Family caregiver perspectives on digital methods to measure of stress: a qualitative descriptive study (Preprint) DOI Creative Commons
Louise Rose, Sian Saha, Emily Flowers

et al.

Journal of Medical Internet Research, Journal Year: 2024, Volume and Issue: unknown

Published: Sept. 2, 2024

Family caregivers provide essential care in the home to millions of individuals around globe annually. However, family caregiving results considerable burden, financial hardship, stress, and psychological morbidity. Identifying managing stress is important as they have a dual role their own health well that person for. If becomes overwhelming, caregiver may no longer be able perform this role. Digital methods monitoring 1 strategy for identifying effective interventions relieve burden stress. This study aims explore perceived acceptability, challenges, opportunities using digital biosensing technologies measure We conducted descriptive qualitative semistructured interviews with an interview guide structured obtain data addressing our aims. used reflexive thematic analysis methods. recruited adult (aged 18 years older) currently or previously caring significant issues. Interview questions focused on more generally ecological momentary assessment, remote such smartwatches, fluid biosensors. 27 whom 19 (70%) were role, remainder identified 3 themes 10 subthemes elements The comprised "providing meaningful data" "monitoring without action pointless," enables self-management," "seeing bigger picture"; "low-burden monitoring" "low effort," "practical alongside daily routines," "retaining control over monitoring"; "inadvertent harms "stigma stress," "need discretion," "contributing "trust." In examining perspectives diverse sample monitoring, we opportunities. These useful considerations use implementation ameliorate caregivers' relevance social community teams, researchers, policy makers. include providing situationally specific resulting action, does not contribute inadvertent harm either recipient.

Language: Английский

Support groups for family members of older adults in residential aged care: A pilot feasibility study DOI Open Access
Sofie Dunkerley, Sunil Bhar, Jahar Bhowmik

et al.

Australasian Journal on Ageing, Journal Year: 2025, Volume and Issue: unknown

Published: Jan. 12, 2025

Abstract Objectives There are limited mental health support services in Australia that address the well‐being of family members aged care residents. The aim this project was to evaluate feasibility, acceptability and preliminary effectiveness an online program designed residents' families. Methods This one‐arm mixed methods examined uptake, attendance retention patterns, satisfaction experience with service, pre‐ postoutcomes respect depressive anxiety symptoms loneliness. sample comprised 38 participants. Results rates were high: 86%, 87% 95%, respectively. Participants satisfied content format program. benefits participation included following: connecting peers, developing emotional strategies, learning about dementia issues. Suggestions for improving offering additional sessions option meeting face‐to‐face. Symptoms depression improved significantly from postintervention time points, but loneliness did not statistically reduce over time. Conclusions study found group feasible acceptable, showed indications families

Language: Английский

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Informal Caregivers Connecting on the Web: Content Analysis of Posts on Discussion Forums DOI Creative Commons

Michelle Foster,

Chinenye Egwuonwu, Erin Vernon

et al.

JMIR Formative Research, Journal Year: 2025, Volume and Issue: 9, P. e64757 - e64757

Published: Jan. 17, 2025

About 53 million adults in the United States offer informal care to family and friends with disease or disability. Such has an estimated economic value of US $600 million. Most caregivers are not paid nor trained caregiving, many experiencing higher-than-average levels stress depression lower physical health. Some participate web-based forums related their caregiving role. This study aimed explore how use easy-to-access forums, including types information they share seek from others. It also gain insights into caregiver experience content these posted. The population consisted participants who posted on 5 for between February April 2024. Researchers extracted first 6 responses 20 questions comments appear by each removing any individually identifying information. We used a codebook thematic analysis approach examine data Dedoose (SocioCultural Research Consultants). independently read all posts coded data. author group discussed codes, reiteratively refined them, identified themes within 100 initial 600 responses. Over half included specific questions, remaining sharing experiences reflections. Posts ranged length sentence more than 500 words. Domains handling interpersonal challenges, navigating complicated systems, gathering tactical coping strategies, managing emotions, connecting others similar situations. Negative interactions were mentioned 123 times, 77 describing challenging situations extended family. Posters inquired about accessing resources, health insurance 51 while legal financial concerns addressed 124 times. Caregiving challenges hundreds discussion hygiene (n=18), nutrition (n=21), desire break (n=47). expressed emotion 180 which 32 mentions guilt 26 positive emotion. importance support was 301 Informal play essential role society. Many multifaceted role, some turn internet community. Accessing is low-barrier method connect may be emotions challenges. Gaining greater understanding ways advice one another provides insight face. domains helpful, as clinicians provide recipients along journeys.

Language: Английский

Citations

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Experiences of ‘Indirect’ Illness in Family Caregivers of Chronically Ill and Older Adults: A Qualitative Study DOI Open Access
Antonio Bonacaro, Chiara Cosentino,

Concetta Collaro

et al.

International Journal of Environmental Research and Public Health, Journal Year: 2025, Volume and Issue: 22(2), P. 240 - 240

Published: Feb. 8, 2025

The care of chronically ill and older adults affects families in terms physical, emotional, relational, social impact; the functioning family; an alteration family dynamics. This study aimed to evaluate experiences caregivers patients depth. A qualitative was conducted, consisting twenty-four narrative interviews with adults, twenty-three women one man. were all close relatives patients. main results as follows: (i) caregiving is predominantly performed by females; (ii) caregiver ‘indirect’ illness; (iii) undergoes changes roles, responsibilities, relationships; (iv) support needs emerge, especially those a social, family, work, economic nature; (v) resources are also activated, linked presence or absence self-care. Illnesses directly impact primary caregiver, but they have repercussions on entire unit, which may activate coping strategies lead breakdown. It crucial accurately monitor new dynamics order find suitable solutions patients, underscoring importance work this area.

Language: Английский

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Unlocking the Power of Peer Support in Digital Use and Digital Health Interventions for Older Adults: A Scoping Review DOI
Ruotong Peng, Jing Chang, Y. C. Zhu

et al.

Journal of Advanced Nursing, Journal Year: 2025, Volume and Issue: unknown

Published: April 7, 2025

ABSTRACT Aim To summarise peer support in digital use and health interventions for older adults. Data Sources The following databases were searched (from 2010 to 2024): PubMed, Embase, Web of Science, the Cochrane Library EBSCOhost. Review Methods This review is based on Preferred Reporting Items Systematic Reviews Meta‐Analyses extension Scoping Reviews. All articles selected extracted double‐checked. data analysed using inductive descriptive approach presented table narrative form. Results included 21 studies involving adults aged 60 or older, primarily from developed countries, focused post‐21st century. Peer through face‐to‐face online, peer‐led coached intervention, motivation companionship interventions, group‐based mutual social media online platforms websites apps. cognitive theory was common theoretical framework. Most indicate high feasibility, acceptability effectiveness six domains. It facilitated information behaviour exchange, improved mental health, enhanced support, increased cost‐effectiveness adherence. However, some have shown ineffectiveness, influenced by design issues, negative norms, technological network size study limitations. Besides, qualitative results indicated positive experiences personal worth connection, while involved barriers, emotional burdens, privacy issues lack recognition. Conclusions represents a valuable complement existing adults, with important implications practices healthcare outcomes. Impact Further research should optimise maintain bi‐directional relationships, explore mechanisms influence, analyse cost‐effectiveness, utilise machine‐learning algorithms, apply more domains call providers develop relevant policies strategies. Patient Public Contribution No patient public contribution.

Language: Английский

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The Use of Social Media in Dementia Care: A Scoping Review DOI Open Access

Mohammed Saeed Azzahrani,

Martina Spanevello,

Ermias Girma Tsega

et al.

Advances in Alzheimer s Disease, Journal Year: 2025, Volume and Issue: 14(01), P. 1 - 22

Published: Jan. 1, 2025

Language: Английский

Citations

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Examining Differences in Health-Related Technology Use between Millennial and Older Generations of Caregivers DOI Creative Commons
Virginia T. Gallagher, Shannon Reilly,

David Martin

et al.

Nursing Reports, Journal Year: 2024, Volume and Issue: 14(4), P. 2605 - 2617

Published: Sept. 24, 2024

Background/Objective: Caregivers from the Millennial generation are an emerging and understudied group of unpaid care providers in America who may benefit digitally delivered support. To inform design/tailoring interventions for this group, we aimed to understand how Millennials differ other generations caregivers regarding digital health-related technology use. Methods: Using Health Information National Trends Survey (HINTS), Version 6, conducted a cross-sectional study comparing health access use across four (n = 545; Millennials, Gen X, Baby Boomers, Silent Generation) adults with chronic conditions using chi-square Kruskal–Wallis non-parametric tests. Results: Compared Boomer Generation caregivers, more frequently reported having cellular internet connection, wearable activity device, health/wellness mobile application, choosing telehealth appointments convenience, most used social media general view videos (ps < 0.005). Additionally, were likely report possessing smartphone (compared X peer interaction about all older generations; ps Conclusion: use, which have implications intervention design tailoring.

Language: Английский

Citations

2
Online support groups for family caregivers: A qualitative exploration of social support and engagement DOI Creative Commons
Rosemary Daynes‐Kearney, Stephen Gallagher

British Journal of Health Psychology, Journal Year: 2024, Volume and Issue: 30(1)

Published: Nov. 7, 2024

This qualitative research explored family caregivers' engagement and social support in a single online group (OSG). It sought to answer two questions: Q1: Was evident the OSG? If so what types how did these relate engagement? Q2: Were elements from Context, Content Delivery conceptual framework so, were key of this group?

Language: Английский

Citations

2
Interactions between caregiving and sex and the antibody response to COVID-19 vaccination DOI
Stephen Gallagher,

Ruth Ryan,

Irene Cassidy

et al.

Psychosomatic Medicine, Journal Year: 2024, Volume and Issue: 86(7), P. 633 - 639

Published: May 16, 2024

ABSTRACT Objective Antibody response to vaccination is a powerful paradigm for studying the effects of chronic stress on immune function. In present study, we used this examine interaction between caregiving (as type stress) and sex antibody single dose COVID-19 vaccination; recent research has called examination differences health outcomes among family caregivers. A three-way caregiving, sex, psychological distress was also examined. Methods data were extracted from 165 caregivers (98 females) 386 non-caregivers (244 UK’s Understanding Society study. Relevant sociodemographics, lifestyle, variables gathered as potential covariates. Results 2 × ANOVA, found that significant; male had lower vaccine compared female ( F (1,547), =24.82, p < .001, η = 0.043). Following adjustment, lowest relative all other groups. The model, controlling covariates, significant R 0.013, .049); conditional revealed caregivers, groups, at both low medium levels distress. Conclusion This study evidence response. Male poorer shot than non-caregivers, evident Our findings will be discussed in relation caregiver interactions during pandemic.

Language: Английский

Citations

1
Peer Support for Chronic Pain in Online Health Communities: Quantitative Study on the Dynamics of Social Interactions in a Chronic Pain Forum DOI Creative Commons
Aaron Necaise, Mary Jean Amon

Journal of Medical Internet Research, Journal Year: 2024, Volume and Issue: 26, P. e45858 - e45858

Published: June 24, 2024

Peer support for chronic pain is increasingly taking place on social media via networking communities. Several theories the development and maintenance of highlight how rumination, catastrophizing, negative interactions can contribute to poor health outcomes. However, little known regarding role web-based discussions play in versus positive attitudes relevant pain.

Language: Английский

Citations

0
Enhancing the Knowledge and Skills of Informal Caregivers through a Training Program: A Pre-Experimental Study DOI Creative Commons
S Sugiharto,

Dyah Putri Aryati,

Wiwiek Natalya

et al.

Deleted Journal, Journal Year: 2024, Volume and Issue: 2(1), P. 9 - 11

Published: Jan. 4, 2024

The growing proportion of the elderly population, both globally and in Indonesia, necessitates modifications health development plans, including establishment specific initiatives for health. Despite vulnerabilities resulting from challenges aging, are entitled to a dignified affluent existence. They continue possess optimism maintaining their productivity despite advanced age. In Indonesian culture, there is prevailing phenomena where regardless circumstances, family have strong desire reside together within community. Hence, Ministry Health has initiated an Informal Elderly Caregiver Program. study aims analyze increase knowledge abilities among informal caregivers subsequent participation training program. utilized pre-experimental design, specifically employing one-group pre- post-test approach. A total thirty participated this study. mean age participants was 42 years (SD = 2.55). majority (97%) were female. results show that skills improved. actively engaged discussion posed inquiries regarding cases they frequently encounter. caregivers' confidence increased providing care being for. Furthermore, it highly advised regular program easily accessible educational materials

Language: Английский

Citations

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