Experiences of eating disorder services for people caring for a loved one with an eating disorder in the UK: national survey

BJPsych Open, Journal Year: 2025, Volume and Issue: 11(1)

Published: Jan. 1, 2025

Research suggests that those caring for a loved one with an eating disorder in the UK report unmet needs and highlight areas improvement. More research is needed to understand these experiences on wider, national scale. To disseminate survey adults who had experience UK, informed by findings of smaller scale, qualitative study parents, siblings partners UK. A cross-sectional web-based was disseminated total 360 participants completed survey. Participants described care received both children young people's, adult services. Those receiving from people's services generally reported more timely care, greater involvement confidence managing their one's symptoms post-discharge. In settings, identified number improvement, including access improved transition processes discharge planning, increased care. This captures individuals There are discrepancies between people compared Clinical implications recommendations improvement discussed, processes, and/or support carers themselves, unwell individual.

Language: Английский

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Sensory processing across eating disorders: A systematic review and meta‐analysis of self‐report inventories

International Journal of Eating Disorders, Journal Year: 2024, Volume and Issue: 57(7), P. 1465 - 1488

Published: March 21, 2024

Abstract Objective This review investigated the extant literature regarding relationship between eating disorder diagnoses and sensory processing as measured by validated reliable self‐report inventories. Increasing evidence highlights role of in cognitive functions. Sensory is implicated mental‐ill health, including disorders (ED) body image disturbances. However, pathophysiological underpinnings processing, encompassing exteroception interoception, relation to ED remain underexplored. Method We included studies involving participants aged 15 years or older with an diagnosis confirmed semi‐structured structured interviews. further limited inclusion articles using instruments measure processing. Our meta‐analysis focused on interoceptive awareness subscale from second version Eating Disorder Inventory. used Critical Appraisal checklist for quasi‐experimental assess quality articles. Results There were 19 that met our criteria. Most showed moderate‐to‐high quality. Anorexia nervosa (AN) bulimia (BN) associated heightened exteroception. Moreover, people AN reported a sense taste compared those BN. comprising 10 studies, samples, 6382 revealed (binge‐purge subtype) BN increased difficulties (restrictive binge‐eating disorder. Discussion Overall, this emphasizes need deeper investigation into spanning both ED. may prove important individualizing person‐centered care. Public significance How process internal, example, hunger, external, sensations known influence cognition ways which contribute are incompletely understood. found individuals experienced exteroception, while characterized purging difficulties. These patterns could inform development more personalized treatments.

Language: Английский

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The financial and social impacts of the COVID-19 pandemic on youth with eating disorders, their families, clinicians and the mental health system: a mixed methods cost analysis

Journal of Eating Disorders, Journal Year: 2024, Volume and Issue: 12(1)

Published: March 29, 2024

Abstract Background The onset of the COVID-19 pandemic has had an adverse impact on children, youth, and families with eating disorders (EDs). exacerbated pre-existing personal financial costs to caregivers, health professionals accessing or delivering ED services. objectives this mixed methods study were (1) understand indirect, direct medical non-medical reported by clinicians; (2) how may have impacted these costs, (3) explore implications regards barriers resources inform future decisions for system care. Methods Youth (aged 16–25 years) lived/living experience, primary clinicians, decision-makers recruited support from various partners across Canada complete group specific surveys. A total 117 participants responded survey. From those respondents , 21 individuals volunteered further participate in either a discussion individual interview provide additional insights costs. Results caregivers relating private services, transportation impacts not attending school work. Additionally, top cost being special food nutritional supplements (82.8%). In groups, youth elaborated challenges long waitlists cancelled siblings effect family dynamics. Clinicians increased work expectations (64.3%) fear/isolation due workplace (58.9%). Through clinicians expanded toll took their life. Approximately 1 3 contemplating leaving position 1–2 years, greater than 60% stating is directly related working during pandemic. Conclusions Findings demonstrate need when services both crisis non-crisis times. attention must be given acknowledging experience better retention resource management as they continue navigate care system.

Language: Английский

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A systematic review of eating disorders and family functioning

Clinical Psychology Review, Journal Year: 2024, Volume and Issue: 112, P. 102462 - 102462

Published: June 24, 2024

Language: Английский

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Die Bürde der Elternrolle bei Patientinnen und Patienten mit Anorexia nervosa

Zeitschrift für Kinder- und Jugendpsychiatrie und Psychotherapie, Journal Year: 2025, Volume and Issue: unknown

Published: Feb. 12, 2025

Zusammenfassung: Viele Eltern erleben ihre Rolle als einer Tochter/eines Sohnes mit Anorexia nervosa sehr belastend. In nicht wenigen Kliniken in Deutschland werden immer noch Mitverursacher der Erkrankung oder zumindest Störenfriede bei stationären Behandlung ihres Kindes angesehen Folge Kontaktreduktion sogar -sperre zwischen und Patienten/in. Der Anteil Eltern, vor allem Mütter, die sich Schuld für geben, ist hoch im Vergleich zu anderen kinderpsychiatrischen Störungen. essgestörter Patienten_innen leiden selbst an psychischen Problemen, wenige Essstörung. Hinzu kommen Partnerschaftsprobleme sowie Einkommenseinbußen berufliche Probleme durch Versorgungszeiten des Kindes. Die Betroffenen fühlen das Gesundheitspersonal ausreichend unterstützt missverstanden. Konzepte zur Verbesserung Kooperation therapeutischem Personal beinhalten jedem Fall eine Aufhebung Kontaktsperre, ausführliche Aufklärung über biologische psychologische Ursachen Essstörung einschließlich psychoedukativen Gruppe Einbeziehung Therapie, sowohl Form von Gesprächen auch praktischen Übungen. Eine innovative Möglichkeit bildet Home treatment, dem intensive Schulung Gespräche ganzen Familie häuslichen Umgebung stattfinden. Untersuchungen haben gezeigt, dass Involvierung Prognose Patientin/des Patienten verbessert.

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Adolescent Patient Perspectives on Family‐Based Treatment: A Pilot Study

International Journal of Eating Disorders, Journal Year: 2025, Volume and Issue: unknown

Published: Feb. 25, 2025

ABSTRACT Objective Family‐based treatment (FBT) is the recommended first‐line for adolescent eating disorders (EDs), yet evidence suggests it effective only 50% of youth. Ambivalence about initiating and/or recovery predicts nonresponse youth with other psychiatric and may also contribute to poor FBT outcomes. Thus, understanding patient perspectives on essential mitigating challenges acceptance, great potential improving efficacy. Methods A qualitative, inductive approach was used develop hypotheses adolescents' patient‐perceived facilitators ED recovery. Semi‐structured interview data were analyzed using a grounded theory methodology. Results Interviewees ( N = 10) expressed ambivalence toward FBT—particularly its use parental empowerment pragmatic focus weight Many participants stated that effective, necessary recovery, improved relationships caregivers; however, some reported perceived lack agency sidelining psychosocial distress family conflict negatively impacted their engagement. Regarding preference cognitive/emotional aspects framed as an ongoing or lifelong process. Peer support identified important facilitator behavior change. Discussion Findings addressing concerns (e.g., well‐being, agency, connection peers, relationships) within framework. inform future implementation adaptation suggest need continued investigation experience from multiple (i.e., patients, members, clinicians).

Language: Английский

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“Like a rollercoaster”: carer experiences of residential treatment for eating disorders

Journal of Eating Disorders, Journal Year: 2025, Volume and Issue: 13(1)

Published: March 11, 2025

Residential facilities for eating disorders are becoming increasingly common, providing recovery-oriented care in less restrictive environments compared to traditional hospital treatments. Despite their popularity, there is a lack of research regarding parent and carer experiences residential programs. Furthermore, while the impact on parents caregivers well-documented, understandings lived remain limited. The aim this study was explore Australia's first facility treatment disorders. As part clinical evaluation (June 2021 – August 2023), 15 participated semi-structured interview about experience treatment. Transcripts were analysed using inductive reflexive thematic analysis. Analysis generated six main themes from data: (1) When everything still not enough; (2) They giving us hope; (3) I just felt relief; (4) can resume role loving parent; (5) We almost need our own therapist; and, (6) Treatment access: There needs be hundred more. These collectively highlight both burden caring loved one with an ED parents' Overall, participants described as respite hope, enabling them reclaim aspects lives that had been overshadowed by disorder. Although "magic cure", viewed essential component broader continuum care. This highlights unique benefits model importance compassionate environment, underscoring supporting throughout process. Given critical carers outcomes, further deepen develop interventions support experiencing person primary people. prospectively registered Australian New Zealand Clinical Trials Registry (ANZCTR12621001651875p).

Language: Английский

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Pragmatic Indicated Prevention and Early Intervention for Disordered Eating: A Randomized Controlled Trial of Media Smart Targeted Internet Program in Youth

Journal of the American Academy of Child & Adolescent Psychiatry, Journal Year: 2025, Volume and Issue: unknown

Published: March 1, 2025

Language: Английский

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Caregiver factors influencing family-based treatment for child and adolescent eating disorders: a systematic review and conceptual model

PeerJ, Journal Year: 2025, Volume and Issue: 13, P. e19247 - e19247

Published: April 9, 2025

The need to assess and manage familial factors influencing family-based treatment (FBT) has been identified in the literature context of improving outcomes. While some studies have attempted address this need, results not unified into a framework date, no conceptual model exists bring these together for use clinical practice. A systematic review was conducted fill gap addressed following question: which caregiver influence FBT outcome child adolescent eating disorders? protocol registered PROSPERO (CRD42022338843) utilized PRISMA framework. total 1,994 were returned from EBSCO Host, Embase, ProQuest, PubMed Central, SCOPUS Web Science. Screening 164 full-text-review with third-party replication reduce risk bias. Thirty-nine articles included organized an evidence hierarchy including both quantitative qualitative methodologies. Heterogeneity data precluded meta-analysis; synthesized grouped using systematic-narrative approach. Influential eight domains: capacity, confidence, readiness, internalizing factors, externalizing food-related support network family function. Factors within each domain their on reported. model, (Care-FIT) produced as graphical representation domains by frequency appearance. Caregiver can significantly impact outcome, given importance role treatment, effective identification management is warranted. be used case formulation further exploration degree are influential. Identifying likely facilitate enhance recovery.

Language: Английский

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Psychological well-being and needs of parents and carers of children and young people with mental health difficulties: a quantitative systematic review with meta-analyses

BMJ Mental Health, Journal Year: 2024, Volume and Issue: 27(1), P. e300971 - e300971

Published: Jan. 1, 2024

Question For parents of children and young people (CYP) with diagnosed mental health difficulties, what are the levels parents’ well-being psychological need? Study selection analysis Medline, PsycINFO, EMBASE, AMED, CINAHL, Web Science Cochrane Library Registered Trials were searched from inception to June 2023. Inclusion criteria: CYP aged 5–18 years formal diagnosis. Data extracted validated measures or needs established cut-off points a controlled study. Findings 32 73 310 records screened included. Pooled means showed clinical range scores for one measure depression, all included anxiety, parenting stress general stress. Meta-analyses greater depression (g=0.24, 95% CI 0.11 0.38) (g=0.34, 0.20 0.49) in difficulties versus those without. Mothers reported (g=0.42, 0.18 0.66) anxiety (g=0.73, 0.27 1.18) than fathers. Narrative synthesis found no clear patterns relation condition. Rates clinically relevant distress varied. Typically, scored above threshold. Quality appraisal revealed few studies clearly defined control group, attempts important variables such as parent gender. Conclusions The somewhat mixed results suggest may be common, sometimes high depression. Assessment support problems is required. Further studies, consideration pre-existing parental PROSPERO registration number CRD42022344453.

Language: Английский

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