The dyadic effects of family resilience and social support on quality of life among older adults with chronic illness and their primary caregivers in multigenerational families in China: A cross-sectional study

Heliyon, Journal Year: 2024, Volume and Issue: 10(5), P. e27351 - e27351

Published: Feb. 29, 2024

Older adults with chronic illness, as well their primary caregivers in multigenerational families, may experience a complex interplay of factors that affect quality life (QOL). However, this is not yet well-characterized for Chinese families particular. In study, we analyzed how family resilience and social support the QOL both older specifically. We enrolled 258 pairs illness multicenter cross-sectional study conducted southern China December 2021. Using Actor-Partner Interdependence Model (APIM), then examined correlation between resilience, support, dyadic analysis found QOL, were better than those (

Language: Английский

---

Emotional ecosystems: Understanding the relationship between family interactions and anxiety among cancer caregivers

Palliative & Supportive Care, Journal Year: 2025, Volume and Issue: 23

Published: Jan. 1, 2025

Recent studies have challenged the assumption that families are invariable sources of support for cancer caregivers, noting relationships with family members can both positive and negative effects on caregiver well-being. This study expands upon prior literature to examine relationship between caregivers' perceptions quality their interactions symptoms anxiety. We employed secondary analysis baseline data from a multisite randomized clinical trial an intervention caregivers conducted at 3 large academic palliative care clinics. performed linear regression analyses analyze anxiety; additional models were estimated further characterize this addition relevant covariates: race, ethnicity, sex, marital/relationship status, patient, employment household income, perceived social received friends significant others. also sub-analysis provided by who married or partnered anxiety satisfaction as covariate. Among our analytic sample (n = 244), we identified remained statistically covariates. Relationship was not found be covariate in caregivers. Study results provide strong development, testing, implementation interventions improve strategy reduce

Language: Английский

---

Trajectories of Burden or Benefits of Caregiving Among Informal Caregivers of Older Adults: A Systematic Review

Innovation in Aging, Journal Year: 2025, Volume and Issue: 9(4)

Published: Jan. 1, 2025

Informal caregiving for older adults can be both burdensome and beneficial. Given that the informal situation may evolve over time, care needs of result from diverse health conditions, it is valuable to understand trajectories burden or benefits how these vary across conditions common among care-recipients. This review first summarize literature on caregiving, including caregiver care-recipient characteristics associated with trajectories. We reviewed longitudinal observational quantitative studies, 5 bibliographic databases, assessed at 3 more time points caregivers (60 years above). The narrative synthesis included 41 only 7 (17%) considering benefits. A stable average trajectory was most pattern various conditions. However, an increasing primarily observed persons dementia, while a decreasing noted discharged hospital after acute event. Only 6 (10%) which reported heterogeneity in progression separately jointly, identified distinctive within same set caregivers. Risk factors consistently indicating persistently higher lower functional limitations behavioral problems, being non-spousal caregiver, solo perceiving less self-efficacy competence. Future studies should focus untangle consider concurrently identify enhance alleviate time.

Language: Английский

---

Open Online Courses for Informal Carers: Systematic Review (Preprint)

Published: Feb. 18, 2025

The global rise in ageing populations is expected to significantly increase the demand for informal care. Informal carers are crucial healthcare systems but often face physical, mental, and emotional challenges due demands of caregiving. Open online courses have emerged as potential tools support by providing accessible, flexible learning opportunities. However, landscape these remains underexplored, particularly concerning their design, outcomes, barriers enablers participation. This systematic review aimed map characteristics open carers, explore learner experiences, identify participation inform design future courses. We systematically searched four electronic databases studies published from inception 30 January 2025: (1) APA PsycINFO, (2) CINAHL, (3) EMBASE, (4) MEDLINE. Two reviewers independently screened titles abstracts eligibility. Included reported on development, delivery, or outcomes using quantitative, qualitative, mixed methods designs. Backward forward citation was conducted reference lists included studies. Data study methodology, course characteristics, evaluations were extracted synthesised narratively. quality quantitative assessed Effective Public Health Practice Project (EPHPP) Quality Assessment Tool, qualitative Critical Appraisal Skills Program (CASP) toolkit. Mixed appraised both tools. database search identified 200 studies, with an additional through backward citation. Following screening, 10 (6 4 methods) met eligibility criteria inclusion. All examined massive (MOOCs) varied length content. primarily targeted older individuals dementia chronic conditions such multiple sclerosis. Learner benefits improvements knowledge, caregiving skills, application gains into everyday scenarios. Learners accessibility approaches key benefits. related interactivity, peer engagement, learners varying levels digital literacy internet access emphasised. Nine ten papers demonstrated moderate weak methodological EPHPP tool, three CASP toolkit, limitations participant selection, blinding, presentation data. can provide accessible education that improves knowledge skills learners. poor limited opportunities interaction will be helpful areas address incorporation synchronous elements including live moderated discussions, along more technical options, could enhance experience. Further high-quality research essential extend strengthen evidence base guide development effective educational resources carers. PROSPERO CRD42024532766; https://www.crd.york.ac.uk/PROSPERO/display_record.php? RecordID=532766

Language: Английский

---

Validación en español del instrumento GAIN para su aplicación en cuidadores de pacientes con multimorbilidad en el entorno domiciliario

Enfermería Clínica, Journal Year: 2025, Volume and Issue: unknown

Published: Feb. 1, 2025

---

Suicidal ideation among informal caregivers of older adults: The role of family values, care stigma, and care gains

International Psychogeriatrics, Journal Year: 2025, Volume and Issue: unknown, P. 100052 - 100052

Published: Feb. 1, 2025

This study aims to analyze the association between care-specific psychosocial factors in terms of familism, care stigma, caregiver burden, and gains with suicidal ideation informal caregivers older adults Germany. Data from Attitudes Towards Informal Caregivers Project (ATTIC) 433 aged ≥ 60 years was used research question. The Internalized Caregiver Stigma Scale measure internalized attitudes behavior regarding provision for adults, measuring passive suicide thoughts, were measured positive aspects scale familism short attitudinal scale. Linear regression analysis robust standard errors calculated adjusted contextual personal (e.g., co-residence, personality, social support). Stronger beliefs negative stigma associated higher frequency while stronger not significantly ideation. associations also found additional a log-transformed outcome analyses excluding mental health as covariate (except which ideation). Care-specific are important risk Thus, changing evaluations expectations about its performance could be helpful prevent experiencing (high levels of)

Language: Английский

---

Pain Prevalence and Intensity Among Older Family Caregivers Versus Non-Caregivers in the United States

Journal of Aging and Health, Journal Year: 2025, Volume and Issue: unknown

Published: April 10, 2025

Objective We compared pain prevalence and intensity between caregivers non-caregivers, as well different types of caregivers. Method Using two rounds data from the National Social Life, Health, Aging Project, we used regression models to analyze differences in non-caregivers at baseline (2010–2011) follow-up (2015–2016). The sample consisted 2332 participants aged 62 older (352 1980 non-caregivers). Results Cross-sectionally, were more likely than report pain. Longitudinally, with presence greater five years later who also reported baseline. More hours care per week was associated among Discussion Caregivers’ is a public health concern, efforts mitigate effects caregiving on needed.

Language: Английский

---

Impact of Activity Participation on the Risk of Mortality and Hospitalizations in Danish Men and Women: Insights from REGLINK-SHAREDK

Epidemiology, Journal Year: 2025, Volume and Issue: 36(3), P. 297 - 305

Published: April 1, 2025

Background: Previous evidence shows that religious service attendance is associated with lower mortality among women and fewer hospitalizations men. However, it unclear if similar associations exist for other activities. Methods: This cohort study examines the between various activities their engagement levels on 2987 Danes aged 40+ years, interviewed in SHARE from 2004 to 2007. The followed individuals Danish registers until 2018. We estimated relative absolute risks of at age 90 used negative binomial regressions hospitalizations, including adjustment several potential confounders. Results: Overall, activity participation was mortality. Specifically, participating voluntary or charity work (relative [RR] = 0.85; 95% CI 0.76, 0.95; risk differences [RD] −0.11; −0.18, −0.04), helping others (RR 0.88; 0.82, RD −0.09; −0.14, sports social clubs 0.89; 0.81, 0.98; −0.15, −0.03) exhibited found who took part a organization. Our results showed men engaged 3+ activities, For some strength varied frequency; example, caring sick but only when done less than once week. Conclusions: Several were mortality, particularly women. reduced observed attending services did not extend

Language: Английский

---

Effect of a web-based intervention on the mental health of informal caregivers of the elderly: a randomized controlled trial

BMC Psychiatry, Journal Year: 2025, Volume and Issue: 25(1)

Published: April 18, 2025

Iran's demographic trends indicate significant aging, with intensive caregiving linked to mental health issues among caregivers, especially during the Covid-19 pandemic. This study aimed evaluate impact of Mehrpishegan's web-based intervention on depression, anxiety, and stress levels informal primary caregivers older adults in Iran. was a parallel-group, superiority, single-blinded randomized controlled trial conducted Tehran. Eligible participants were responsibility, access internet smart device, at least one month experience, ability use intervention. The outcomes measured baseline, 3 months, 6 months using DASS-21. Participants mild moderate baseline into (n = 83) control 80) groups. group accessed website, which provided structured educational content chatrooms(psychologist-led for three then peer-led). Engagement via session attendance, forum participation, material usage. Data analyzed repeated measures ANOVA based intention-to-treat (ITT) per-protocol approaches. Of participants, 128 completed final assessment six resulting an attrition rate 20%. showed small decrease depression (10.23 ± 0.80 vs. 10.48 0.75, diff 0.253; 95% CI -0.24, 1.94), anxiety (6.70 0.64 7.86 0.60, 1.17; -2.93, 0.59), (13.94 0.78 15.16 0.74, 1.22; -3.37, 0.92), but none these differences statistically (p > 0.05). Effect size calculations indicated reductions (d -0.30) -0.28) though remained below threshold clinical significance (|d| < 0.5). Although some improvements caregivers' outcomes, changes not significantly different from those group. Several challenges, including disruptions, voluntary COVID-19 pandemic, may have influenced outcomes. To enhance effectiveness support programs, future interventions must overcome technological barriers, strengthen digital competencies, tailor individual needs, address key risk factors. A more personalized accessible approach could improve engagement long-term benefits caregivers. protocol this research registered Iran Randomized Clinical Trial Center registration number IRCT2 02010 12,048 999N1 25 December 2020.

Language: Английский

---

Exploring the experience of informal caregivers of dependent elderly people with the well-being valuation method

Frontiers in Psychiatry, Journal Year: 2025, Volume and Issue: 16

Published: April 29, 2025

Introduction Although informal caregivers are the primary providers of long-term care for elderly globally, research on impact caregiving experiences well-being is relatively limited. Methods This study conducted interviews with 297 family in Shanghai, measured their subjective burdens, and applied valuation method to calculate monetary value welfare changes resulting from burdens. Results According findings, sub-dimensions Chinese version Caregiver Reaction Assessment (CRA) disrupted schedule, lack support, self-esteem were significantly related caregivers’ well-being. For average income CRA scores, level was equivalent a monthly reduction 226.69 RMB (4.7% income). Discussion paper provides new useful perspective evaluation policies, suggests prioritizing alleviation schedule social relationship understanding ‘intrinsic coping mechanisms’ responses an economic perspective.

Language: Английский

---