Identifying Research Priorities to Promote the Well-Being of Family Caregivers of Canadians with Intellectual and/or Developmental Disabilities: A Pilot Delphi Study DOI Open Access
Afolasade Fakolade, Caitlin Stone, Nicole Bobbette

et al.

International Journal of Environmental Research and Public Health, Journal Year: 2023, Volume and Issue: 20(22), P. 7072 - 7072

Published: Nov. 16, 2023

Current programming and resources aimed at supporting the well-being of family caregivers often fail to address considerations unique those caring for people with intellectual and/or developmental disabilities (IDDs). As a result, many IDD feel isolated, stressed, burnt out. A targeted research agenda informed by key stakeholders is needed would allow teams coordinate resources, talents, efforts progress caregiver in this area quickly effectively. To aim, pilot study used Delphi design based on 2 rounds questionnaires. In round 1, 19 (18 females, 1 male), including 12 caregivers, 3 rehabilitation providers, researchers, organizational representatives, identified broad areas research. After collating responses from were asked rank whether each was considered priority 2. Data analyzed using descriptive statistics conventional content analysis. Eighteen completed survey (1 did not complete survey), after which consensus reached. Stakeholders nine priorities, system-level programs services, models care, health promotion, social inclusion, equity diversity, capacity building, care planning along lifespan, balancing formal natural community-based supports. Although preliminary nature, priorities generated an inclusive systematic process may inform future promote Canadians IDD.

Language: Английский

Loneliness and social isolation among informal carers of individuals with dementia: A systematic review and meta‐analysis DOI
Xinqi Liao,

Zhong Wang,

Qinglin Zeng

et al.

International Journal of Geriatric Psychiatry, Journal Year: 2024, Volume and Issue: 39(5)

Published: May 1, 2024

This systematic review and meta-analysis aimed to determine the prevalence of loneliness social isolation among informal carers individuals with dementia identify potential influencing factors.

Language: Английский

Citations

2
Deepening Depression in Women Balancing Work–Life Responsibilities and Caregiving during the COVID-19 Pandemic: Findings from Gender-Specific Face-to-Face Street Interviews Conducted in Italy DOI Creative Commons
Laura Giusti, Silvia Mammarella,

Sasha Del Vecchio

et al.

Behavioral Sciences, Journal Year: 2023, Volume and Issue: 13(11), P. 892 - 892

Published: Oct. 29, 2023

Purpose: This study investigated the impact of COVID-19 pandemic on mental health, quality life, and family functioning in a sample general female population, exploring difficulties encountered managing work responsibilities burden care when taking loved one. was, moreover, aimed at investigating factors capable influencing severe depressive symptomatology context socio-demographics, traumatic events, individual vulnerability, functioning. Method: The sampling method used this research was non-probability sampling. survey took place during Hospital Open Weekend (8–10 October 2021) organized by National Gender Observatory Women’s Health “Fondazione Onda” occasion World Mental Day. Results: A total 211 women were interviewed (mean age = 35.6, 53% living alone, more than 15% with financial difficulties, 47% exposed to 2009 L’Aquila earthquake). More 50% reported higher complexity their lives compared previous routine, no statistically significant differences between working non-workers, although latter obtained scores for poorer life. Compared non-caregivers, caregivers (22.3%) charge ones affected physical (10.9%) or psychiatric disabilities (11.4%) complained especially health perception (p 0.002), function 0.011), role limitations related problems 0.017), bodily pain 0.015), 0.004), social 0.007). Women caring people disorders seemed experience worsening vitality 0.003) 0.005). Approximately 20% symptomatology. Previous access services (O.R. 10.923; p 0.000), low level education 5.410; 0.021), management everyday 3.598; 0.045) found be main variables predictive psychopathology. Old age, good problem-solving skills, ability pursue personal goals identified as protective factors. Conclusions: underlined need support amongst emotionally vulnerable pre-existing conditions, partly reflecting cumulative effects traumas.

Language: Английский

Citations

6
Why are people with intellectual disabilities clinically vulnerable to COVID-19? DOI Creative Commons
Hannah Kuper, Nathaniel Scherer

The Lancet Public Health, Journal Year: 2023, Volume and Issue: 8(5), P. e325 - e326

Published: April 16, 2023

Language: Английский

Citations

2
Deepening Depression in Women Balancing Work-Life and Caregiving during the COVID-19 Pandemic: Findings of Gender-Specific Face-to-Face Street Interviews Conducted in Italy DOI Open Access
Laura Giusti, Silvia Mammarella,

Sasha Del Vecchio

et al.

Published: Sept. 27, 2023

Purpose: This study investigated the impact of COVID-19 pandemic on mental health, quality life, and family functioning in a sample general female population, exploring difficulties encountered managing work responsibilities burden care when taking loved one. The was moreover aimed at investigating factors capable influencing severe depressive symptomatology context socio-demographics, traumatic events, individual vulnerability, functioning. Method: During weekend devoted to Mental Health initiatives (October 8-10, 2021), 211 women were interviewed (47% exposed 2009 L’Aquila earthquake). Results: More than 50% reported higher complexity their lives during compared previous routine, with no statistically significant differences between working non-workers, although latter obtained scores for poorer life. Compared non-caregivers, caregivers (22.3%) charge ones affected by physical (10.9%) or psychiatric disabilities (11.4%) complained those caring people disorders seeming experience more worsening. Approximately 20% total symptomatology. Previous access health services (O.R. 10.923), low level education 5.410) management everyday 3.598) found be main variables predictive psychopathology. Old age, good problem-solving skills ability pursue personal goals identified as protective factors. Conclusions: underlined need support emotionally vulnerable pre-existing conditions, partly reflecting cumulative effects traumas.

Language: Английский

Citations

2
Calidad de vida en colombianos con discapacidad intelectual: efectos del confinamiento ocasionado por COVID-19 DOI Creative Commons
Leonor Córdoba Andrade, Jhon Elkin Enciso Luna, Carmen Beatriz Cuervo Arias

et al.

Siglo Cero, Journal Year: 2024, Volume and Issue: 55(1), P. 67 - 96

Published: March 4, 2024

La pandemia llevó a que se incrementaran las medidas de bioseguridad y adoptara el confinamiento para evitar la propagación del virus, lo repercutió en calidad vida todas personas, incluyendo aquellas con discapacidad intelectual. El propósito este estudio fue establecer cómo era personas intelectual durante por COVID-19, mediante aplicación un cuestionario línea completado 78 familias Colombia. Los principales hallazgos dan cuenta al 91 % le explicaron sobre 79,5 tuvo conocimiento acerca causas dicho confinamiento; 43.6 presentó nivel alto participación actividades rutinas familiares; 80.8 pudo elegir los espacios tiempos realizar sus individuales; 92.3 acceso implementos recursos necesarios su diaria; 71.8 no experimentó cambios hábitos alimentación; 44.9 reportó estado regular salud; 64.1 sueño, 79.5 recibió apoyos gubernamentales. Las moderada tuvieron mayor contacto familia extensa (52.50 %) 85.7 quienes presentaban severa profunda evidenciaron ánimo. En conclusión, experimentaron una serie adaptaciones entornos inmediatos, llevar cabo instituciones, minimizar impacto vida.

Citations

0
Factors associated with loneliness in Latin-American family care partners during the COVID-19 pandemic DOI Creative Commons
Tomás León, Thamara Tapia‐Muñoz, Andrea Slachevsky

et al.

Frontiers in Psychiatry, Journal Year: 2024, Volume and Issue: 15

Published: Nov. 12, 2024

Background COVID-19-related restrictions led to an increase in overall loneliness and social isolation. Before the pandemic, care partners reported higher levels of prevalence compared non-care partners. Because spread severity infections, access support spread, we expect a different impact COVID-19 pandemic on LATAM Objectives To describe caregivers identify socioeconomic health factors associated. Design An international online cross-sectional survey for partners, embedded within ‘Coping with Loneliness Isolation during COVID-19’ (CLIC) Study conducted between June 2020– November 2020. Setting We analysed data from 246 family living Latin American countries (46% Mexico, 26% Chile,18% Brazil, 10% Argentina, Peru, Venezuela, Panama, Guatemala y Costa Rica). Measurements assessed using 6-items De Jong Gierveld Scale. described overall, emotional, pre Covid, distribution who improved, worsened or maintained their loneliness. Moreover, used longitudinal multiple linear regression models bootstraps errors 1,000 iterations associated pandemic. Results Participants were mostly women, 50 years older, partnership, highly educated finances meeting needs, good excellent physical mental health. Among total 55% perceived loneliness, 56% emotional 21% comparison pre-COVID-19 levels. Perceived was Conclusions Regardless situation, increased all groups These should be taken consideration when planning public approaches crises such as pandemics other large-scale disruptive events.

Language: Английский

Citations

0
Identifying Research Priorities to Promote the Well-Being of Family Caregivers of Canadians with Intellectual and/or Developmental Disabilities: A Pilot Delphi Study DOI Open Access
Afolasade Fakolade, Caitlin Stone, Nicole Bobbette

et al.

International Journal of Environmental Research and Public Health, Journal Year: 2023, Volume and Issue: 20(22), P. 7072 - 7072

Published: Nov. 16, 2023

Current programming and resources aimed at supporting the well-being of family caregivers often fail to address considerations unique those caring for people with intellectual and/or developmental disabilities (IDDs). As a result, many IDD feel isolated, stressed, burnt out. A targeted research agenda informed by key stakeholders is needed would allow teams coordinate resources, talents, efforts progress caregiver in this area quickly effectively. To aim, pilot study used Delphi design based on 2 rounds questionnaires. In round 1, 19 (18 females, 1 male), including 12 caregivers, 3 rehabilitation providers, researchers, organizational representatives, identified broad areas research. After collating responses from were asked rank whether each was considered priority 2. Data analyzed using descriptive statistics conventional content analysis. Eighteen completed survey (1 did not complete survey), after which consensus reached. Stakeholders nine priorities, system-level programs services, models care, health promotion, social inclusion, equity diversity, capacity building, care planning along lifespan, balancing formal natural community-based supports. Although preliminary nature, priorities generated an inclusive systematic process may inform future promote Canadians IDD.

Language: Английский

Citations

1