Care burden, loneliness, and social isolation in caregivers of people with physical and brain health conditions in English‐speaking regions: Before and during the COVID‐19 pandemic

International Journal of Geriatric Psychiatry, Journal Year: 2022, Volume and Issue: 37(6)

Published: May 2, 2022

Abstract Background Public health restrictions due to the COVID‐19 (SARS CoV‐2) pandemic have disproportionately affected informal caregivers of people living with long term conditions. We aimed explore levels care burden, loneliness, and social isolation among enduring physical brain conditions in English‐speaking regions worldwide, by investigating outcomes before during pandemic. Methods A cross‐sectional anonymous online survey data from 2287 four (UK, Ireland, USA, New Zealand) included measures isolation, reported Analyses were descriptive, followed an ordinal regression model for predictors burden. Results Compared pre‐pandemic levels, all experienced a significant increase isolation. Caregivers both most burdened had highest loneliness compared either or condition only. The burden challenges was associated caregiver's gender, moderate severe emotional magnitude frequency pandemic, circumstances (cohabitation recipient, on ability provide care). Conclusions Health interventions should target caregivers' psychological outcomes, particularly women, accounting additional care, resulting pandemic‐related restrictions.

Language: Английский

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Multi-level factors of Chinese American family caregivers of individuals with dementia during COVID-19

Geriatric Nursing, Journal Year: 2025, Volume and Issue: 62, P. 200 - 206

Published: Feb. 11, 2025

Language: Английский

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Caregiver mental, behavioral, and social health during the COVID-19 pandemic in South Africa: results from the Asenze cohort study

Social Psychiatry and Psychiatric Epidemiology, Journal Year: 2025, Volume and Issue: unknown

Published: Feb. 21, 2025

Language: Английский

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Impact of Social Isolation and Loneliness in Older Adults: Current Understanding and Future Directions

Current Geriatrics Reports, Journal Year: 2023, Volume and Issue: 12(3), P. 138 - 148

Published: June 24, 2023

Language: Английский

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Analysis of Caregiver Burden Expressed in Social Media Discussions

International Journal of Environmental Research and Public Health, Journal Year: 2023, Volume and Issue: 20(3), P. 1933 - 1933

Published: Jan. 20, 2023

Almost 40% of US adults provide informal caregiving, yet research gaps remain around what burdens affect caregivers. This study uses a novel social media site, Reddit, to mine and better understand online communities focus on as their caregiving burdens. These forums were accessed using an application programming interface, machine learning classifier was developed remove low information posts, topic modeling applied the corpus. An expert panel summarized forums’ themes into ten categories. The largest theme extracted from Reddit’s discussed personal emotional toll being caregiver. followed by logistic issues while caring for parents who have cancer. Smaller included approaches end-of-life care, physical equipment needs when use wearables or technology help monitor care recipients. platform often discusses which may reflect age users. confirms that Reddit are used caregivers discuss associated with role types stress can result caregiving.

Language: Английский

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Impact of COVID-19 Pandemic on Caregivers of People with an Intellectual Disability, in Comparison to Carers of Those with Other Disabilities and with Mental Health Issues: A Multicountry Study

International Journal of Environmental Research and Public Health, Journal Year: 2023, Volume and Issue: 20(4), P. 3256 - 3256

Published: Feb. 13, 2023

Carers supporting people with an intellectual disability often rely on others to manage the burden of care. This research aims compare differences between carer groups and understand predictors loneliness changes for carers disability. Data from international CLIC study were analysed. In total, 3930 responded four groups; who care those mental health difficulties (

Language: Английский

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Care partner needs of people with neurodegenerative disorders: What are the needs, and how well do the current assessment tools capture these needs? A systematic meta‐review

International Journal of Geriatric Psychiatry, Journal Year: 2022, Volume and Issue: 37(7)

Published: May 24, 2022

The burden on care partners, particularly once dementia emerges, is among the greatest of all caregiving groups. This meta-review aimed to (1) synthesis evidence self-reported needs partners supporting people living with neurodegenerative disorders; (2) compare according partner and recipient characteristics; (3) determine face validity existing assessment tools.

Language: Английский

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Characteristics of older unpaid carers in England: a study of social patterning from the English Longitudinal Study of Ageing

Age and Ageing, Journal Year: 2024, Volume and Issue: 53(3)

Published: March 1, 2024

Abstract Background A growing number of older people provide unpaid care, but contemporary research evidence on this group is limited. Aim This study aims to describe the characteristics who care and how these vary by socioeconomic position. Methods Using recent information from English Longitudinal Study Ageing (ELSA wave 9, 2019), we analysed cross-sectional data 1,282 carers aged ≥50. Data sociodemographics, health, social wellbeing, intensity caregiver–recipient relationships were extracted. Total net non-pension wealth quintiles used as a relative measure Differences between poorest richest examined through logistic regression. Findings Most in ELSA female looking after another person. Poor mental physical health isolation common, socially patterned. Compared with middle group, more likely be living person they cared for (odds ratio (OR) 1.56 [95% confidence interval (CI) 1.03–2.36]) experience loneliness (OR 2.29 CI 1.42–3.69]), dependency (i.e. need help activities daily living) 1.62 1.05–2.51]), chronic pain 1.81 1.23–2.67]), higher diseases 1.75 1.15–2.65]) fair/poor self-rated 2.59 1.79–3.76]). The also less have high quality life 0.51 0.33–0.80]) or work 0.33 0.19–0.59]). Conclusion Our findings suggest that financially disadvantaged (and their households) may greatest needs intervention support. Focussing resources has potential address inequalities.

Language: Английский

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Loneliness and social isolation among informal carers of individuals with dementia: A systematic review and meta‐analysis

International Journal of Geriatric Psychiatry, Journal Year: 2024, Volume and Issue: 39(5)

Published: May 1, 2024

This systematic review and meta-analysis aimed to determine the prevalence of loneliness social isolation among informal carers individuals with dementia identify potential influencing factors.

Language: Английский

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Coping with Emotional Distress via Self-Disclosure to Robots: Intervention with Caregivers

Published: Feb. 7, 2023

People often engage in various forms of self-disclosure and social sharing with others when trying to regulate the impact emotional distress. Here we introduce a novel long-term mediated intervention aimed at supporting informal caregivers cope distress via self-disclosing their emotions needs robot. Research has shown that struggle managing practical demands caregiving situation, also highlights lack support paucity interaction some experience. Accordingly, were interested extent caregivers' behaviour towards robot (Pepper, SoftBank Robotics) over time, how (social usability-related) perceptions develop time. Moreover, wished examine this made feel (in terms reported mood, as comforting, feelings loneliness, stress), which interacting affected these individuals' emotion regulation. Informal conversed Pepper 10 times across 5 weeks about general everyday topics. Our results show self-disclosed increasingly more time perceived it competent Furthermore, participants' moods positively changed after robot, they comforting Participants feeling less lonely stressed. Finally, our showed for weeks, being accepting reappraising positively, experiencing fewer blame others. These set stage situating robots conversational partners settings, well highlight communicating holds potential providing people coping

Language: Английский

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