Understanding Barriers and Facilitators for Ethnic Minority Groups to Audio Recording Recruitment Discussions in Clinical Trials: A Participatory Approach to Improving Informed Consent and Participation

Health Expectations, Journal Year: 2025, Volume and Issue: 28(2)

Published: March 17, 2025

ABSTRACT Introduction Fully informed consent is essential for ethical trial conduct, yet gaps in participant comprehension and recall can occur, particularly among underserved groups, example, ethnic minorities. This Patient Public Involvement Engagement (PPIE) project explored the engagement of minority communities recruitment discussions, their views about audio recording discussions with healthcare professionals. Methods PPIE engaged Bristol, collaborating community partners to facilitate access then foster dialogue Somali, South Asian Chinese groups. Separate workshops men women from these groups were held introduce members clinical processes. Discussions, both recorded not, simulated real scenarios. To ensure cultural relevance accessibility, partly facilitated by our native languages. Results The insights gained during organised into key themes. Gaps understanding regarding participation highlighted. A finding was that trust played an important role engaging leaders ensuring linguistic sensitivity discussions. address knowledge trials streamline educational process, we developed storyboards multilingual video resources. These explained importance generally recruiting diverse patient populations particular. materials co‐created refined through iterative feedback accuracy appropriateness. challenge language barriers necessitated skilled interpreters, especially when recorded, optimise people backgrounds. video, available English, Urdu, Mandarin, Cantonese Bangla, facilitates purposes processes, aim widening Conclusion Our activities highlighted understanding, critical barriers. resources have been made those wanting overcome some issues. initial on has promising, underscoring potential impact future efforts activities. or Contribution a co‐creation this included active involvement collaborators co‐applicants ‘Khaas’ funding. They also helped us reach contributors (mainly Pakistani Bangladeshi origin) arrange workshops. two Somali Resource Centre Barton Hill Activity Club at Wellspring Settlement. Similarly, Community Wellbeing Society community. run workshop providing live translation discussion. translate scripts do voiceovers videos. Also, Tom Yardley Amanda Roberts script development.

Language: Английский

The potential clinical utility of Whole Genome Sequencing for patients with cancer: evaluation of a regional implementation of the 100,000 Genomes Project

British Journal of Cancer, Journal Year: 2024, Volume and Issue: 131(11), P. 1805 - 1813

Published: Oct. 30, 2024

The 100,000 Genomes Project established infrastructure for Whole Genome Sequencing (WGS) in the United Kingdom.

Language: Английский

Improving patient recruitment to cancer clinical trials: opportunities for cancer nurses

Cancer Nursing Practice, Journal Year: 2024, Volume and Issue: unknown

Published: July 24, 2024

In the UK, recruitment of patients with cancer to clinical trials has deteriorated due current political, societal, financial and challenges as well historic barriers participation. Cancer nurses can help improve by discussing their families or carers. To do this effectively, require an understanding some regarding participation knowledge what are available for patients, may entail how where signpost more detailed information. This article discusses considers potential role nurse in increasing patient enrolment. The main focus is lung cancer, but issues discussed relevant working all areas care.

Language: Английский