Parent Empowerment in Pediatric Healthcare Settings: A Systematic Review of Observational Studies

Patient, Journal Year: 2018, Volume and Issue: 12(2), P. 199 - 212

Published: Oct. 17, 2018

Language: Английский

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Coaching approaches in early intervention and paediatric rehabilitation

Developmental Medicine & Child Neurology, Journal Year: 2020, Volume and Issue: 62(5), P. 569 - 574

Published: Feb. 17, 2020

Currently, coaching is increasingly applied to foster the involvement of families with an infant or young child special needs in early intervention and paediatric rehabilitation. Coaching practices are included many forms regarded as essential reach beneficial outcomes for family. There are, however, ambiguities that blur concept hamper its understanding integration evidence‐based approach rehabilitation: lack differentiation between training families, example. Challenges incorporate into professional practice relate adult learning processes knowledge acquisition, transformation attitudes, beliefs, treatment habits. In this paper, we review barriers encountered possibilities available promote successful implementation childhood interventions. What paper adds Literature defines ambiguously, which hampers intervention. The term ‘coaching’ should be reserved relationship‐directed, family‐centred

Language: Английский

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Collaboration: How does it work according to therapists and parents of young children? A systematic review

Child Care Health and Development, Journal Year: 2023, Volume and Issue: 50(1)

Published: Sept. 19, 2023

Abstract Background Collaboration between therapists and parents of children with developmental disabilities is a key element family‐centred care. In practice, collaboration appears to be challenging for both therapists. This systematic review aims make explicit how can optimise their young disabilities, according the perspectives Methods A was conducted using following databases: Medline (PubMed), CINAHL (OVID) PsychINFO (OVID). Those papers were selected, which focused on two‐way interaction parents, exploring and/or 2 6 years. Papers needed published in English or Dutch 1998 July 2021. Included synthesised qualitative analysis approach by two researchers independently. Results sections analysed line‐by‐line, codes formulated discussed all authors. Codes aggregated, resulting synthesis specific strategies combined strategy clusters. The search generated 3439 records. total, 24 selected. Data resulted an overview organised into five clusters: (1) continuously invest time your (2) aware important role (3) tailor approach, (4) get know family (5) empower become collaborative partner. Conclusions concrete use disabilities. enable consciously decide each individual parent. Making these facilitates change practice from therapist‐led child‐centred towards

Language: Английский

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Family‐centred care interventions for children with chronic conditions: A scoping review

Health Expectations, Journal Year: 2024, Volume and Issue: 27(1)

Published: Feb. 1, 2024

Children with chronic conditions have greater health care needs than the general paediatric population but may not receive that centres their and preferences as identified by families. Clinicians researchers are interested in developing interventions to improve family-centred need information about characteristics of existing interventions, development domains they address. We conducted a scoping review aimed identify characterize recent designed experiences for children conditions.

Language: Английский

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Goal setting in paediatric rehabilitation for children with motor disabilities: a scoping review

Clinical Rehabilitation, Journal Year: 2018, Volume and Issue: 32(7), P. 954 - 966

Published: Feb. 23, 2018

The three objectives of this scoping review were to (1) identify key conceptual/theoretical frameworks and the extent which they are used inform goal setting related rehabilitation with children motor disabilities, (2) describe research that has evaluated processes outcomes, (3) summarize purposes described in paediatric literature.The process by Arksey O'Malley was guide article selection data extraction.A total 62 articles included final review. While concept family-centered care well represented, theoretical specific (i.e. theory Locke Latham, mastery motivation, social cognitive, personal construct, self-determination theories) rarely addressed. No reviewed addressed prominent behavior change theory. With exception description tools specifically designed for use children, role child generally absent or not described. Few studies ( n = 6) discussed linkage between goals intervention strategies explicitly. Only two outcomes associated setting. primary purpose identified literature develop meaningful families 49).The results highlight significant gaps explicating a sound basis evaluating effects qualities on achievement outcomes.

Language: Английский

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Development of an observational measure of therapy engagement for pediatric rehabilitation

Disability and Rehabilitation, Journal Year: 2017, Volume and Issue: 41(1), P. 86 - 97

Published: Sept. 10, 2017

Purpose: The Pediatric Rehabilitation Intervention Measure of Engagement-Observation (PRIME-O) version was designed to capture signs affective, cognitive and behavioral involvement for clients service providers in the client-provider interaction.Methods: Phase 1 examined interrater consensus construct validity a pilot version, using observer ratings engagement indicators made while viewing videos therapy sessions differing high low (Sample 1). 2 these properties 10-item (Samples 3). 3 content observed child, youth parent engagement, as reported an interview study involving 10 providers.Results: There excellent both versions significantly discriminated between providing evidence validity. Content demonstrated by provider reports signs. More were children more parents, developmental appropriateness PRIME-O.Conclusions: PRIME-O provides multifaceted view components pediatric rehabilitation. has potential utility research, clinical practice continuing education.Implications RehabilitationMeasures are needed identify factors associated with successful positive client outcomes.The is observational measure that captures providers.The may further help understanding strategies can use facilitate optimal state within session.Clinical be enhanced attending client's signals therapy.The accurately disengagement, monitor their own success creating engaging intervention atmosphere, instigate optimize engagement.

Language: Английский

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The Nature, Value, and Experience of Engagement in Pediatric Rehabilitation: Perspectives of Youth, Caregivers, and Service Providers

Developmental Neurorehabilitation, Journal Year: 2019, Volume and Issue: 23(1), P. 18 - 30

Published: May 1, 2019

Purpose: To conduct a qualitative investigation of engagement in pediatric rehabilitation therapy.Methods: Interviews were conducted with 10 youth, caregivers, and service providers. Transcripts analyzed thematically using an inductive approach.Results: Themes illustrated three perspectives: as connection components the therapy process, working together, affective motivational process. Engagement created valued connections forward momentum for therapy.Conclusions: The themes supported view complex, transactional, multidimensional. Participants focused on different, yet not discrepant, aspects engagement. Youth having fun personal Caregivers provided more complex perspective encompassing both their own child's engagement, emphasis relationship, understanding what is taking place, feeling Service providers highlighted goal attainment value bringing about outcomes.

Language: Английский

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Parent engagement and disengagement in paediatric settings: an occupational therapy perspective

Disability and Rehabilitation, Journal Year: 2019, Volume and Issue: 42(20), P. 2882 - 2893

Published: April 11, 2019

Purpose: This study aimed to understand parent engagement and disengagement in the delivery of occupational therapy their children.Methods: used a qualitative interpretive description methodology. Focus groups individual interviews were employed. Thirty-two therapists participated focusgroups or one-on-one interviews. Thematic analysis was analyse data.Results: data revealed two overarching themes which influenced therapy: (1) Parent-therapist relationship and; (2) Therapist responsiveness. Within these themes: feelings; time timing therapy; levels factors influencing evident.Conclusions: Findings contribute understanding therapy. The findings extend current models therapeutic informed by self-determination theory (SDT). Autonomy-, relatedness- competence-supportive SDT strategies enhance are described.Implications for RehabilitationOccupational reported that parents experience range feelings when engaged disengaged These related hopelessness, having confidence therapist feeling supported, validated empowered. Parent described as occurring at different levels: it works well (engaged); idea but not doing (middle ground engagement); doesn't work (disengagement).Occupational importance being aware how factor family, service characteristics can variously impact therapy.Occupational focus on parent-therapist responsive needs engaging draw principles from guide them regarding selection engage

Language: Английский

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Quality of Early Intervention Program Services in Mother-Child Health Care Centers for At-Risk Population: Multiple Perspectives

Physical & Occupational Therapy In Pediatrics, Journal Year: 2025, Volume and Issue: unknown, P. 1 - 17

Published: March 10, 2025

Mother-Child Health Centers in Israel offer comprehensive health-care services, including unique screening programs that serve as important preventive services for families of lower socioeconomic status. This study aimed to explore the service quality regarding family-centered care and professionalism from perspectives parents, providers, observers. Eighty-nine Arabic-speaking parents children (M = 17.4, SD 11.7) East Jerusalem completed socio-demographic, self-efficacy, care, child development questionnaires. Five providers demographic-professional questionnaires; two occupational therapists observation forms. Most reported moderate half had suspected/detected developmental delays. Parents rated enabling, partnership respectful highly, with low scores providing information. Observations indicated higher professional referrals listening but adapted-written Content analysis revealed main categories knowledge provision parent-provider interaction sub-categories. highlights value assessing early intervention multiple perspectives, confirming high-quality between recipients is essential successful while emphasizing need socio-cultural adjustments. Further research involving large samples diverse at-risk populations, long-term assessment recommended refine enhance these services.

Language: Английский

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Evaluating a Family Capacity-Building Service: Are We Doing More Good Than Harm?

Canadian Journal of Occupational Therapy, Journal Year: 2025, Volume and Issue: unknown

Published: March 13, 2025

Background. Parents of children with special needs are more likely to experience stress and have health-related problems. Pediatric occupational therapy interventions that build parents’ capacity often considered be effective. It remains unclear how they can offered without overburdening parents. Purpose. The purpose this article is share the findings from evaluation a flexible capacity-building service seven families. Method. A convergent parallel mixed methods design was used document therapists’ perspectives on services, including outcomes, strengths, weaknesses, opportunities, threats. Findings. reported understanding their better, having positive attitudes toward challenges experienced, feeling confident could help them, satisfactory family routines. importance for therapists develop nonjudgmental collaborative relationships, use time available families what matters most in daily lives came out particularly loudly. Conclusion. This study provides concrete example it possible families’ capacities them. also guidance establishments wishing take step back think about capacities.

Language: Английский

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