Towards a better understanding of NHS secondary and social care backlogs: qualitative perspectives on waiting lists, deferrals and delays by disabled people from minoritised ethnic groups DOI Creative Commons
Carol Rivas

BMJ Open, Journal Year: 2025, Volume and Issue: 15(4), P. e091182 - e091182

Published: April 1, 2025

Objectives To explore how backlogs in health and social care were perceived by impacted disabled people from minoritised ethnic groups, with a view to improving their experiences social, well-being outcomes. Design Interview workshop-based qualitative study as part of larger mixed-methods study; main analysis is based specifically on the interviews. Setting Primary secondary UK. Participants 271 participants aged 18+ chronic condition or impairment associated disability, white British several resident UK for at least 3 months pandemic, using quota sampling ensure recruitment different disability-ethnicity combinations. Four ‘key informants’ relevant others virtue work (a medical general practitioner (GP), community leader, charity representative, member parliament). Main outcome measures Experiences backlogs. Results Three distinct categories backlog left suffering years, worsening attitudes National Health Service. These waiting lists new patient (including bottlenecks GP referrals), deferrals (in help-seeking diagnostic appointments) delays existing plans. Within each category, nuances experiences, such feelings being limbo when waits undefined, suggested subcategorisations that are helpful determining future policy. Disability had more effect than ethnicity, though an intersection referral models other countries was reported. Conclusions Different types require government considerations. Work needed restore confidence encourage help-seeking, well access practice, those use healthcare who ceased doing so during pandemic. Referral processes may need substantial reform remove bottlenecks. There should be transparency about wait times way certain conditions prioritised patients long cancelled appointments. Neglected specialties gynaecology currently overloaded mental receive particular support, alternative services considered.

Language: Английский

Intersecting factors of disadvantage and discrimination and their effect on daily life during the coronavirus pandemic: the CICADA-ME mixed-methods study DOI Creative Commons
Carol Rivas, Amanda Moore, Alison Thomson

et al.

Health and Social Care Delivery Research, Journal Year: 2025, Volume and Issue: unknown, P. 1 - 185

Published: Feb. 1, 2025

Background The COVID-19 pandemic exacerbated pre-existing societal inequities. Our study addresses the dearth of studies on how intersecting factors disadvantage and discrimination affected daily life for disabled people from minoritised ethnic groups, aiming to improve their experiences social, health well-being outcomes. Objectives Through an intersectionality lens, to: explore compare, by location time, survey qualitative data changing needs outcomes relate coping strategies/solutions these formal informal network issues/affordances gain insights synthesising our contextualise transferability findings co-create outputs with stakeholders. Design Mixed-methods, asset-based, underpinned embodiment disability models intersectionality, integrating three strands: (secondary): analysis existing cohort/panel data, literature review (primary: quantitative): new ( n = 4326), times over 18 months qualitative): semistructured interviews 271), interviewee workshops 104) 5 10 later, mixed stakeholder co-design 30) rapid-impact solutions issues, key informant 4). Setting United Kingdom Republic Ireland. Participants Strand 2: community-dwelling migrants, White British comparators, with/without disability. 3: focus Arab, South Asian, African, Central/East European, or heritage Results We found strong adherence restrictions (where accommodation, economic situations allowed) due vulnerabilities. High vaccine hesitancy (despite eventual uptake) resulted side-effect concerns (mis)trust in government. Many relied food banks, local organisations, communities networks. Pandemic-related income loss was common, particularly affecting undocumented migrants. reported a crisis mental care, non-holistic social housing inaccessible, poor-quality discriminatory remote health/social care. They preferred private care (which they could not easily afford), community self-help online support. Lower socioeconomic status, mobility issues reduced well-being. Individual assets strategies mitigated some adapted different phases, focused empowerment, self-reflection, self-care connectivity. Technology cut across these. Limitations area-level distancing infection rates. Data collection largely online, possibly excluding older, digitally deprived more participants. engaged differently face-to-face workshops. over-represent England Asian use contestable categories. Conclusions Different led experiences, low status significant. Overall, identities worse experiences. work shows build strengths; simple changes professional communication understanding should experience. Minoritised groups can be involved policy practice decision-making, reducing marginalisation, better сare Future More research is needed on: (1) impact post-pandemic situation migration policies migrant health/well-being; (2) supporting empowerment disadvantaged identities; (3) technological deprivation cultural disability-relevant acceptability consultations. differences devolved nations, which need elucidation. Study registration This registered as ISRCTN40370, PROSPERO CRD42021262590 CRD42022355254. Funding award funded National Institute Health Care Research (NIHR) Social Delivery programme (NIHR ref: NIHR132914) published full Research; Vol. 13, No. 2. See NIHR Awards website further information.

Language: Английский

Citations

0
Towards a better understanding of NHS secondary and social care backlogs: qualitative perspectives on waiting lists, deferrals and delays by disabled people from minoritised ethnic groups DOI Creative Commons
Carol Rivas

BMJ Open, Journal Year: 2025, Volume and Issue: 15(4), P. e091182 - e091182

Published: April 1, 2025

Objectives To explore how backlogs in health and social care were perceived by impacted disabled people from minoritised ethnic groups, with a view to improving their experiences social, well-being outcomes. Design Interview workshop-based qualitative study as part of larger mixed-methods study; main analysis is based specifically on the interviews. Setting Primary secondary UK. Participants 271 participants aged 18+ chronic condition or impairment associated disability, white British several resident UK for at least 3 months pandemic, using quota sampling ensure recruitment different disability-ethnicity combinations. Four ‘key informants’ relevant others virtue work (a medical general practitioner (GP), community leader, charity representative, member parliament). Main outcome measures Experiences backlogs. Results Three distinct categories backlog left suffering years, worsening attitudes National Health Service. These waiting lists new patient (including bottlenecks GP referrals), deferrals (in help-seeking diagnostic appointments) delays existing plans. Within each category, nuances experiences, such feelings being limbo when waits undefined, suggested subcategorisations that are helpful determining future policy. Disability had more effect than ethnicity, though an intersection referral models other countries was reported. Conclusions Different types require government considerations. Work needed restore confidence encourage help-seeking, well access practice, those use healthcare who ceased doing so during pandemic. Referral processes may need substantial reform remove bottlenecks. There should be transparency about wait times way certain conditions prioritised patients long cancelled appointments. Neglected specialties gynaecology currently overloaded mental receive particular support, alternative services considered.

Language: Английский

Citations

0