The Reservoir of Goodwill: Conceptualising a Community Care Model for Later Life Care DOI Creative Commons
Yvette Morey, Sara Spear, Alan Tapp

et al.

Journal of Long-Term Care, Journal Year: 2024, Volume and Issue: unknown

Published: Dec. 26, 2024

Context: Concerns about an ageing population with long-term care needs putting strain on health and social systems have prompted interest in community models for later life care, as already exist palliative end-of-life care. Objectives: To identify existing support within communities, willingness to participate a model, barriers enablers such model. Methods: We adopted qualitative approach, involving in-depth interviews focus groups 39 participants aged 70–91 years old. Data were transcribed, deductive thematic analysis conducted. Findings: Most involved help-giving their local community, friends, neighbours, nearby residents. However, whilst willing receive home from volunteers the they considered it inappropriate provide personal perceived considerable enacting Limitations: This study does not aim be representative of over 70 England, instead presents exploration views experiences small sample this group. Implications: There is currently broad but shallow reservoir goodwill towards caring community. Later relies heavily core family there will continue increasing demand professional services fill gaps where exist, medical exceed what can supported by informal carers.

Language: Английский

Relationship between Depressive Symptoms, Caregiver Strain, and Social Support with Dementia Grief in Family Caregivers DOI Creative Commons
Miriam Sánchez‐Alcón, Almudena Garrido‐Fernández,

José María Cano-Rojas

et al.

Medicina, Journal Year: 2024, Volume and Issue: 60(4), P. 643 - 643

Published: April 17, 2024

Background and Objectives: Dementia grief in family caregivers of people with dementia refers to grieving prior the death care recipient. It is related psychosocial risk factors that may have a negative impact on health these caregivers. This study aimed describe relationship between depressive symptoms, caregiver strain, social support dementia. Materials Methods: A descriptive correlational cross-sectional was conducted. total 250 participated. main variable, were assessed. Additionally, socio-demographic data collected. Descriptive statistics calculated, bivariate correlation analysis multiple linear regression performed for grief. Results: Higher scores found women, patients at advanced stages dementia, low level education. High levels symptoms strain indicated greater intensity Depressive symptomatology variable greatest influence Caregiver also grief, but lesser extent. Conclusions: In caregivers, are symptoms. Moreover, being female, having education, caring recipient an stage associated increased Concerning limitations, sample restricted, belonging specific region Spain Provincial Federation associations. necessary exercise caution generalizing results due sociodemographic geographical characteristics sample.

Language: Английский

Citations

4
Randomized clinical trial of ICECaP (Individualized Coordination and Empowerment for Care Partners of Persons with Dementia): Primary mental health and burden outcomes DOI Creative Commons
Virginia T. Gallagher,

Anna Arp,

Ryan Thompson

et al.

PLoS ONE, Journal Year: 2025, Volume and Issue: 20(1), P. e0309508 - e0309508

Published: Jan. 24, 2025

We examine the efficacy of Individualized Coordination and Empowerment for Care Partners Persons with Dementia (ICECaP), an intervention that involves one-on-one individualized support from a dementia care coordinator partner, compared to active control group. At least once monthly contact is made partner by telephone, video conferencing, email, or in-person at clinical visits person dementia. In this pilot randomized unblinded trial ICECaP, n = 61 (n 90 randomized) partners completed 12-months ICECaP 69 92 received routine (controls) in outpatient memory clinic academic medical center, which participants were recruited. Early termination endpoints (death higher level care) drop out comparable across groups. Primary outcomes evaluated comparing changes mental health, burden, quality life baseline between controls. Linear mixed-effects model covariate adjustment revealed no significant group differences longitudinal on measures caregiving depression, anxiety, life, reactions behavioral symptoms Hypothesized reasons lack initial primary 12-month are discussed.

Language: Английский

Citations

0
Dementia care preference among Nursing Students in China：A Cross-Sectional Study DOI
Jiarui Liu, Xin Wang, Jing Wang

et al.

Nurse Education in Practice, Journal Year: 2025, Volume and Issue: 84, P. 104318 - 104318

Published: Feb. 27, 2025

Language: Английский

Citations

0
Randomized clinical trial of the individualized coordination and empowerment for care partners of persons with dementia (ICECaP) intervention: impact on preparedness for caregiving DOI Creative Commons
Virginia T. Gallagher, Shannon Reilly,

Anna Arp

et al.

Aging Clinical and Experimental Research, Journal Year: 2025, Volume and Issue: 37(1)

Published: March 1, 2025

Abstract Background Dementia care partners are at elevated risk of adverse mental health outcomes and often feel unprepared for their caregiving role. Individualized Coordination Empowerment Care Partners Persons with (ICECaP) is an intervention that involves one-on-one individualized support from a dementia coordinator partner. At least once monthly contact made to the partner by telephone, video conferencing, email, and/or in-person support. Aims We aimed determine whether ICECaP improves readiness improvements in associated improvements. Methods In this randomized control trial ICECaP, n = 61 completed 12-months intervention, 69 received routine clinical (controls) outpatient memory clinic (ClinicalTrials.gov: NCT04495686). compared changes preparedness, knowledge, self-efficacy baseline between controls. Results improved on self-reported preparedness significantly greater degree versus controls ( p =.001, η 2 0.066); no group differences were detected change knowledge or over time. Exploratory analyses revealed within group, longitudinal improvement was decreases burden negative reactions behavioral symptoms (corrected s < 0.05). Discussion/Conclusions caregiver which health.

Language: Английский

Citations

0
Unlocking the Value of Neuropsychological Assessments in Rehabilitation: Perspectives from Persons with Dementia and Their Caregivers DOI Creative Commons
Takako Yoshimura, Aiko Osawa, Shinichiro Maeshima

et al.

Current Therapeutic Research, Journal Year: 2025, Volume and Issue: unknown, P. 100781 - 100781

Published: March 1, 2025

Language: Английский

Citations

0
Relative-to-resident abuse in Norwegian nursing homes: a cross-sectional exploratory study DOI Creative Commons
Anja Botngård, Arne H. Eide,

Laura Mosqueda

et al.

BMC Geriatrics, Journal Year: 2024, Volume and Issue: 24(1)

Published: Nov. 5, 2024

Abstract Background In community settings, relatives often provide care to their older family members, which is sometimes perceived as a high burden, overwhelming and stressful, contributing an increased risk of elder abuse. most countries, have no legal obligation when members are admitted nursing homes; nevertheless, studies shown that continue emotional, instrumental, personal after admission, related the understaffing workload staff. Despite growing interest in abuse homes, concentrated on perpetrated by staff or co-residents, but few explored may perpetrate. Methods This study was cross-sectional survey 3,693 recruited from 100 homes Norway, examine extent relative-to-resident Norwegian observed Results The findings indicate 45.6% had one more episodes during past year. Among subtypes abuse, 44.8% psychological 8.4% physical 2.7% financial/material 0.7% sexual at least once Conclusions first large exploring phenomenon significantly less addressed than committed co-residents. our illustrate needs awareness attention improve well-being home residents. Further research recommended enhance understanding such should include other approaches measuring proportion relying solely observations insufficient for determining prevalence this case. Future also cumulative impact victimization analysis how cases reported handled.

Language: Английский

Citations

1
Elder abuse in Flanders, Belgium: perspectives from home care nurses DOI
Sam Meert, Liesbeth De Donder

Journal of Elder Abuse & Neglect, Journal Year: 2024, Volume and Issue: unknown, P. 1 - 26

Published: Nov. 14, 2024

The present study focuses on elder abuse in the home care setting. aim of this was to explore nurses' definition, general perspectives and experiences abuse, barriers they experience avoid abuse. Individual qualitative interviews were held with Flemish nurses (N = 17), employed by a Dutch nursing organization. Data analysis performed using reflexive thematic analysis. Results showed that (1) participants' understanding based intuition daily practice. (2) Participants highlighted several institutional (3) participating organizations did not have standard protocol report or handle Institutional structures, procedures decisions should be critically reviewed as how lead staff abusing older adults.

Language: Английский

Citations

1
A novel scale for assessing caregiving competence in family caregivers of persons with dementia DOI Creative Commons
Ippei Suganuma,

Noriyuki Ogawa,

Kenji Kamijou

et al.

medRxiv (Cold Spring Harbor Laboratory), Journal Year: 2024, Volume and Issue: unknown

Published: March 13, 2024

Abstract The aging of family caregivers and the challenges long-distance caregiving attributed to increase in number elderly individuals living alone have raised concerns about dementia Japan. Additionally, with shifts dynamics due declining birth rates an extended average lifespan, adapting support strategies for is necessary. Thus, it necessary measure competence early effectively. However, a comprehensive scale tailored dementia, including aspects such as burden, affirmation, coping, lacking. Therefore, this study aimed develop Caregiving Competence Scale Dementia (CCSD) primary caring dementia. This focused on cognitive impairment various degrees initial version CCSD was developed, questionnaire survey conducted validate its structural validity reliability. A total 150 participants were included analysis. exploratory factor analysis identified five factors 27 items: Factor 1: “Positive Emotions Awareness,” 2: “Presence or Absence Consultation Partners Family Support,” 3: “Caregiving Burden Coping Skills,” 4: “Dementia Literacy,” 5: “Engagement Emotional Control.” confirmatory revealed good model fit (comparative index = 0.905 root mean square error approximation 0.072). overall Cronbach’s alpha coefficient 0.892. CCSD, comprising items covering factors, has been successfully developed measurement scale. Measuring contributes developing targeted facilitating appropriate interventions.

Language: Английский

Citations

0
Mediating role of care partner burden among dementia care partners during post-hospital transition DOI Creative Commons
Ashley Kuzmik,

Irene Best,

Azza Mubarak Al Harrasi

et al.

Aging & Mental Health, Journal Year: 2024, Volume and Issue: 28(12), P. 1753 - 1759

Published: June 25, 2024

This study examined the mediating role of care partner burden on relationship between patient clinical factors (i.e. cognition, physical function, and behavioral psychological symptoms dementia [BPSD]) mental health anxiety depression) among partners at hospital discharge.

Language: Английский

Citations

0
Randomized Clinical Trial of ICECaP (Individualized Coordination and Empowerment for Care Partners of Persons with Dementia): Primary Mental Health and Burden Outcomes DOI Creative Commons
Virginia T. Gallagher,

Anna Arp,

Ryan Thompson

et al.

medRxiv (Cold Spring Harbor Laboratory), Journal Year: 2024, Volume and Issue: unknown

Published: Aug. 16, 2024

Abstract Efficacy of the Individualized Coordination and Empowerment for Care Partners Persons with Dementia (ICECaP), an intervention that involves one-on-one individualized support from a dementia care coordinator partner, compared to active control group. At least once monthly contact is made partner by telephone, video conferencing, email, or in-person at clinical visits person dementia. In this pilot randomized unblinded trial ICECaP, n=61 (n=90 randomized) partners completed 12-months ICECaP n=69 (n=92 received routine (controls) in outpatient memory clinic academic medical center, which participants were recruited ( ClinicalTrials.gov : NCT04495686 , funded Department Defense Virginia Aging Rehabilitative Services). Early termination endpoints (death higher level care) drop out comparable across groups. Primary efficacy outcomes evaluated comparing changes mental health, burden, quality life baseline between controls. Linear-mixed ANCOVA revealed no significant group differences longitudinal on measures caregiving depression, anxiety, life, reactions behavioral symptoms Hypothesized reasons lack initial primary 12-month are discussed.

Language: Английский

Citations

0