Exploring Pain in Social Media: A Study on Perceptions and Discussions of Chronic Pain Conditions (Preprint)

Published: Oct. 13, 2024

Chronic pain, an unpleasant sensory and emotional experience lasting over six months, affects a large proportion of the global population significantly impacts health quality life. Certain diseases cause chronic resulting in social medical misunderstanding that intensity patient’s suffering. In recent years, media platform Twitter, now called “X,” has become valuable resource for research discussion on providing accessible environment communication information exchange. To analyze content Twitter related to fibromyalgia, headache, paraplegia, neuropathy, multiple sclerosis, as well characterize profile users involved these conversations, identify prevalent topics, measure public perception, evaluate treatment efficacy, detect discussions most frequent non-medical issues. 72,874 tweets English Spanish containing pre-specified keywords were collected between 2018 2022. A manual review was conducted 2,500 tweets, larger subset classified by machine learning methods. Subsequently, pain conditions analyzed examine their content, types X users, origin disease, efficacy treatments. Of total collected, 55,451 (76,1%) classifiable. The active healthcare professionals institutions. primary perceived etiology pharmacological, higher noted sclerosis. Regarding there more definition understanding disease. Social platforms, such X, are playing crucial role dissemination pain. Discussions largely focus available treatments need enhance education, utilizing platforms correct misconceptions provide better support patients.

Language: Английский

The Effects of Coffee/Caffeine in Patients with Multiple Sclerosis; A Systematic Review

Journal of Evidence-Based Integrative Medicine, Journal Year: 2024, Volume and Issue: 29

Published: Jan. 1, 2024

Background Multiple sclerosis (MS) is a demyelinating disease of the central nervous system. Caffeine, as most widely consumed psychoactive substance, has been suggested to have potential effects on clinical course and disability levels MS patients. This study aimed review current evidence coffee/caffeine in patients with MS. Methods followed Joanna Briggs Institute (JBI) Manual for Evidence Synthesis PRISMA 2020 statement. Clinical regarding caffeine/coffee was considered. A systematic search performed PubMed, Scopus, Web Science, Embase October 2023, updated via handsearching March 2024. JBI's critical appraisal tools were utilized scrutinize risk bias. Results Out 297 screened records, eight studies eventually found meet our inclusion criteria. The sample size varied between 12 1372 designs retrospective cohort, RCT, single-blind crossover trial, single-arm pilot (each one study), cross-sectional (four studies). No significant association level intake reported, although it reported be associated cognitive improvements. Discussion indicates an consumption, improved outcomes MS, while there no considerable relationship disability. Considering limitations evidence, such small number studies, great diversity designs, findings this should translate practice caution.

Language: Английский

Validation of the Georgian Version of the Multiple Sclerosis Quality of Life-54 (MSQOL-54) Questionnaire for Assessing the Quality of Life in Patients With Multiple Sclerosis

Cureus, Journal Year: 2024, Volume and Issue: unknown

Published: Nov. 17, 2024

Multiple sclerosis (MS) significantly impacts health-related quality of life (HRQOL). The Sclerosis Quality Life-54 (MSQOL-54) is a widely used tool for assessing HRQOL in individuals with MS. Adapting this to the local language and culture essential ensuring cultural relevance, enabling comprehensive care, allowing international comparability. This study aims validate Georgian version MSQOL-54 (MSQOL-54 GEO) assess MS patients Georgia.

Language: Английский