How many zebras are there now? An updated report on publications on rare diseases in medical literature DOI Creative Commons

Tara Moroz,

Michael Taylor, Paula Schmitt

и другие.

Future Rare Diseases, Год журнала: 2025, Номер 5(1)

Опубликована: Май 7, 2025

Язык: Английский

Social Media, Endometriosis, and Evidence-Based Information: An Analysis of Instagram Content DOI Open Access
Hannah Adler, Monique Lewis, Cecilia Ng

и другие.

Healthcare, Год журнала: 2024, Номер 12(1), С. 121 - 121

Опубликована: Янв. 4, 2024

Social media platforms are used for support and as resources by people from the endometriosis community who seeking advice about diagnosis, education, disease management. However, little is known scientific accuracy of information circulated on Instagram disease. To fill this gap, study analysed evidence-based nature content endometriosis. A total 515 posts published between February 2022 April were gathered using a analysis method, resulting in sixteen main categories, including “educational”, which comprised eleven subcategories. Claims within educational further their accuracy, guided process included fact-checking all claims against current evidence research. Of subcategories, only four categories (cure, article, symptoms, fertility) that at least 50% or greater evidence-based. More commonly, varying degrees evidence-based, mixed, non-evidence-based information, some such surgery, dominated This concerning social can impact real-life decision-making management individuals with Therefore, suggests health communicators, clinicians, scientists, educators, groups trying to engage online need be aware discourses endometriosis, while also ensuring accurate translatable provided.

Язык: Английский

Процитировано

12

The Relationship Between Information Sources, Health Literacy, and COVID-19 Knowledge in the COVID-19 Infodemic: Cross-sectional Online Study in Japan DOI Creative Commons
Mami Ishizuka-Inoue, Kanako Shimoura, Momoko Nagai‐Tanima

и другие.

Journal of Medical Internet Research, Год журнала: 2022, Номер 24(7), С. e38332 - e38332

Опубликована: Июль 14, 2022

The COVID-19 pandemic has caused not only a disease epidemic but also an infodemic. Due to the increased use of internet and social media, along with development communication technology, information spread faster farther during Moreover, choice sources made it more difficult make sound decisions regarding information. Although media is most common source misinformation, other forms can misinformation. However, used by people high health literacy knowledge obtain are unclear. Furthermore, association between multiple or ill-defined.

Язык: Английский

Процитировано

36

A Review of Shared Decision-Making, Published Protocols, and Post-desensitization Strategies in Oral Immunotherapy (OIT) DOI Creative Commons
Susan Laubach, Edwin Kim, Matthew Greenhawt

и другие.

Current Allergy and Asthma Reports, Год журнала: 2024, Номер 24(4), С. 173 - 197

Опубликована: Март 5, 2024

Abstract Purpose of Review The aim this review is to highlight key published oral immunotherapy (OIT) protocols and post-desensitization strategies for the major food allergens cover important concepts consider when evaluating OIT food-allergic patients. Shared decision-making should help identify patient family values which will influence type evidence-based protocol maintenance strategy use. Recent Findings With emerging as a treatment option, there pressing need patients, physicians, other providers have nuanced understanding management choices available them. There are now randomized controlled trials (RCT) peanut, egg, milk, wheat, reports cohorts patients who undergone tree nuts sesame clinically. current contain significant diversity in terms starting dose, build-up schedule, even product used desensitization. Emerging data can direct long-term on OIT. Summary Based elicited through shared process, an may be selected that balances level desensitization, potential side effects, frequency clinic visits, induce sustained unresponsiveness, among factors. Once dosing reached, most maintain regular exposure allergen remain desensitized. option transition commercial products with equivalent amounts protein dose would simplify process perhaps improve palatability well. Less frequent or decreased provide practical benefits but affect desensitization safety some

Язык: Английский

Процитировано

8

A Social Media Quality Review of Popular Sinusitis Videos on TikTok DOI Creative Commons
Rose Dimitroyannis, David Fenton, S Cho

и другие.

Otolaryngology, Год журнала: 2024, Номер 170(5), С. 1456 - 1466

Опубликована: Март 3, 2024

Abstract Objective Social media may inform health care decisions among younger patient populations. TikTok is a social platform that allows users to post short‐form videos. This study aimed assess the quality of sinusitis‐related videos on TikTok. Study Design We searched January 29, 2023, for hashtags: #sinusitis, #sinus, #sinusinfection. Setting Internet. Methods The number views/shares per day, uploader type (nonmedical influencer, lay individual, and medical professional) content categories (medical advice, marketing, comedy, lifestyle/acceptability), (educational vs factual) were collected. Patient Education Materials Assessment Tool Audiovisual Material Journal American Medical Association criteria score was used measure understandability, actionability, reliability. Global Quality Scale (GQS) evaluate videos; harm/benefit causative effects. Analyses performed using analysis variance ( α = .05). Results There 221 identified, which garnered over 300 million views 1 shares. Almost half published by nonmedical influencers. When controlling covariates, influencers uploaders more likely have harmful scores, less understandable videos, lower GQS scores compared professionals. Less than posted categorized as educational factual (46.7%); individuals professionals had higher rates (79.9% 83.7%, respectively). Conclusion Most influencer‐posted about sinusitis are inaccurate, despite being portrayed advice/educational. Rhinologists must find modern ways disseminate true disease‐related via combat misinformation.

Язык: Английский

Процитировано

7

The future of food allergy: Challenging existing paradigms of clinical practice DOI Creative Commons
Aikaterini Anagnostou, Phil Lieberman, Matthew Greenhawt

и другие.

Allergy, Год журнала: 2023, Номер 78(7), С. 1847 - 1865

Опубликована: Май 2, 2023

The field of food allergy has seen tremendous change over the past 5-10 years with seminal studies redefining our approach to prevention and management novel testing modalities in horizon. Early introduction allergenic foods is now recommended, challenging previous paradigm restrictive avoidance. shifted from a passive avoidance active interventions that aim provide protection accidental exposures, decrease allergic reaction severity improve quality life food-allergic patients their families. Additionally, diagnostic tools are making way into clinical practice goal reduce need for challenges assist physicians the-often complex-diagnostic process. With all new developments available choices diagnosis, therapy, shared decision-making become key part medical consultation, enabling make right choice them, based on values preferences. Communication also more complex time, as seeking advice online through social media, but information found may be outdated, incorrect, or lacking context. role allergist evolved embrace above exciting optimal care fits needs. In this review, we discuss recent well evolution next decade.

Язык: Английский

Процитировано

15

Use of Social Media in Orthopaedic Surgery Training and Practice DOI Creative Commons
Aliya G. Feroe, Arthur J. Only, Jerome C. Murray

и другие.

JBJS Open Access, Год журнала: 2024, Номер 9(1)

Опубликована: Янв. 1, 2024

Social media use has grown across healthcare delivery and practice, with dramatic changes occurring in response to the coronavirus (COVID-19) pandemic. The purpose of this study was conduct a comprehensive systematic review determine current landscape social by (1) orthopaedic surgery residencies/fellowship training programs (2) individual surgeons change over time.

Язык: Английский

Процитировано

6

Addressing common questions on food oral immunotherapy: a practical guide for paediatricians DOI
Aikaterini Anagnostou, Matthew Greenhawt, Pablo Rodríguez del Río

и другие.

Archives of Disease in Childhood, Год журнала: 2024, Номер 109(9), С. 697 - 701

Опубликована: Янв. 12, 2024

Food allergy has been increasing in prevalence most westernised countries and poses a significant burden to patients families; dietary social limitations as well psychosocial economic affect daily activities, resulting decreased quality of life. oral immunotherapy (food-OIT) emerged an active form treatment, with multiple benefits such the threshold reactivity allergenic food, decreasing reaction severity on accidental exposures, expanding choices, reducing anxiety generally improving Risks associated food mostly consist allergic reactions during therapy. While therapy is considered both safe effective, families must be informed aforementioned risks, understand them, willing accept hedge these risks being worthwhile outweighed by anticipated through process shared decision-making. Food-OIT good example preference-sensitive care paradigm, given candidates for this consider trade-offs what optional compared avoidance. Additionally, clinicians who discuss OIT should remain increasingly aware growing impact media medical decision-making prepared counter misconceptions providing clear evidence-based information in-person encounters, their website, printed that can take home review.

Язык: Английский

Процитировано

5

When People With Chronic Conditions Turn to Peers on Social Media to Obtain and Share Information: Systematic Review of the Implications for Relationships With Health Care Professionals DOI Creative Commons
Emilie Mølholm Kjærulff, Tue Helms Andersen,

Natasja Kingod

и другие.

Journal of Medical Internet Research, Год журнала: 2023, Номер 25, С. e41156 - e41156

Опубликована: Янв. 19, 2023

People living with chronic conditions such as diabetes turn to peers on social media obtain and share information. Although use has grown dramatically in the past decade, little is known about its implications for relationships between people health care professionals (HCPs).We aimed systematically review content quality of studies examining what retrieval sharing information by implies their HCPs.We conducted a search MEDLINE (Ovid), Embase PsycINFO CINAHL (EBSCO). Eligible were primary studies; examined use; included adults any type diabetes, cardiovascular diseases that are closely linked obesity, hypertension, or dyslipidemia; reported conditions-HCP when access media. We used Mixed Methods Appraisal Tool version 2018 assess studies, narratively synthesized.Of 3111 screened 17 (0.55%) included. Most (13/17, 76%) low quality. The narrative synthesis identified media, divided into 3 main categories 7 subcategories. These address how peer interactions can influence communication HCPs, discuss advice medical from HCPs discussed illustrated collectively conceptual model.More evidence needed draw conclusions, but findings indicate implicated ways which equip themselves clinical consultations, evaluate provided manage HCPs. Future populations will be raised digital world, likely remain strategy obtaining support However, generally this points relatively immature state research exploring relationships. Better study designs methods conducting generate robust evidence.

Язык: Английский

Процитировано

11

Analyzing the performance of ChatGPT in answering inquiries about cervical cancer DOI Creative Commons
Engin Yurtçu,

Seyfettin Ozvural,

Betül Keyif

и другие.

International Journal of Gynecology & Obstetrics, Год журнала: 2024, Номер 168(2), С. 502 - 507

Опубликована: Авг. 16, 2024

Abstract Objective To analyze the knowledge of ChatGPT about cervical cancer (CC). Methods Official websites professional health institutes, and created by patients charities underwent strict screening. Using CC‐related keywords, common inquiries public comments CC were searched in social media applications with these data, a list frequently asked questions (FAQs) was prepared. When preparing question CC, European Society Gynecological Oncology (ESGO), for Radiotherapy (ESTRO), Pathology (ESP) guidelines used. The answers given scored according to Global Quality Score (GQS). Results all FAQs evaluated regard GQS, 68 classified as score 5, none 2 or 1. Moreover, answered 33 53 (62.3%) based on ESGO, ESTRO, ESP completely accurate satisfactory responses (GQS 5). In addition, eight (15.1%), seven (13.2%), four (7.5%), one answer (1.9%) categorized GQS 4, 3, 2, 1, respectively. reproducibility rate those guideline‐based 93.2% 88.7%, Conclusion had an response regards GQS. However, accuracy quality significantly decreased guidelines.

Язык: Английский

Процитировано

4

Use of Twitter Amplifiers by Medical Professionals to Combat Misinformation During the COVID-19 Pandemic DOI Creative Commons
Regina Royan, Tricia Pendergrast, Marina Del Rios

и другие.

Journal of Medical Internet Research, Год журнала: 2022, Номер 24(7), С. e38324 - e38324

Опубликована: Июль 14, 2022

Social media is an important tool for disseminating accurate medical information and combating misinformation (ie, the spreading of false or inaccurate information) disinformation with intent to deceive). The prolific rise during a global pandemic pressing public health concern. In response this phenomenon, professional amplifiers such as IMPACT (Illinois Medical Professional Action Collaborative Team) have been created coordinated enhance communication advocacy around COVID-19 pandemic.

Язык: Английский

Процитировано

16