Illuminating their reality: the use of metaphor by parents of children with disabilities to express their experiences of health care
Disability and Rehabilitation,
Journal Year:
2024,
Volume and Issue:
unknown, P. 1 - 11
Published: May 6, 2024
Purpose
To
explore
the
nature
and
meaning
of
metaphors
used
by
parents
children
with
disabilities
when
describing
their
healthcare
experiences.
Language: Английский
Negotiating expectations for therapy between mothers and service providers: a narrative analysis
Disability and Rehabilitation,
Journal Year:
2022,
Volume and Issue:
45(18), P. 2946 - 2956
Published: Sept. 5, 2022
To
use
stories
about
mothers
and
service
providers
negotiating
expectations
for
therapy
to
illuminate
processes
contributing
power
differences
within
partnerships.This
narrative
study
presented
from
three
providers.
Stories
were
co-constructed
between
participants
researchers
analyzed
using
analysis.
Building
on
An
Palisano's
(2014)
Model
of
Family-Professional
Collaboration,
organized
into
the
stages
goal
setting,
planning,
doing
therapy.Each
story
illuminated
a
process
unique
that
can
redistribute
mothers,
providers,
environments
while
expectations:
protecting
sacred
issues,
facilitating
knowledge
exposure,
filling
voids/vacuums,
recognizing
cultural
conditioning,
re-discovering
eclipsed
roles,
connecting
relay
teams.
We
propose
including
additional
strategies
model
increase
readiness
negotiate
collaborate
fully
as
intends:
1)
exploring
power-sharing
conversations;
2)
looking
social
context
clues;
3)
adopting
humility
stance.Information
six
help
structure
client
grounded
in
optimal
negotiation
equal
partnerships.Implications
RehabilitationKnowledge
diverse
be
resource
guide
actions
related
situations.Leaving
topic
implicit
or
unchallenged
increases
risks
negotiations
remain
unbalanced
unproductive.Service
may
enhance
collaboration
with
paediatric
rehabilitation
by
conversations,
clues,
stance.
Language: Английский
“What their expectations could be”: a narrative study of mothers and service providers in paediatric rehabilitation
Disability and Rehabilitation,
Journal Year:
2022,
Volume and Issue:
45(20), P. 3238 - 3251
Published: Oct. 3, 2022
To
better
understand
and
visualise
how
why
mothers'
service
providers'
expectations
for
therapy
can
change
over
time
spanning
their
journeys
careers
in
the
paediatric
rehabilitation
system.Narrative
analysis
was
used
to
construct
two
parallel
collective
stories
that
illustrate
explain
phases
turning
points
of
developing
expectations.
Five
mothers
nine
providers
participated
interviews
discussing
when
new
more
experienced
with
therapy.Each
story
had
five
chapters
illustrating
became
relational,
controllable,
informed.
For
mothers,
were:
(1)
expecting
be
a
saviour;
(2)
being
turned
away
alone;
(3)
advocate
from
necessity;
(4)
finding
solutions
environment;
(5)
combine
mother
provider
expertise.
providers,
rescue
fix;
searching
an
alternative
sense
professional
worth;
lose
control;
authentic
self
before
expected
self;
unexpected.Mothers'
experiences
feeling
alone
learning
ways
modify
child's
environments,
inadequate
embracing
authenticity,
were
essential
developmental
trajectories
expectations.Implications
Rehabilitation:Mapping
on
line
graph
shaped
as
wave
shows
promise
reflecting
trajectory
time.Service
should
become
aware
work
three
distinct
groups
determined
by
phase
they
are
currently
experiencing
(i.e.,
hyped,
disillusioned,
or
enlightened).Therapy
programmes
optimise
through
redesigns
emphasise
elements
networking,
self-compassion,
ethics,
authenticity.
Language: Английский
Parental expectations of residential immersive life skills programs for youth with disabilities and their perception of youth changes
Disability and Rehabilitation,
Journal Year:
2024,
Volume and Issue:
unknown, P. 1 - 10
Published: Nov. 11, 2024
This
study
explored
parents'
expectations
before
their
youth
with
a
disability
attended
Residential
Immersive
Life
Skills
(RILS)
program,
and
perceptions
of
change
over
the
following
12
months.
Understanding
is
important
because
parents
play
key
role
in
shaping
youth's
ongoing
development
future
hopes
when
they
return
home.
Language: Английский
Seeing the light versus being in the dark: parent, child, and service providers’ use of metaphors to express system complexity, therapy engagement, and personal experiences of adaptation
Disability and Rehabilitation,
Journal Year:
2023,
Volume and Issue:
46(18), P. 4176 - 4186
Published: Oct. 9, 2023
To
describe
parent,
child,
and
service
providers'
use
of
metaphors
to
communicate
the
meaning
participation
in
life
therapy
engagement
field
childhood
disability.
Language: Английский
Barriers and facilitators to paediatric caregivers’ participation in virtual speech, language, and hearing services: A scoping review
Digital Health,
Journal Year:
2023,
Volume and Issue:
9
Published: Jan. 1, 2023
Purpose
Virtual
care-related
technologies
are
transforming
the
way
in
which
health
services
delivered.
A
growing
number
of
studies
support
use
virtual
care
field
audiology
and
speech-language
pathology;
however,
there
remains
a
need
to
identify
understand
what
influences
caregiver
participation
within
that
is
family-focused.
This
review
aimed
identify,
synthesize,
summarize
literature
around
reported
barriers
facilitators
speech/hearing
assessment
and/or
intervention
appointments
for
their
child.
Methods
scoping
was
conducted
following
Joanna
Briggs
Institute
manual
evidence
synthesis.
search
using
six
databases
including
MEDLINE,
CINAHL,
SCOPUS,
ERIC,
Nursing
Allied
Health,
Web
Science
collect
peer-reviewed
interest.
Data
extracted
according
protocol
published
on
Figshare,
outlining
predefined
data
extraction
form
strategy.
Results
variety
service
delivery
models
technology
requirements
were
identified
across
48
included
studies.
Caregiver
found
vary
levels
attendance
involvement
eight
categories:
Attitudes,
child
behavioral
considerations,
environment,
opportunities,
provider-family
relationship,
role
process,
support,
technology.
Conclusions
presents
description
key
categories
influence
appointments.
Future
research
needed
explore
how
findings
can
be
used
family-centered
provide
strategic
benefiting
outcomes
care.
Language: Английский
Metaphors of mindfulness in pediatric occupational therapy practice
British Journal of Occupational Therapy,
Journal Year:
2023,
Volume and Issue:
86(9), P. 630 - 638
Published: June 17, 2023
Introduction:
Metaphors
are
commonly
used
linguistic
devices
that
can
encourage
deep
reflection
and
offer
new
insight.
have
been
within
the
both
occupational
therapy
mindfulness
literature
to
describe
complex
phenomena.
The
aim
of
this
phenomenological
study
was
identify,
analyze,
interpret
metaphors
by
pediatric
therapists
in
their
clinical
practices
with
children
youth.
Method:
Eight
North
American
Occupational
Therapists
participated
semi-structured
interviews
which
were
transcribed
verbatim.
Transcripts
read
identify
idiographic
or
naturally
occurring
participants.
also
elicited
from
participants
as
an
interview
question.
Findings:
Three
themes
identified
participants’
mindfulness:
a
tool,
exploration,
support.
Two
additional
themselves
facilitators
therapist
guide,
gardener.
Elicited
generally
aligned
for
while
some
offered
unique
insights.
Conclusion:
findings
open
conversations
about
therapists’
framing
use
context
therapy.
Language: Английский