Authentic collaboration in research: partnering with people with lived experience

Pediatric Research, Journal Year: 2025, Volume and Issue: unknown

Published: Feb. 6, 2025

Language: Английский

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Cerebral Palsy: A Current Perspective

NeoReviews, Journal Year: 2024, Volume and Issue: 25(6), P. e350 - e360

Published: June 1, 2024

Cerebral palsy (CP) is the most common cause of motor disability in children. Insults to brain at different times lead diverse injuries. As a result, CP an extremely heterogeneous clinical diagnosis, presenting differently each individual and various ages. With improving survival rates preterm newborns, increasing active resuscitation widespread availability extensive genetic testing soon after birth, it imperative focus on earlier diagnosis long-term outcomes CP. primarily classified into 4 categories based type impairment, functional ability, distribution, etiology. understanding has evolved significantly last 2 decades, methods early detection have consequently advanced. Appropriate essential for proper education counseling affected families, introduction therapeutic interventions as possible. In this review, we development provide overview etiology, classification, options, prognosis

Language: Английский

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Short‐term effects of SAFE early intervention approach in infants born preterm: A randomized controlled single‐blinded study

Brain and Behavior, Journal Year: 2023, Volume and Issue: 13(10)

Published: Aug. 3, 2023

Recent literature suggests that goal-oriented and family-based interventions in enriched environment have a beneficial effect on neuromotor cognitive development. We aimed to examine the short-term effects of SAFE (Sensory strategies, Activity-based motor training, Family collaboration, Environmental Enrichment) early intervention approach motor, cognitive, speech language, sensory development preterm infants.The study's sample population consisted 24 infants with corrected ages between 9 10 months. Infants control group participated family training program accordance neurodevelopmental therapy principles (NDT). treatment were included according Early Intervention Approach. Affordances Home Environment for Motor Development-Infant Scale (AHEMD-IS), Test Sensory Functions (TSFI), Canadian Occupational Performance Measure (COPM), Bayley Scales Infant Toddler Development III (Bayley III) used evaluate both groups before after weeks (AHEMD-IS). The Depression, Anxiety, Stress Short Form was assess parents' mental health (DASS-SF).The interaction (time × group) revealed significant differences Bayley-III language scores, TSFI total score, AHEMD-IS score favor (p < .05). However, there no composite COPM Satisfaction > .05).SAFE improved outcomes provide home all domains when compared NDT-based program. is promising novel infants.

Language: Английский

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The Bobath Clinical Reasoning Framework: A systems science approach to the complexity of neurodevelopmental conditions, including cerebral palsy

Developmental Medicine & Child Neurology, Journal Year: 2023, Volume and Issue: 66(5), P. 564 - 572

Published: Aug. 31, 2023

The current recommended developmental Bobath practice within the Clinical Reasoning Framework (BCRF) can be conceptualized using lens of systems science, thereby providing a holistic perspective on interrelatedness and interconnectedness variables associated with childhood-onset disability. BCRF is defined as an in-depth clinical reasoning framework that applied to help understand relationships between domains International Classification Functioning, Disability Health, how those influenced, they impact each other. transdisciplinary observational system practical approach results in intervention plan. This provides understanding complexity situations disorders such cerebral palsy (CP) basis for lifelong management habilitation people living neurological disorders. used by draws important contextual factors individual their social environment, primarily family unit. It rooted interrelationships typical atypical development, pathophysiology (sensorimotor, cognitive, behavioural), neuroscience, these body structure function constructs activity participation. science model integral useful way forward responding CP, overarching goal being optimize lived experience any context.

Language: Английский

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Baby HABIT-ILE intervention: study protocol of a randomised controlled trial in infants aged 6–18 months with unilateral cerebral palsy

BMJ Open, Journal Year: 2024, Volume and Issue: 14(2), P. e078383 - e078383

Published: Feb. 1, 2024

Introduction Research using animal models suggests that intensive motor skill training in infants under 2 years old with cerebral palsy (CP) may significantly reduce, or even prevent, maladaptive neuroplastic changes following brain injury. However, the effects of such interventions to tentatively prevent secondary neurological damages have never been assessed CP. This study aims determine effect baby Hand and Arm Bimanual Intensive Therapy Including Lower Extremities (baby HABIT-ILE) unilateral CP, compared a control intervention. Methods analysis randomised controlled trial will include 48 CP aged (corrected if preterm) 6–18 months at first assessment. They be paired by age aetiology into two groups (immediate delayed). Assessments performed baseline 1 month, 3 6 after baseline. The immediate group receive 50 hours HABIT-ILE intervention over weeks, between second assessment, while delayed continue their usual activities. last 3-month Primary outcome Mini-Assisting Assessment. Secondary outcomes behavioural assessments for gross fine motricity, visual–cognitive–language abilities as well MRI kinematics measures. Moreover, parents score child-relevant goals fill out questionnaires participation, daily activities mobility. Ethics dissemination Full ethical approval has obtained Comité d’éthique Hospitalo-Facultaire/Université catholique de Louvain , Brussels (2013/01MAR/069 B403201316810g). recommendations board Belgian law 7 May 2004 concerning human experiments followed. Parents sign written informed consent ahead participation. Findings published peer-reviewed journals conference presentations. Trial registration number NCT04698395 . Registered on International Clinical Trials Registry Platform (ICTRP) December 2020 NIH January 2021. URL registry record: https://clinicaltrials.gov/ct2/show/NCT04698395?term=bleyenheuft&draw=1&rank=7

Language: Английский

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Mobility Intensive Training (Mob-IT) Protocol for Children with Cerebral Palsy: Feasibility and Fidelity Results

Disabilities, Journal Year: 2025, Volume and Issue: 5(1), P. 6 - 6

Published: Jan. 16, 2025

The Mobility Intensive Training (Mob-IT) protocol is an innovative intervention focused on motor learning to improve the mobility of children with cerebral palsy (CP). objective was describe feasibility and fidelity Mob-IT. A single-subject experimental study conducted four CP, a median age 11 (7–13) years, Gross Motor Function Classification System I–III. Mob-IT included 24 h practice goals, delivered three times week in 2 sessions over weeks. Feasibility assessed using Qualitative Feedback Questionnaire (QFQ), evaluating adherence, acceptability, adverse effects, clarity procedures, time. Canadian Occupational Performance Measure (COPM) used assess participant caregiver satisfaction. Fidelity measured by type feedback provided (intrinsic vs. extrinsic), task challenge level, volume. Participants reported good acceptance, few satisfaction outcomes. adhered proposed principles, focus extrinsic tasks showing progression Time well spent, being 78% activities mostly extrinsic-focused feedback. considered feasible faithful its principles. As this study, results indicate need expand larger, randomized study.

Language: Английский

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Early Intervention for Children with Cerebral Palsy

Published: Jan. 1, 2025

Language: Английский

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In-hospital motor interventions to reduce neurodevelopmental impairment in preterm infants: a scoping review

Cochrane library, Journal Year: 2025, Volume and Issue: 2025(4)

Published: April 3, 2025

Language: Английский

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Comparison of the Effectiveness of Different Trunk-Focused Exercise Approaches for Children With Unilateral Cerebral Palsy: A Randomized Controlled Trial

Pediatric Exercise Science, Journal Year: 2025, Volume and Issue: unknown, P. 1 - 9

Published: Jan. 1, 2025

This study compared the effects of Neuro-Developmental Treatment-based trunk training, video game-based training (VG-TT), and VG-TT with an orthotic garment in children unilateral cerebral palsy. Forty-two palsy received usual physiotherapy (2 d/wk) for 8 weeks (control period). They were then randomized to VG-TT, or alongside (intervention Primary outcomes Trunk Control Measurement Scale Becure Balance Assessment System. Secondary included Pediatric Berg Gillette Functional Questionnaire. No significant improvements control observed during period (P > .05), all groups showed gains intervention < .05). sitting balance improved throughout both periods However, no differences found between control, balance, walking function Trunk-specific enhances functional As approach proved superior, interventions can be tailored based on individual needs clinical context.

Language: Английский

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Feasibility of HABIT-ILE@home in children with cerebral palsy and adults with chronic stroke: A pilot study

PLOS Digital Health, Journal Year: 2025, Volume and Issue: 4(5), P. e0000850 - e0000850

Published: May 8, 2025

Introduction Children with cerebral palsy (CP) and adults chronic stroke (CS) usually have disabilities in voluntary motor control. Hand-Arm Bimanual Intensive Therapy Including Lower Extremities (HABIT-ILE), an evidence-based therapy, has always been provided during day camps. This pilot study investigates if HABIT-ILE@home, a remote neurorehabilitation, is feasible for children CP CS. Methods Four (5-18y) three CS were recruited. They received 15h (5x3h) of HABIT-ILE@home by caregiver supervision 30min at the beginning end each session. A large touch screen, REAtouch Lite, was used as support therapy. An interview based on questionnaire (n = 73 items CP/ n 74 patients; scored from 0 “disagree” to 3 “agree”, higher rating meaning more positive aspect therapy) conducted patients their caregivers after supervised home-therapy assess adherence treatment feasibility HABIT-ILE@home. Performance satisfaction achieving functional goals assessed before intervention using Canadian Occupational Measure (COPM). Results Caregivers felt sufficiently supported team (medians 3) carry out sessions thanks adequate clinical (CP median 2.6; 2.9). HABIT-ILE principles transferable patients’ home 2.8). The impact therapy daily organization problematic children’s (median 1.5) than adults’ 3). enjoyed 2) but that it too long 1) significant fatigue present 1.3). did not find fun considered extremely useful Although motivational source differed between adults, this seem strongly affect treatment. improved over MCID (2 points) all participants 4 children. Conclusion seems be It may allow benefit efficient whatever sanitary conditions or geographical locations.

Language: Английский

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