16, 2023

Background: People with intellectual disabilities (PWID) are at six times higher risk of death due to COVID-19. To mitigate harm, as a high-risk group, significant social changes were imposed on PWID in the UK. Alongside these changes, uncertainty pandemic influence, caused and their carers encounter stress. The evidence pandemic’s psycho-social impact originates mainly from cross-sectional surveys conducted professionals carers. There is little research longitudinal themselves. Aims: examine long-term PWID. Methods: A survey, following STROBE guidance, 17 Likert scale statements (12 5 carers) ascertain psychosocial was conducted. Every other open specialist Intellectual Disability service serving half UK County (pop:500,000) selected. same survey re-run cohort year later. Descriptive statistics, Mann-Whitney, Chi-square unpaired-t tests used compare responses. Significance taken p < .05. Comments analysed using Clarke Braun’s approach. Results: Of 250 contacted, 100 (40%) responded 2020 127 (51%) 2021. 69% (2020) 58% (2021) reported seeking medical support. Carers, (88%, 90%, 2021) noticed emotional they cared for. 13% 20% had regular psychotropics increased. 21% 24% pro re nata (PRN) medication adjusted. or demonstrated no statistically variation responses between themselves more likely report being upset/distressed compared carers’ perceptions them both years ( .001). Four themes identified. Conclusion: This study highlights diverse Pandemic’s has been significantly underestimated.

Language: Английский

Citations

3

Exploring Resilience in Care Home Nurses: An Online Survey DOI Open Access
Anita Mallon, Gary Mitchell, Gillian Carter

et al.

Healthcare, Journal Year: 2023, Volume and Issue: 11(24), P. 3120 - 3120

Published: Dec. 8, 2023

Resilience is considered a core capability for nurses in managing workplace challenges and adversity. The COVID-19 pandemic has brought care homes into the public consciousness; yet, little known about resilience of home attributes required to positively adapt job where pressure lies with individuals affect whole systems. To address this gap, an online survey was undertaken explore levels potential influencing factors sample Northern Ireland between January April 2022. included Connor-Davidson Scale, demographic questions items relating nursing practice characteristics. Mean differences key predictors higher were explored through statistical analysis. A moderate level reported among participants (n = 56). increased older age education. exposed systemic weakness but also strengths untapped sector. By linking individual, family, community organisation, may have developed unique attributes, which could be nurtured. With tailored support, capitalises on assets, they can influence much needed culture change, ensures contribution sector society recognised valued.

Language: Английский

Citations

3

Effects of Zentangle on Older Adults’ Anxiety, Happiness, and Dexterity DOI Creative Commons

Alex McCord,

Sandra McKenny,

Louise Horstmanshof

et al.

Activities Adaptation & Aging, Journal Year: 2024, Volume and Issue: unknown, P. 1 - 28

Published: Feb. 20, 2024

During the COVID-19 pandemics, supporting older adults living in nursing homes to engage meaningful experiences was challenged. This study aimed investigate changes anxiety, happiness, manual dexterity, and enjoyment for aged 72–100 after an eight-week Zentangle mindfulness-based art therapy course. The course conducted a regional Australian home during visitation restrictions. Twenty participants assigned either experimental or control group completed study. Experimental attended sessions which incorporated instructor-led drawing mindfulness techniques. A randomized block design used with quantitative pre post-assessments of fine motor skills, as well demographic cognitive screening at enrollment. Attrition session data were collected monitor participants' engagement any disruptions. showed significant reduction anxiety (−7%) increase happiness (+26%), 71% percent reporting they would continue attending recommend it. potential protective effect dexterity observed. Participants experiencing mild moderate reported most Results suggest that could be offered pleasurable activity non-pharmacological addition treatment.

Language: Английский

Citations

0