Optimising the management of patients with multiple myeloma in Spain: A measurement of the social return on investment DOI Open Access
María Merino, Yoana Ivanova,

Paulina Maravilla‐Herrera

et al.

European Journal of Cancer Care, Journal Year: 2022, Volume and Issue: 31(6)

Published: Sept. 30, 2022

Objective The aim of this study was to reach a consensus on set proposals optimise the disease management Multiple myeloma (MM) within Spanish National Health System (SNHS) and apply Social Return Investment (SROI) method estimate their social impact. Methods A Multidisciplinary Working Team (MWT) including MM main stakeholders organised. survey administered gather information from patients regarding impact different life domains. forecast-type SROI analysis, with 1-year timeframe, applied. Results Fifteen were selected, management, actions for early diagnosis, psychological support, improvement quick access palliative care, among others. implementation these would benefit patients, informal caregivers SNHS. investment required amount 10.32 million euros return 43.31 euros: 4.2 each euro invested. According sensitivity ratio could range 3.38 5.20 worst best-case scenario. Conclusions current be optimised by implementing that most likely result in an overall positive return.

Language: Английский

Knowledge, Attitude, and Practice Toward Liver Fibrosis/Cirrhosis and Traditional Chinese Medicine Treatment Among Medical Staff DOI Open Access
Aize Xie,

Sarisak Soontornchai,

Somchai Bovornkitti

et al.

Journal of Evaluation in Clinical Practice, Journal Year: 2025, Volume and Issue: 31(1)

Published: Jan. 20, 2025

ABSTRACT Rationale Liver fibrosis is a critical stage in the progression from liver injury to cirrhosis or tumor formation. Traditional Chinese medicine (TCM) has shown certain effectiveness treating fibrosis. However, there currently lack of knowledge, attitude, and practice (KAP) studies regarding this topic. Aims Objectives This study aimed assess medical staff's KAP toward fibrosis/cirrhosis TCM treatment, explore association between scores demographic factors. Methods Demographic information were collected through self‐administered questionnaire. Results A total 262 questionnaires collected, with 155 (69.82%) females mean age 32.83 ± 8.17 years. Mean 15.99 4.58, 22.69 4.11, 23.09 3.36, respectively. Working teaching hospital (OR = 3.562, 95% CI: 1.214–10.448) was independently associated adequate knowledge. Knowledge score 1.104, 1.026–1.186) linked positive attitude. 1.263, 1.166–1.368) attitude 1.105, CI 1.010–1.198) independent predictors proactive practice. Pathway analysis revealed that knowledge positively affected (β 0.24, p < 0.001) 0.30, 0.001), directly influenced 0.22, 0.001). Conclusion Medical staff demonstrated negative practices treatment. Targeted educational programs, interdisciplinary training, awareness campaigns should be implemented improve attitudes promote patient care.

Language: Английский

Citations

0

“It's a risk-benefit analysis”: Qualitative perspectives on barriers and enablers to post-treatment vaccination from adults affected by a haematological malignancy in Australia DOI Creative Commons
Holly Chung, Meinir Krishnasamy,

Trish Joyce

et al.

Vaccine, Journal Year: 2025, Volume and Issue: 50, P. 126826 - 126826

Published: Feb. 1, 2025

Language: Английский

Citations

0

Exploring the financial burden of pediatric bone marrow transplantation: a cross-sectional Study from the caregiver’s viewpoint DOI Creative Commons

Omid Soodi,

Akbar Abdollahiasl, Shahideh Amini

et al.

BMC Health Services Research, Journal Year: 2025, Volume and Issue: 25(1)

Published: Feb. 17, 2025

Language: Английский

Citations

0

The financial burden experienced by families during NICU hospitalization and after discharge: A single center, survey-based study DOI Creative Commons
Carmine Vincenzo Lambiase,

Giuseppina Mansi,

Serena Salomè

et al.

European Journal of Pediatrics, Journal Year: 2023, Volume and Issue: 183(2), P. 903 - 913

Published: Dec. 1, 2023

To investigate a broad array of costs and perceived financial burden (FB) faced by families NICU graduates both during hospitalization after discharge. Cross-sectional survey-based study design. A survey measuring socio-demographics, direct non-medical costs, indirect social support FB was developed. One-hundred-twenty-two pairs parents participated in the study. Most (87.7%) experienced due to hospitalization. The median cost visiting infant admission 615 euros (range: 42,7320). correlated with for drugs (ρ = .271, p < .05, 95%CI:[.020, .490]), dietary supplement .385, CI:[.010, .665]), behavioral disorders -.186, 95%CI:[-.356, -.003]), language delay .243, .01, CI:[-.408, -.063]) comorbidities -.206, 95% CI:[-.374, -.024]). Transportation medical visits .415, CI:[.239, .564]) therapy sessions .517, CI:[.121, .771]) higher FB. Grandparents were most frequent source help (86.1%). Families having infants adverse outcome more hospitalizations discharge (p .05) .01) than typically developing infant. Lack government associated (CI:[1.117,29.127], .05). Conclusions: Our findings demonstrated that experience high rates FB, highlighting their sources (e.g., grandparents support) difficulties private costs) through lens patient perspective. promotes reflection on policies which should be adopted from European health services are similar Italian one graduate reduce inequalities. What is Known: • face several kinds New: multifaceted event impact families. whose had felt lack local policy makers burden.

Language: Английский

Citations

7

Financial Toxicity and Health-Related Quality of Life Profile of Patients With Hematologic Malignancies Treated in a Universal Health Care System DOI
Francesco Sparano, Johannes M. Giesinger, Gianluca Gaïdano

et al.

JCO Oncology Practice, Journal Year: 2024, Volume and Issue: 20(3), P. 438 - 447

Published: Jan. 11, 2024

We investigated the association of financial toxicity (FT) with health-related quality life (HRQoL) profile patients hematologic malignancies treated in a universal health care system.

Language: Английский

Citations

2

Financial toxicity, coping strategies, and quality of life among Chinese patients with hematologic malignancies: a cross-sectional study DOI

Ye Wang,

Biyi Luo,

X.H. Wang

et al.

Supportive Care in Cancer, Journal Year: 2024, Volume and Issue: 32(7)

Published: July 1, 2024

Language: Английский

Citations

2

A Systematic Review of the Psychological Experience of Patients with Lymphoma DOI

美佳 李

Nursing Science, Journal Year: 2024, Volume and Issue: 13(07), P. 873 - 883

Published: Jan. 1, 2024

Language: Английский

Citations

1

Addressing Financial Hardship in Malignant Hematology and Hematopoietic Cell Transplant: A Team Approach DOI Creative Commons
Salene M. W. Jones, Timothy J. D. Ohlsen, Kristine A. Karvonen

et al.

Blood Advances, Journal Year: 2024, Volume and Issue: 8(19), P. 5146 - 5155

Published: Aug. 15, 2024

Language: Английский

Citations

1

Identifying barriers to resilience from the perspective of young and middle-aged patients with lymphoma: A qualitative exploration DOI
Chunfeng Wang, Zhenling Liao, Zhangjie Li

et al.

European Journal of Oncology Nursing, Journal Year: 2023, Volume and Issue: 64, P. 102348 - 102348

Published: May 2, 2023

Language: Английский

Citations

3

Health-Related Quality of Life and Financial Burden in Ethiopian Patients With Chronic Myeloid Leukemia Receiving Tyrosine Kinase Inhibitors: A Cross-Sectional Study DOI Creative Commons
Fisihatsion Tadesse, Francesco Sparano, Amha Gebremedhin

et al.

JCO Global Oncology, Journal Year: 2024, Volume and Issue: 10

Published: Nov. 1, 2024

PURPOSE Health-related quality of life (HRQoL) is now an important goal therapy for patients with chronic myeloid leukemia (CML). However, there paucity data living in low-income countries (LICs) and on factors associated their HRQoL profile. The primary objective was to compare the CML LIC (Ethiopia) that a high-income country (HIC). METHODS Adult treated tyrosine kinase inhibitors Ethiopia were considered eligible this study. To assess symptom burden, completed European Organisation Research Treatment Cancer Quality Life Questionnaire-Core 30 (EORTC QLQ-C30) EORTC Questionnaire Chronic Myeloid Leukemia 24 (QLQ-CML24). A matched case-control analysis applied profile herein-recruited Ethiopian cohort sample from HIC (Italy). RESULTS Overall, 395 enrolled between February 2021 June 2021. Except dyspnea satisfaction care, reported lower functioning higher burden compared HIC. remarkable proportion (n = 353, 89.4%) financial toxicity (FT). Compared without FT, those FT prevalence clinically problems symptoms across all QLQ-C30 scales. For example, impairment social almost sixfold (41.8%, 7.1%, respectively). CONCLUSION Our results indicate may be worse several functional domains than peers In addition, highly prevalent among these it poorer outcomes.

Language: Английский

Citations

0