‘Pushing back’: People newly diagnosed with dementia and their experiences of the Covid‐19 pandemic restrictions in England DOI
Josie Dixon, Ben Hicks, Kate Gridley

et al.

International Journal of Geriatric Psychiatry, Journal Year: 2022, Volume and Issue: 37(10)

Published: Aug. 19, 2022

Research into people with dementia's experiences of the Covid-19 pandemic has tended to focus on vulnerabilities and negative outcomes, risk reproducing a discourse in which dementia are positioned as passive. Informed by concepts positioning 'active social agents', we aimed identify pandemic-related challenges faced recently diagnosed examine ways they actively coped with, adapted to, these challenges.In-depth interviews 21 dementia, recruited through an existing national cohort. Data was analysed thematically using Framework.Key included reduced contact, loneliness loss routines; difficulties accessing trusting health services; dementia-unfriendly practices; disparate being able 'get out' physical neighbourhood. People responded maintaining extending their networks making most 'nodding acquaintances'; learning new skills, for communication hobbies; supporting others, engaging reciprocal exchange valuing connection peers; seeking help advocacy challenging resisting adapting habitual spatial practices determined out'; employing similar emotional coping strategies dementia.Support especially during public crises when carers services under pressure, should involve utilising capacities, appropriately acquisition knowledge 'safety-netting' availability named professional, support use 'check-in calls' creating supportive environmental circumstances sustain own well-being.

Language: Английский

Facilitators and Barriers to Using Virtual Reality and its Impact on Social Engagement in Aged Care Settings: A Scoping Review DOI Creative Commons
Lillian Hung, Jim Mann,

Christine Wallsworth

et al.

Gerontology and Geriatric Medicine, Journal Year: 2023, Volume and Issue: 9

Published: Jan. 1, 2023

Aim: This scoping review aims to identify the facilitators and barriers implementation of VR technology in aged-care setting. Background: Virtual reality (VR) offers potential reduce social isolation loneliness through increased engagement settings. Methods Analysis: followed Joanna Briggs Institute methodology took place between March August 2022. The included a three-step search strategy: (1) identifying keywords from CINHAL, Embase, Medline, PsycInfo, Scopus, Web Science (2) conducting second using all identified index terms across selected databases; (3) searching reference lists articles reports for additional studies. Results: final 22 articles. analysis factors affecting aged care settings loneliness: (a) key are local champions staff training. (b) include technological adaptability, video quality, organizational culture. Conclusion: Existing evidence points as promising intervention decrease feelings improve older people living

Language: Английский

Citations

25
Life after lockdown: The experiences of older adults in a contactless digital world DOI Creative Commons
Benjamin A. Morrison, James Nicholson, Becca Wood

et al.

Frontiers in Psychology, Journal Year: 2023, Volume and Issue: 13

Published: Jan. 13, 2023

Introduction The digital response to the Coronavirus (COVID-19) pandemic and its effects on lives of older adults has been well-documented, but less is known about how they experienced post-lockdown re-emergence into a relatively contactless society. Methods We report findings from qualitative survey ( n = 93) subsequent interviews 9) with aged 50+, where describe their struggles some newly implemented interactions. These cover range settings include using payments, QR codes apps facilitate transactions in cafes, bars, restaurants. Results A thematic analysis our data revealed intrinsic (e.g. literacy) extrinsic malfunctioning technology) factors that limited social inclusion for these participants, sometimes even led moments public humiliation. Discussion Our shed light motivational underpin age-related divide, whilst also highlighting role self-directed agism limiting motivations learn new routines.

Language: Английский

Citations

19
Impact of digital assistive technologies on the quality of life for people with dementia: a scoping review DOI Creative Commons

Charlotte Schneider,

Marcia Nißen, Tobias Kowatsch

et al.

BMJ Open, Journal Year: 2024, Volume and Issue: 14(2), P. e080545 - e080545

Published: Feb. 1, 2024

Digital assistive technologies (DATs) have emerged as promising tools to support the daily life of people with dementia (PWD). Current research tends concentrate either on specific categories DATs or provide a generic view. Therefore, it is essence review different kinds and how they contribute improving quality (QOL) for PWD.

Language: Английский

Citations

6
A new model to understand the complexity of inequalities in dementia DOI Creative Commons
Clarissa Giebel

International Journal for Equity in Health, Journal Year: 2024, Volume and Issue: 23(1)

Published: Aug. 14, 2024

Abstract Many people living with dementia and unpaid carers experience inequalities in care related to challenges receiving a correct diagnosis, support. Whilst complexities of the evidence are well recognised including barriers diagnosis or post-diagnostic care, no coherent model has captured far-reaching types levels date. Building on established Dahlgren & Whitehead Rainbow health determinants, this paper introduces new Dementia Inequalities model. The model, similar original general rainbow categorises determinants well-being into three layers: (1) Individual; (2) Social community networks; (3) Society infrastructure. Each layer comprises which have been identified but also may be different dementia, such as age (specifically referring young- versus late-onset dementia) ethnicity, dementia-specific rare subtype, having an carer, knowledge about social workforce. its individual discussed existing research syntheses field, arguing for need A total 48 lived, caring, professional experiences consulted process development provides coherent, evidence-based overview can used commissioning services, support their better try create more equity care.

Language: Английский

Citations

6
Use and uptake of technology by people with dementia and their supporters during the COVID-19 pandemic DOI Creative Commons
Ana Barbosa, Ana Rita Ferreira,

Carolien Smits

et al.

Aging & Mental Health, Journal Year: 2023, Volume and Issue: 28(1), P. 83 - 94

Published: Jan. 17, 2023

Objective This rapid review aims to identify the types of technologies used by people with dementia and their supporters during COVID-19 pandemic, issues which influenced technology adoption within usual care routines.Methods PubMed, PsychInfo, Scopus, Cochrane COVID reviews were searched peer-review studies published since 2020. A total 18 included synthesised thematically.Results Of these, most conducted in community (n = 15) only 11) involved qualitative methods 11). The majority 12) focused on digital off-the-shelf low-cost solutions, such as free video conferencing platforms, access care, socialise or take part interventions. Whilst often well-accepted associated positive outcomes (such improved social connectedness), lack literacy support use technologies, limited appropriate technology, individuals' physical, cognitive, sensory difficulties, highlighted likely threaten these solutions. quality evidence was mixed, neither very robust nor easily generalisable may be attributed challenges conducting research pandemic need rapidly adapt a new reality.Conclusion While has fast-tracked its is continue beyond pandemic. We ensure this can leverage that are enabled empowered it.

Language: Английский

Citations

14
Using digital technologies to facilitate social inclusion during the COVID‐19 pandemic: Experiences of co‐resident and non‐co‐resident family carers of people with dementia from DETERMIND‐C19 DOI
Ben Hicks, Kate Gridley, Josie Dixon

et al.

International Journal of Geriatric Psychiatry, Journal Year: 2023, Volume and Issue: 38(2)

Published: Feb. 1, 2023

Abstract Background The COVID‐19 pandemic triggered rapid and unprecedented changes in the use of digital technologies to support people's social inclusion. We examined whether how co‐resident non‐co‐resident family carers people with dementia engaged during this period. Methods Throughout November 2020‐February 2021, we interviewed 42 from our DETERMIND‐C19 cohort. Preliminary analysis was conducted through Framework analysis, followed by an inductive thematic analysis. Findings Digital served as a Facilitator for inclusion enabling counter effects differing restrictions imposed on them so they could remain socially connected form sense solidarity, access resources information, engage cultural activities provide independence their caring role . However, these experiences were not universal discussed some C hallenges tech , which included preferences face‐to‐face contact, lack technological literacy issues associated accessibility technology. Conclusion Many Information Communication Technologies, lesser extent Assistive pandemic. Whilst experienced different challenges due where lived, broadly devices helped realise important facets well facilitated provided person dementia. reduce ‘digital divide’ all carers, findings suggest it is essential that services are attuned preferences, needs abilities.

Language: Английский

Citations

14
Social connectedness and the role of virtual reality: experiences and perceptions of people living with dementia and their caregivers DOI Creative Commons
Aisling Flynn, Attracta Brennan, Marguerite Barry

et al.

Disability and Rehabilitation Assistive Technology, Journal Year: 2024, Volume and Issue: 19(7), P. 2615 - 2629

Published: Feb. 19, 2024

People living with dementia are often at increased risk of becoming socially disconnected due to dementia-related challenges. In recent years, digital technology has been designed help address the social health people and provide opportunities promote or maintain their connectedness. This paper presents findings from phase two a participatory action research project, which explored caregiver's experiences perceptions connectedness potential role Virtual Reality (VR) in promoting maintaining same.

Language: Английский

Citations

5
‘I found it the only place that spoke the same language’: a thematic analysis of messages posted to an online peer support discussion forum for people living with dementia DOI Creative Commons
Catherine V. Talbot, Neil Coulson

Age and Ageing, Journal Year: 2023, Volume and Issue: 52(1)

Published: Jan. 1, 2023

Abstract Background Despite the proliferation of online support communities, little is known about how people with dementia engage them. Aim The aim this study was to explore content messages exchanged between members asynchronous Talking Point discussion forum. Method Using sub-forum ‘I have dementia’, 100 conversation threads were randomly selected yielding 863 individual for analysis. Our data set subjected reflexive thematic Results Three themes generated: journeying through dementia, reciprocal peer and therapeutic creativity. findings suggest that individuals used forum share their experiences obtaining adjusting a diagnosis, current symptoms they addressed challenges daily living as well impacts on mood, confidence connectedness. viewed safe space reflect future what it might hold them loved ones. Throughout these discussions, users supported each other, particularly in relation emotional impact diagnosis shared experiential information advice, referrals external sources commonplace. Discussion around role creativity evident its coping mechanism described. Through engagement, sense community companionship new welcomed, encouraged join in. appears be filling an important gap post-diagnostic provision, those rare forms dementia. Clinicians, workers organisations could consider recommending forums

Language: Английский

Citations

11
Exploring the views and the use of information and communication technologies to access post-diagnostic support by people living with dementia and unpaid carers: a systematic review DOI Creative Commons
Thaïs Caprioli, Stephen Mason,

Hilary Tetlow

et al.

Aging & Mental Health, Journal Year: 2023, Volume and Issue: 27(12), P. 2329 - 2345

Published: April 8, 2023

This systematic review examined how information communication technologies (ICT) has been used to access remote post-diagnostic support that address the needs people with dementia, or those of dyad, and explored care recipients' views on accessing remotely.Concepts relating dementia ICT were searched across six databases (PsychInfo, PubMed, Cochrane Library, CINAHL, Social Care Online, Web Science) in March 2021 updated 2022. Studies published from 1990 written English, German French considered for inclusion. Methodological quality was appraised using Hawker assessment tool reporting structured according PRISMA guidelines.The search yielded 8,485 citations. Following removal duplicates screening processes, 18 papers 17 studies included. described a range support, including medical follow-ups therapeutic sessions, often delivered one-to-one basis via videoconferencing software. Whilst relying assistance unpaid carers, directly engaged 13 studies. Accessing remotely appears feasible, nevertheless, mixed. Access frequently facilitated by supplying devices providing ongoing technological support.Accessing is likely benefit some recipients, however, prevent widening inequalities access, services within current hybrid landscape need accommodate who are digitally excluded. Future research should capture provided carers facilitate engagement support.

Language: Английский

Citations

11
‘I’d be lost without my smartphone’: a qualitative analysis of the use of smartphones and tablets by people living with dementia, mild cognitive impairment, and their caregivers DOI Creative Commons
Samantha A. Wilson, Paula Byrne, Sarah Rodgers

et al.

Aging & Mental Health, Journal Year: 2023, Volume and Issue: 28(4), P. 595 - 603

Published: May 4, 2023

Objectives Smartphone and tablet devices appear to offer some benefits for enhancing the quality of life people living with dementia, especially enabling them stay independent socially engaged in early stages disease. However, there remains a need understand ways that these may enhance lived experience mild cognitive impairment, their caregivers.Methods We interviewed 29 caregivers explore experiences attitudes towards smartphones tablets.Results generated three main themes: smart practice as person impairment; digital world, appropriate easily accessible support everyday living. Smart were seen valuable, versatile tools complete essential meaningful activities, necessary participate modern life. There was strong desire greater learn use facilitate well impairment.Conclusion The dementia impairment emphasises central role lives, research move beyond rehearsal what is needed co-production evaluation technology-based educational interventions.

Language: Английский

Citations

11