Captains on call: A qualitative investigation of an intervention to support children with retinoblastoma undergoing regular eye examinations

Psycho-Oncology, Journal Year: 2024, Volume and Issue: 33(3)

Published: Feb. 29, 2024

Abstract Background Retinoblastoma is a rare childhood ophthalmic cancer that requires frequent eye examinations under anaesthesia and painful or distressing procedures. This can cause significant anxiety for children their families. Objective We evaluated Starlight Children's Foundation programme, ‘Captains on Call’, at the Queensland Hospital, which aims to provide positive distraction reduce stress, pain during perioperative journey in retinoblastoma treatment pathway. study examined impact of programme experience families, using qualitative design. Methods was conducted paediatric operating suite tertiary‐level children's hospital Australia. interviewed parent from 20 families (from cohort 40 including 44 children), whose received screening retinoblastoma, focusing programme's child family various stages journey. undertook thematic analysis transcribed interviews. Results identified two themes, each with sub‐themes: (1) positively contributed overall journey, by addressing different needs times, helping reframe traumatic medical experience, (2), supported whole unit empowering through play, adopting systems approach recognised family. Conclusion highlights value Captains Call supporting visits. The Captains, particularly as non‐medicalised professionals healthcare setting, built trust rapport play over repeated episodes care. interprofessional collaborative reflective cycle practice extended it beyond providing simple distraction. Other services may benefit implementing similar approach.

Language: Английский

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The Impact of Parents’ Subjective Preparedness on Their Children’s Post-Traumatic Symptoms Following Surgery

Children, Journal Year: 2024, Volume and Issue: 11(7), P. 780 - 780

Published: June 27, 2024

The role of parental factors in the emergence post-traumatic stress symptoms (PTSSs) following pediatric surgeries is well recognized, but specific influence parents’ subjective preparedness for their child’s surgery has not been explored. In a study involving 253 children hospitalized ward, parents completed demographic questionnaire during stay, which included question, “As parent, have you prepared surgical intervention your child undergoing?” Four months post-surgery, same were interviewed using two questionnaires that evaluated children’s symptoms. Our findings indicate emergency settings, whose felt experienced significantly fewer PTSSs compared to did feel prepared. contrast, elective surgeries, perception impact PTSSs. We conclude procedures, addressing could be crucial. Further research necessary develop targeted interventions leverage this insight minimize risk undergoing surgeries.

Language: Английский

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Interventions in Medical Settings

Published: Jan. 1, 2024

Language: Английский

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The ethical imagination of children with osteogenesis imperfecta: What children’s stories teach us about making safe space in hospital settings

Youth Theatre Journal, Journal Year: 2024, Volume and Issue: 38(1-2), P. 71 - 85

Published: July 2, 2024

Language: Английский

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