COVID-19 lockdown – who cares? The first lockdown from the perspective of relatives of people with severe mental illness

BMC Public Health, Journal Year: 2022, Volume and Issue: 22(1)

Published: June 2, 2022

Abstract Background Informal care is vital to many people with severe mental illness under normal circumstances. Little known about how extraordinary circumstances affect relatives a family member illness. This study investigated the consequences of first COVID-19 lockdown in Norway from perspective persons psychotic- and/or bipolar disorders: What were challenges and for whom? Method Relatives invited complete an online survey shortly after was initiated. Both quantitative qualitative data collected concerning experiences relatives’ own their affected members’ health situation. Two hundred seventy-nine completed survey, mostly mothers partners. Results One-third reported considerable deterioration health, substantial minority worried self-harm or suicide. Main themes analyses “Isolation its effects on health”, “Worrying pandemic consequences”, “Increased symptomatology” “Suicide”. Being relative during put heavy strain particular disturbance sleep, concentration, ability take others family. members psychotic disorder, not currently treatment, living experienced situation especially challenging. Conclusions Many found hard Efforts integrate perspectives contingency plans could potentially alleviate some extra burden by families

Language: Английский

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The TIPS family psychoeducational group work approach in first episode psychosis and related disorders: 25 years of experiences

Early Intervention in Psychiatry, Journal Year: 2024, Volume and Issue: unknown

Published: July 16, 2024

The aim of this paper is to present 25 years clinical experience with family psychoeducation (FPE) work at Stavanger University Hospital in Norway, highlighting the lessons learned overcoming implementation barriers publicly funded specialized mental health care.

Language: Английский

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Knowledge Families Hold: Co‐Production and Co‐Research With Mental Health Family Carers in Understanding Experiences During the COVID‐19 Pandemic

Health Expectations, Journal Year: 2024, Volume and Issue: 27(6)

Published: Nov. 6, 2024

ABSTRACT Background Through an in‐depth exploration of mental health family carers' experiences during the COVID‐19 pandemic in Australia, this co‐produced study identified recommendations for advocacy, practice and policy implications to uphold carer wellbeing. Government‐enforced restrictions, changed service availability difficulties accessing hospitals, led additional anxiety, depression elevated distress, especially people experiencing challenges before pandemic. The National Mental Health Consumer Carer Forum alongside two academic researchers aimed discern impact care provision, levels unmet needs, benefits providing support, across geographic locations diverse communities. Methods This article reports on survey component a co‐designed mixed‐methods exploratory experiences. A project steering group worked with researchers, members SWITCH Research Group, Monash University, develop 71‐question online 9‐domains. Results Family carers were relied upon provide support when services or closed. Carers more than one person typically daily high‐level needs. Caring increased from 26‐h average 40‐h week roles complexity. Heightened demands became stress‐inducing point ill suicidality some carers. Conclusion Government responses failed address financial, practical emotional resources needed fulfil role provision unwell extremely distressed new ongoing psychological ill‐health. Patient Public Contribution From its inception, was users based their expertise understanding ways best explore these benefit wellbeing families distress. research partners both have active experience supporting challenges. each phases, lived (family users) co‐facilitated process. At times leading process, such as recruitment strategies, at other acting guides. Guidance provided by reflecting literature review understand what had been researched internationally would be important Australia. advised possible processes data collection, experts decided methodology that advice. Both focus questions developed scrutinised perspective team. Difficult conversations handled respect, within team gently addressed areas enquiry may suggest stigma feed into societal stereotypes able consider wording still concern including domestic violence unit suicide. Dissemination strategies planned together user representatives being co‐presenters conferences. report submission Commission (Australia) written reviewed all partners. committee carers, partners, launch August 2023. co‐authorship peer‐reviewed articles has included Forum.

Language: Английский

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Sleep Patterns, Social Media Usage, and Dietary Habits during COVID-19 Lockdown in Mexico: A Cross-Sectional Study

Behavioral Sciences, Journal Year: 2024, Volume and Issue: 14(10), P. 906 - 906

Published: Oct. 8, 2024

During the COVID-19 lockdown, a high prevalence of disruption in lifestyle habits was reported, especially concerning sleep habits. The present study aimed to explore relationship between lifestyles and lockdown on subjects living Mexico. A cross-sectional survey conducted. An online questionnaire administered participants. clustering procedure performed identify groups respondents with similar characteristics. There were 155 respondents. Most them women (83%) young age. identified two distinct subjects, i.e., Cluster 1 2. 2 younger, more likely use social media, spent much time watching TV/surfing internet than 1. Furthermore, problems falling staying asleep during higher (14% vs. 4% 1) even though nobody from had before lockdown. showed that younger those affected by measures.

Language: Английский

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Psychische Belastungen bei Angehörigen von Menschen mit psychischen Erkrankungen während der COVID-19 Pandemie

Psychiatrische Praxis, Journal Year: 2023, Volume and Issue: 50(05), P. 241 - 249

Published: Feb. 15, 2023

Zusammenfassung Anliegen Die COVID-19 Pandemie stellt für die meisten Menschen eine Belastung dar – insbesondere jedoch psychisch Erkrankte und deren Angehörige. Ziel der vorliegenden Studie war es, spezifische Belastungen sowie Bewältigungsstrategien bei Angehörigen von mit psychischen Erkrankungen zu untersuchen. Methoden Für wurde ein Fragebogen zur Erfassung Corona-Pandemie-bedingter Einflüsse auf entwickelt. Insgesamt nahmen 228 Angehörige zwischen März bis Juni 2021 an Befragung teil. Ergebnisse Mehr als 87% berichteten, dass sie Erkrankung ihrer erkrankten belastet seien. Viele Befragten beschrieben subjektiv hilfreiche wie Wertschätzung gesunder Anteile. Schlussfolgerung sollten in Krisenzeiten, Versorgungsstrukturen Unterstützungsangebote sensibel ausgerichtet kontinuierlich vorgehalten werden.

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How does the COVID-19 pandemic affect the personal lives and care realities of people with a schizophrenia spectrum disorder? A qualitative interview study

International Journal of Social Psychiatry, Journal Year: 2023, Volume and Issue: 69(5), P. 1239 - 1249

Published: March 2, 2023

Background: The COVID-19 pandemic constitutes one of the greatest recent public crises. This study explored its influence on lives and care realities people with a schizophrenia spectrum disorder (SSD). Methods: Between October 2020 April 2021, semi-structured in-depth interviews were conducted 30 volunteers SSDs receiving inpatient or outpatient treatment in Vienna (Austria). Interviews audio-recorded, transcribed verbatim analysed thematically. Results: Three main themes identified. First, ‘Pandemic life is deprived, lonely surreal – though certain aspects can be perceived as positive’. Second, ‘Bio-psycho-social support systems struck at their core by left severely compromised’. Last, ‘There complex interplay between one’s prior experience psychosis pandemic’. situation affected interviewees various ways. For many, it led to drastic reduction day-to-day social activities contributed an atmosphere strangeness threat. Bio-psycho-social providers frequently suspended services offered alternatives not always helpful. Participants indicated that whilst having SSD might render them vulnerable situation, psychotic crises also provide knowledge, skills self-confidence which enable better coping. Some helpful for recovering from psychosis. Conclusion: Healthcare must acknowledge perspectives needs present future health ensure proper clinical support.

Language: Английский

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Challenges Experienced by Family Caregivers of Individuals With Severe Mental Illness During the COVID-19 Pandemic: An Integrative Review

Journal of Psychosocial Nursing and Mental Health Services, Journal Year: 2023, Volume and Issue: 61(7), P. 21 - 28

Published: Jan. 31, 2023

Family caregivers of individuals with severe mental illness (SMI) faced increasing challenges during the coronavirus disease 2019 (COVID-19) pandemic; however, empirical evidence on general they experienced is lacking. Thus, purpose current integrative review was to explore family caregivers' COVID-19 pandemic. A total nine relevant studies were included. greater care burdens, physical and health problems, limited access services due It necessary develop policies appropriate interventions help their in event future crises. [Journal Psychosocial Nursing Mental Health Services, 61(7), 21-28.].

Language: Английский

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Lessons from the coronavirus disease 2019 pandemic in schizophrenia: a review

Current Opinion in Psychiatry, Journal Year: 2023, Volume and Issue: 36(3), P. 179 - 183

Published: Feb. 10, 2023

Purpose of review Multiple countries have reported increased COVID-19 mortality in patients with schizophrenia. The purpose this was to synthetize the consequences pandemic on schizophrenia including vaccination data. Recent findings We synthetized data risk infection and mortality, impact lockdowns psychiatric care, policies, unwillingness vaccine rates vaccination. Summary Schizophrenia has been confirmed at both developing a severe/lethal form infection. Patients should, therefore, be prioritized for whenever possible should somatic care access. Psychotic symptomatology may barrier some patients, heterogenous were identified national databases. also unique opportunity develop telehealth. A mixed face-to-face distance model encouraged, possible, improve experience relatives healthcare professionals. No major change long-acting antipsychotics most countries, there no consistent evidence clozapine prescription increase or severe outcomes.

Language: Английский

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COPSYC-19: The impact of early phase lockdown on mental health among people with psychotic disorders

Schizophrenia Research, Journal Year: 2023, Volume and Issue: 261, P. 178 - 184

Published: Sept. 29, 2023

On March 12th 2020 extensive measures were implemented to prevent spread of the coronavirus disease-19 (COVID-19). These commonly referred as "lockdown". In this study we investigate psychological impact associated with living under these circumstances among patients psychotic disorders receiving care from specialized mental health services in Norway.During early phases lockdown, and clinicians providing for at Oslo University Hospital asked fill out questionnaires developed study. 129 participants outpatient clinics (91 38 clinicians) 89 inpatient wards (15 74 recruited. Data regarding related symptoms analysed using Wilcoxon signed rank tests standard multiple regression.Outpatients reported significantly less worrying, loneliness hallucinatory experiences during phase lockdown compared two weeks prior. Reductions predictive experienced improvement subjective health. However, majority believed their experiencing more worrying loneliness.The result suggests that many psychosis loneliness, excessive hallucinations first lockdown. This contrasts clinicians' perceptions, show signs resilience times uncertainty. The limitation timeframe should be noted.

Language: Английский

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Implementation of guidelines on Family Involvement for persons with Psychotic disorders: a pragmatic cluster randomized trial. Effect on relatives’ outcomes and family interventions received

Frontiers in Psychiatry, Journal Year: 2024, Volume and Issue: 15

Published: May 24, 2024

Background Family interventions (FI) are recommended as part of the treatment for psychotic disorders, but implementation in mental health services is generally poor. Recently, The Implementation guidelines on Involvement persons with Psychotic disorders (IFIP) trial, demonstrated significant improvements outcomes at cluster-level. This sub-study aims to examine effectiveness IFIP intervention relatives’ and received FI. Methods A cluster randomized controlled was conducted 15 Norwegian Community Mental Health Center (CMHC) units that were either intervention, including clinical interventions, or usual (TAU). consisted FI: basic family involvement support (BFIS) all patients psychoeducation (FPE) many possible. Patients their closest relative invited fill questionnaires inclusion 6 months 12 follow-up. Received FI reported by both relatives clinicians. primary outcome satisfaction service support, measured Carer well-being questionnaire B (CWS-B). secondary caregiver experiences, expressed emotions quality life. Patients’ will be elsewhere. Results In total 231 patient/relative pairs from CMHC included (135 intervention; 96 control).The arm an increased level BFIS (p=.007) FPE (p < 0.05) compared control arm, crisis planning. showed a non-significant improvement (Cohen’s d = 0.22, p 0.08). Relatives experienced reduced patient dependency -0.23, 0.03). Conclusion clinicians throughout perceived dependency, may have relieved experience responsibility burden. COVID-19 pandemic complex pioneering study design weakened underscoring possible potentials further outcomes. Clinical Trial Registration ClinicalTrials.gov, identifier NCT03869177.

Language: Английский

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