Journal of Mental Health Research in Intellectual Disabilities, Journal Year: 2024, Volume and Issue: unknown, P. 1 - 15
Published: Nov. 10, 2024
Background Previous research has demonstrated that individuals with intellectual and developmental disabilities (IDD) experience a variety of barriers in accessing mental health care family caregivers often play an integral role helping IDD navigate these systems. However, little focused on caregivers' perceptions services.
Language: Английский
Frontiers in Rehabilitation Sciences, Journal Year: 2024, Volume and Issue: 5
Published: Feb. 12, 2024
Background Children and youth with neurodevelopmental disabilities (NDDs) their caregivers are at a high risk of experiencing mental health challenges, that in turn can significantly affect functioning, productivity, quality life. In this already vulnerable population, difficulties now more frequently reported pronounced secondary to the isolation uncertainties experienced during pandemic. Our previous work has shown important services' gaps for children/youth NDDs families, highlighting need optimize tailor existing practices. Objective To explore barriers, facilitators, impact, solutions from perspectives HCPs CGs, describe common precursors challenges children these two groups. Methods triangulation mixed-method study design embedding quantitative qualitative approaches, participants completed survey semi-structured interview. Descriptive statistics hybrid inductive/deductive thematic approach were used data analysis. Results Over 700 utterances analyzed (247 [ n = 10], 531 clinicians 16]) included 143 173 statements related barriers/facilitators, respectively. Common ( 7 categories) identified feelings/perception self, behavioral physical manifestations, emotional dysregulation, school-related factors, among others. Clinicians widespread pediatric, family-centered services conveyed lacking resources/training meet demand. Caregivers indicated being only moderately satisfied when care was received. Salient facilitators by having an interdisciplinary team caregiver's engagement therapeutic processes. Participants recommended improvements increase accessibility mediate discrepancy between emergence received; must target broader population be comprehensive (e.g., care, addressing high-risk transition periods); training/toolkits support clinicians’ evidence-based practice. Conclusion findings emphasize necessity systematic standardized families. Enhancing caregiver support, adopting proactive, crucial improving quality. These proposed provide valuable insights shaping policies practices pediatric services.
Language: Английский
Citations
3
Journal of Intellectual Disability Research, Journal Year: 2023, Volume and Issue: 67(11), P. 1073 - 1095
Published: July 12, 2023
Abstract Background People with intellectual disability have a high risk of falls and falls‐related injuries. Although people are at increased falls, there is need to better understand the efficacy interventions that can help reduce address factors in this population. This systematic review aimed evaluate type, nature effectiveness undertaken community‐dwelling adults quality evidence. Method Four electronic databases were searched: Ovid MEDLINE, PsycINFO, CINAHL Plus Cochrane Library. Studies included if they involved aged 18 years or over, least 50% study participants had disability, community‐dwelling, evaluated any aiming falls. Study was assessed using National Institutes Health assessment tools. Reporting followed Preferred Items for Systematic Reviews Meta‐Analyses (PRISMA) guidelines. Results Seven studies eligible review, total 286 mean age 50.4 years. As only one randomised trial identified, narrative synthesis results undertaken. Five exercise interventions, clinic programme, stretch fabric splinting garments. Methodological varied (two rated as good, four fair, poor). Exercise terms type dosage, frequency intensity, most did not align recommendations successful prevention reported older people. While majority reduced differed methods reporting utilise statistical analyses outcomes. Conclusion identified small number intervention disability. several improvements fall outcomes, ability draw conclusions about limited by sample sizes few studies. Further large‐scale research required implement specifically
Language: Английский
Citations
2
Knowledge, Journal Year: 2024, Volume and Issue: 4(1), P. 68 - 84
Published: Feb. 21, 2024
Medical professionals are rarely trained to treat the unique healthcare needs and health disparities of people with intellectual developmental disabilities (IDD). The Curriculum in IDD Healthcare (CIDDH) eLearn course aims redress gaps delivery medical care IDD. An initial comprehensive evaluation CIDDH in-person training content had previously underscored its knowledge skill transfer efficacy for Mississippi providers. Training has recently become available nationwide through an online self-paced modality address physicians’ education needs. This study introduces applies a new framework called SEAM (Streamlined Evaluation Analysis Method) that offers promising avenue rendering follow-up appraisal after rigorous evidence program effectiveness been established. reduces data-reporting burden on trainees maximizes instructor–trainee contact time by relying abbreviated post-only questionnaire focused subjective trainee appraisals. It further methodological analytical complexity enhance programmatic self-assessment facilitate sound data interpretation when external evaluator is unavailable. Ratings from small sample early-cohort provide important test during CIDDH’s transition learning clinicians nationwide. Using SEAM, achieved high ratings this wave across various evaluative domains. concludes highlighting several implications SEAM.
Language: Английский
Citations
0
Journal of Autism and Developmental Disorders, Journal Year: 2024, Volume and Issue: unknown
Published: June 29, 2024
Language: Английский
Citations
0
Journal of Mental Health Research in Intellectual Disabilities, Journal Year: 2024, Volume and Issue: unknown, P. 1 - 15
Published: Nov. 10, 2024
Background Previous research has demonstrated that individuals with intellectual and developmental disabilities (IDD) experience a variety of barriers in accessing mental health care family caregivers often play an integral role helping IDD navigate these systems. However, little focused on caregivers' perceptions services.
Language: Английский
Citations
0