Qualitative Study on Emotional Experiences and Coping Strategies in Patients With COVID‐19 During the Early Stage of Wuhan Crisis DOI Creative Commons
Junyao Li, Huirong Luo,

W. Tang

et al.

Depression and Anxiety, Journal Year: 2024, Volume and Issue: 2024(1)

Published: Jan. 1, 2024

Objective: In the early stage of COVID‐19 pandemic from December 2019 to March 2020, patients endured huge mental stress combined with constant physiological suffering. We aimed summarize emotional experiences during stages Wuhan crisis and present coping strategies they used extreme time. Methods: did a qualitative study using an empirical phenomenology approach. recovery near discharge were recruited Dawu County Hospital Traditional Chinese Medicine in Hubei province purposive sampling. Semistructured face‐to‐face interviews conducted by frontline medical staff recorded video audio, then transcribed two researchers separately. The Haase adapted version Colaizzi method was analyze transcriptional data. Results: included 18 adult survivors (33% female, 67% male) within age range 27–83 (mean 48), average duration isolation 31.17 days. conjunction clinical data, we meticulously delved into trajectory each survivor, spanning onset illness through phases decline, improvement, eventual recovery. Three theme categories obtained data analysis, including negative emotions sources, strategies, positive sources. adopted self‐management received support different roles when confronting high level emotions. Conclusions: Early experienced both experiences. Anxiety other originated collective individual concerns. influence emotion sources differed at disease. Patients coped these stressors external supports self‐adjustment. Still, comprehensive targeted psychological services are needed.

Language: Английский

Long COVID quality of life and healthcare experiences in the UK: a mixed method online survey DOI Creative Commons
Rebecca Owen, Ruth Ashton,

Lindsay Skipper

et al.

Quality of Life Research, Journal Year: 2023, Volume and Issue: 33(1), P. 133 - 143

Published: Sept. 22, 2023

Abstract Purpose The complexity of long COVID and its diverse symptom profile contributes to unprecedented challenges for patients, clinicians, healthcare services. threat remains ignored by Governments, the media public health messaging, patients’ experiences must be heard through understanding lived experience. This study aimed understand experience those living with COVID. Methods An online web-based survey was designed using Patient Public Involvement Engagement (PPIE) increase COVID, distributed PPIE groups, social media, word mouth. used closed open questions relating demographics, pre- post-COVID-19 quality life, daily activities experiences. Results Within our sample 132 people findings highlight that individuals are being severely impacted their symptoms unable or limited in participating activities, reducing life. Long places strain on relationships, ability live life fully is detrimental mental health. Varying care described participants, reports medical gaslighting inadequate support received. Conclusions has a severe impact fully, strains appropriate mechanisms services needed manage symptoms.

Language: Английский

Citations

23
Barriers to healthcare access and experiences of stigma: Findings from a coproduced Long Covid case‐finding study DOI Creative Commons
Donna Clutterbuck, Mel Ramasawmy, Marija Pantelic

et al.

Health Expectations, Journal Year: 2024, Volume and Issue: 27(2)

Published: April 1, 2024

Abstract Background and Aim Long Covid is often stigmatised, particularly in people who are disadvantaged within society. This may prevent them from seeking help could lead to widening health inequalities. coproduced study with a Community Advisory Board (CAB) of aimed understand healthcare wider barriers stigma experienced by probable Covid. Methods An active case finding approach was employed find adults probable, but not yet clinically diagnosed, two localities London (Camden Merton) Derbyshire, England. Interviews explored the care faced participants were analysed thematically. forms part STIMULATE‐ICP Collaboration. Findings Twenty‐three interviews completed. Participants reported limited awareness what available pathways management. There considerable self‐doubt among participants, sometimes reinforced interactions professionals (HCPs). questioned their deservedness support for symptoms. Hesitancy engage services motivated fear needing more investigation concerns regarding judgement about ability carry out caregiving responsibilities. It also complexity clinical presentation all symptoms being attributed poor mental health. trying avoid overburdening system. These difficulties compounded experiences discrimination. The emerging themes reaffirmed framework epistemic injustice relation Covid, where creating, interpreting conveying knowledge has varied credibility based on teller's identity characteristics and/or level interpretive resources. Conclusion We have codeveloped recommendations findings. include early signposting services, dedicating protected time listening providing holistic pathways, working mitigate stigma. Regardless diagnosis, experiencing new must be encouraged seek timely medical help. Clear public messaging needed communities already raise share stories that encourage illustrate adverse effects Patient or Public Contribution CAB made up 23 members including HCPs, lived experience other stakeholders.

Language: Английский

Citations

15
Developing effective strategies to optimize physical activity and cardiorespiratory fitness in the long Covid population- The need for caution and objective assessment DOI Creative Commons
Mark A. Faghy,

Rae Duncan,

Emily Hume

et al.

Progress in Cardiovascular Diseases, Journal Year: 2024, Volume and Issue: 83, P. 62 - 70

Published: March 1, 2024

The Post Covid-19 Condition (commonly known as Long Covid) has been defined by the World Health Organisation occurring in individuals with a history of probable or confirmed SARS CoV 2 infection, usually within 3 months from onset acute infection symptoms that last for at least two which cannot be explained an alternative diagnosis. Covid is associated over hundred recognised and affects tens millions people worldwide. Widely reported reductions quality life(QoL) functional status are caused extremely sensitive cyclical symptom profiles augmented following exposure to physical, emotional, orthostatic, cognitive stimuli. This manifestation prevents engaging routine activities daily living (ADLs) important health well-being, social economic impacts. Post-exertional exacerbation (PESE) (also post-exertional malaise) severity fatigue other orthostatic tasks. Typically, this will occur 24–72 h after "over-exertion" can persist several days even weeks. It hallmark prevalence 86%. debilitating nature PESE patients physical activity impacts QoL. In review, authors present update literature relating make case evidence-based guidelines support design implementation safe rehabilitation approaches Covid. review also considers role objective monitoring quantify patient's response external stimuli used management inform decisions engagement any could prompt symptoms.

Language: Английский

Citations

7
Blood Biomarkers of Long COVID: A Systematic Review DOI
Callum Thomas, Mark A. Faghy, Corinna Chidley

et al.

Molecular Diagnosis & Therapy, Journal Year: 2024, Volume and Issue: 28(5), P. 537 - 574

Published: Aug. 5, 2024

Language: Английский

Citations

5
Managing long COVID symptoms and accessing health services in Brazil: A grounded theory analysis DOI Creative Commons
Francielle Renata Danielli Martins Marques, Carlos Laranjeira, Lí­gia Carreira

et al.

Heliyon, Journal Year: 2024, Volume and Issue: 10(7), P. e28369 - e28369

Published: March 22, 2024

BackgroundThe worldwide community has shown significant interest in researching the management of Long COVID. However, there is scarce evidence about daily experiences people living with COVID and their insights into healthcare services provided to them.AimsThis study aims understand experience sufferers symptoms accessing health services.MethodWe employed Charmaz's grounded theory methodology, informed by constructivism, applied COREQ guidelines for qualitative research. Sixty-six Brazilians participated study. The data was collected using semi-structured telephone interviews analyzed a constant comparative process.FindingsThe findings refer firstly consequences persistent symptoms. Secondly, they describe how disease trajectory required reorganize routines develop adaptive strategies. Lastly, reflect diverse array both positive negative interactions inside system conveyed individuals suffering from These elements converge towards core category study: "The limbo sufferers: between persistence access services".ConclusionsLong characterized its varied nature, including range physical emotional repercussions experienced individuals. There need enhanced comprehension discourse across several domains, general public, policy-making entities, professionals. In this sense, development specialized or reinforcement existing support long imperative.

Language: Английский

Citations

4
A framework of research priorities in COVID rehabilitation from the Rehabilitation Science Research Network for COVID: an international consultation involving qualitative and quantitative research DOI Creative Commons
Kelly K. O’Brien, Kiera McDuff, Vijay Kumar Chattu

et al.

Disability and Rehabilitation, Journal Year: 2024, Volume and Issue: unknown, P. 1 - 10

Published: July 24, 2024

Purpose To identify research priorities related to COVID rehabilitation from the perspectives of persons with lived experiences, clinicians, researchers, community organization and policy representatives.

Language: Английский

Citations

4
Profiling the persistent and episodic nature of long COVID symptoms and the impact on quality of life and functional status: a cohort observation study DOI Creative Commons
Rebecca Owen, Ruth Ashton,

Tom Bewick

et al.

Journal of Global Health, Journal Year: 2025, Volume and Issue: 15

Published: Feb. 6, 2025

Post-viral issues following acute infection with coronavirus disease 2019 (COVID-19), referred to widely as long COVID, are associated episodic, persistent, and disabling symptoms affecting quality of life functional status. Evidence demonstrates a significant impairment course, but there remains limited empirical data profile determine the fluctuating symptom COVID. We devised 16-week, multicentre prospective cohort observation study changes in patient-reported outcomes, biological, physiological, psychological, cognitive parameters diagnosis and/or referral an established COVID clinic. Following baseline assessments, participants completed four face-to-face visits interspersed telephone consultations. Face-to-face included physiological assessment, outcome measures (PROMs), status, respiratory function. Telephone consultations involved PROMs profiling. Patient-reported outcomes improved from week sixteen, demonstrated between visit fluctuations frequency severity. Further findings highlight severity profiles extent status impairment. The presented here episodic relapsing nature should be used help characterise disability. They can inform development COVID-specific guidelines support services that adequately respond reductions patient well-being.

Language: Английский

Citations

0
Health-related quality of life in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Post COVID-19 Condition: a systematic review DOI Creative Commons
Breanna Weigel, Maira Inderyas, Natalie Eaton-Fitch

et al.

Journal of Translational Medicine, Journal Year: 2025, Volume and Issue: 23(1)

Published: March 13, 2025

Abstract Purpose Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Post COVID-19 Condition (PCC) are debilitating, chronic multi-systemic illnesses that require multidisciplinary care. However, people with ME/CFS (pwME/CFS) PCC (pwPCC) often precluded from accessing necessary disability social support services. These unmet care needs exacerbate the existing illness burdens experienced by pwME/CFS pwPCC. To deliver appropriate optimise health outcomes for pwPCC, development of evidence-based healthcare policies recognise disabling impacts these must be prioritised. This systematic review summarises health-related quality life (HRQoL) pwPCC when compared healthy controls (HCs) to elucidate guide policy reform. Methods CINAHL, Embase, MEDLINE, PubMed, PsycINFO Web Science Core Collection were systematically searched 1st January 2003 23rd July 2024. Eligible publications included observational studies capturing quantitative HRQoL data among or HCs. The use validated patient-reported outcome measures (PROMs) was mandatory. also required employ most stringent diagnostic criteria currently available, including Canadian Consensus Criteria International World Health Organization case definition (PROSPERO ID: CRD42024501309). Results captured 16 studies, eight pwME/CFS, seven one study both cohorts. Most participants female middle-aged. All had prolonged symptoms at least three months. When HCs, all domains significantly impaired Both a salient impact on physical health, pain ability perform daily work activities. While direct comparisons between limited inconsistencies in PROMs employed, comparable trends across domain scores observed. Conclusion have similar, profound warrant access Future research harmonise collection prioritise longitudinal investigations characterise subgroups (including those fulfilling criteria) predictors prognosis.

Language: Английский

Citations

0
Long COVID update: respiratory sequelae and symptoms DOI

Muhammad Mamoon Iqbal,

Ayesha Iqbal, Rachael A. Evans

et al.

Current Opinion in Supportive and Palliative Care, Journal Year: 2025, Volume and Issue: unknown

Published: April 2, 2025

Long COVID affects approximately 6% of the population after SARS-CoV-2 infection commonly involving persistent respiratory symptoms such as breathlessness and cough. This review provides an update on latest evidence regarding post-COVID condition/Long sequelae, focusing symptoms, complications, therapeutic approaches to date. Post-COVID interstitial lung abnormalities are estimated persist in 11% patients hospitalized with acute COVID-19. However, is common adults (non-hospitalized) COVID, suggesting aetiologies beyond pneumonitis. The risk venous thromboembolic disease remains uncertain trial results anti-coagulation awaited. presents complex challenges, careful assessment crucial differentiate from exacerbations pre-existing conditions. Current management includes a symptom-based multidisciplinary approach, ongoing research into effective treatments including immune modulating agents.

Language: Английский

Citations

0
Assessing the Impact of Post-COVID Clinics on 6-Month Health Care Utilization for Patients With Long COVID: A Single-Center Experience DOI
Kirby Gong,

Ali S Afshar,

F. Brown

et al.

Mayo Clinic Proceedings Innovations Quality & Outcomes, Journal Year: 2025, Volume and Issue: 9(3), P. 100603 - 100603

Published: April 7, 2025

Language: Английский

Citations

0