Cerebral palsy registers around the world: A survey
Developmental Medicine & Child Neurology,
Journal Year:
2023,
Volume and Issue:
66(6), P. 765 - 777
Published: Nov. 9, 2023
Abstract
Aim
To
provide
a
description
of
cerebral
palsy
(CP)
registers
globally,
identify
which
aim
to
report
on
CP
epidemiology,
and
similarities
differences
across
topics
importance
for
the
sustainability
collaboration
between
registers.
Method
Representatives
all
known
globally
(
n
=
57)
were
invited
participate.
The
online
survey
included
68
questions
aims,
methodologies,
output/impact,
stakeholder
involvement.
Responses
analysed
using
descriptive
statistics.
Results
Forty‐five
participated,
including
three
register
networks.
Twenty
newly
established
or
under
development,
12
in
low‐
middle‐income
countries
(LMICs).
An
epidemiological
was
reported
by
91%
Funding
is
received
85%
registers,
most
often
from
not‐for‐profit
organizations.
definitions
are
comparable
While
minimum
data
set
network
used
only
25%
identified
items
collected
Ninety
per
cent
measure
research
activities/output,
64%
impact.
People
with
lived
experience
involved
62%
Interpretation
There
has
been
recent
surge
particularly
LMICs,
will
improve
understanding
epidemiology.
Ongoing
efforts
address
methodological
essential
validate
comparison
results
support
collaboration.
What
this
paper
adds
Cerebral
represent
an
increasing
number
regions,
middle‐income,
worldwide.
Most
collect
network.
Research
activities/output
impact
measured
majority
involve
people
operation
research.
Language: Английский
Providing holistic care to children with cerebral palsy treated with transnasal neural stem cell transplantation
Frontiers in Pediatrics,
Journal Year:
2024,
Volume and Issue:
11
Published: Jan. 5, 2024
Objective
Holistic
care
is
a
key
element
in
nursing
care.
Aiming
at
the
heterogeneous
disease
of
cerebral
palsy,
researchers
focused
on
children
with
palsy
who
received
transnasal
transplantation
neural
stem
cells
as
specific
group.
Based
establishing
multidisciplinary
team,
comprehensive
carried
out
for
this
type
patient
during
perioperative
period
to
improve
effectiveness
and
safety
clinical
research
increase
comfort
children.
Methods
Between
January
2018
June
2023,
22
underwent
three
transplants
cells.
Results
No
adverse
reactions
related
immune
rejection
were
observed
hospitalization
follow-up.
All
tolerated
treatment
well,
was
superior.
One
child
developed
nausea
vomiting
after
sedation;
had
small
amount
bleeding
nasal
mucosa
transplantation.
Two
low
fever
(≤38.5°C),
one
change
frequency
complex
partial
seizures.
Moreover,
3
experienced
patch
shedding
within
4
h
implantation
into
cavity.
Conclusion
The
project
team
adopted
cell
technology.
characteristics
neurological
diseases
children,
novel
holistic
plan
proposed.
It
great
significance
guide
caregivers
complete
proper
care,
further
treatment,
reduce
occurrence
complications.
Language: Английский
Social Work and Motivation for Rehabilitation in Children with Disorders of the Musculoskeletal System
Social Work in Public Health,
Journal Year:
2024,
Volume and Issue:
39(2), P. 210 - 219
Published: Feb. 17, 2024
The
relevance
of
the
presented
article
is
due
to
lack
information
on
impact
social
work
in
development
rehabilitation
motivation
children
with
disorders
musculoskeletal
system.
This
research
aimed
evaluate
role
shaping
disorders.
Using
a
questionnaire,
study
involved
43
and
their
carers
who
received
support
20
did
not.
Analysis
revealed
significant
correlation
between
absence
outcomes.
results
underlined
value
rehabilitation,
predominantly
positive
response
its
methods
data
also
suggested
that
could
increase
likelihood
unfavorable
By
highlighting
need
for
comprehensive
treatment
strategies,
this
provides
basis
improving
approaches.
Addressing
challenges
highlighted
pave
way
optimized
public
health
strategies.
Language: Английский
Task-oriented training effect on promoting motor skills and daily physical activities in learners with musculoskeletal impairment
Adilbek Baygaliev,
No information about this author
Laura Butabayeva,
No information about this author
Akbota Autayeva
No information about this author
et al.
Journal of Education and e-Learning Research,
Journal Year:
2024,
Volume and Issue:
11(2), P. 272 - 282
Published: April 1, 2024
Children
frequently
suffer
from
motor
impairments
which
hinder
their
development.
Every
movement
requires
stability
therefore;
musculoskeletal
malfunction
leads
to
poor
movement.
Task-oriented
training
is
one
of
many
methods
and
techniques
used
promote
skills
daily
physical
activities
in
children.
The
present
study's
goal
investigate
how
task-oriented
contributes
developing
learners
with
cerebral
palsy.
study
employed
a
mixed-
data
collection
strategy.
included
total
12
students
promotion
child's
abilities
regular
activity
can
be
accomplished
the
help
training.
findings
supported
our
hypothesis
that
has
been
devised
series
exercises
increase
range
motion
(flexibility)
led
positive
dynamics
all
groups
indicators
regardless
severity
pathology.
proposed
program
allowed
children
muscle
strength
joints.
Thus,
after
experimental
work,
functional
state
system
improved
qualitative
significant
changes
occurred
independence
learners.
It
suggested
teachers
use
when
instructing
school-age
who
have
this
disorder.
Language: Английский
Determining Prevalence and Identifying Risk Factors for Cerebral Palsy among Saudi Neonates: Insights from a Cross-sectional Analysis
Mohammed Sami Aleid,
No information about this author
Marah Abdulhadi Alhamoud,
No information about this author
Layan Abdulmunem Al Abbas
No information about this author
et al.
Published: April 1, 2024
Abstract
Introduction:
Cerebral
palsy
(CP)
is
a
chronic
neurodevelopmental
disease
characterised
by
impairments
in
movement
and
posture,
resulting
from
non-progressive
brain
insults
during
infant
or
child
development.
Affecting
about
third
of
those
diagnosed,
CP
underscores
its
complexity
variability
as
leading
cause
physical
disability
children.
This
study
aims
to
explore
the
prevalence
risk
factors
Saudi
infants,
addressing
gap
understanding
CP’s
characteristics
context
global
implications.
Methods:
A
comprehensive
cross-sectional
study,
conducted
across
various
geographic
areas
healthcare
settings
Arabia
August
November
2023,
was
designed
investigate
infants.
The
encompassed
2005
participants,
primarily
infants
aged
0–2
years,
selected
through
random
stratified
sampling.
inclusion
criteria
targeted
adults
18
years
older,
mainly
parents
legal
guardians
while
excluding
unable
provide
informed
consent.
Data
collection
involved
structured
interviews,
medical
record
reviews
clinical
examinations
focusing
on
demographic
information,
maternal
health
history
factors.
Results:
analysis
participants
highlighted
majority
35–44-year
age
range,
predominantly
females
with
bachelor’s
degree,
largely
residing
Arabia’s
Eastern
Province.
Key
findings
revealed
no
significant
association
between
low
birth
weight.
However,
developmental
delays
motor
difficulties
were
notably
associated
CP.
In
addition,
infections
pregnancy
identified
influencing
diagnosis,
highlighting
multifactorial
nature
importance
early
intervention
awareness.
Conclusion:
reveals
critical
insights
into
among
particularly
identifying
role
key
factor
challenging
traditional
weight
These
fill
gaps
existing
research,
offering
new
perspectives
for
public
approaches.
calls
re-evaluation
protocols
strategies,
emphasising
need
detection
treatment
mitigate
risk,
opens
avenues
future
research
prenatal
preventive
measures.
Language: Английский