Journal of Medical Internet Research,
Journal Year:
2023,
Volume and Issue:
25, P. e44886 - e44886
Published: July 31, 2023
Promoting
online
peer
support
beyond
the
informal
sector
to
statutory
health
services
requires
ethical
considerations
and
evidence-based
knowledge
about
its
impact
on
patients,
care
professionals,
wider
system.
Evidence
effectiveness
of
digital
interventions
in
primary
is
sparse,
definitive
guidance
lacking
concerns
arising
from
use
social
media
as
a
means
for
health-related
research.
Existing
literature
examining
issues
with
mainly
focuses
apps,
electronic
records,
wearables,
telephone
or
video
consultations,
without
necessarily
covering
interventions,
does
not
always
account
settings
specifically.
Here
we
address
information
governance
aspects
undertaking
research
promotion
patients
by
clinicians,
related
medical
public
ethics.
Journal of Lifestyle and SDGs Review,
Journal Year:
2025,
Volume and Issue:
5(3), P. e05099 - e05099
Published: Feb. 25, 2025
Objective:
This
study
systematically
reviews
the
influence
of
social
media
on
health
narratives
in
context
Sustainable
Development
Goals
(SDGs),
focusing
its
impact
individual
behaviors,
public
communication,
and
emotional
support.
Method:
conducted
a
systematic
literature
review
following
PRISMA
guidelines,
using
thematic
analysis
to
identify
key
trends
insights
regarding
narratives.
Results
Discussion:
The
found
that
qualitative
research
is
most
effective
for
exploring
media’s
Patient
were
common
form
discourse,
primarily
platforms.
Social
facilitates
diverse
storytelling,
new
interactions,
challenges
traditional
perspectives.
It
enhances
support,
influences
decisions,
raises
awareness,
alters
doctor-patient
communication.
These
findings
highlight
role
advancing
SDGs
related
well-being,
particularly
promoting
digital
literacy.
Research
Implications:
underscores
need
ongoing
into
long-term
narratives,
misinformation
strategies
leverage
improved
outcomes,
aligning
with
like
good
well-being.
Originality/Value:
offers
unique
perspective
linking
it
SDGs.
highlights
how
can
promote
literacy,
support
contribute
achieving
SDG
targets
health,
innovation,
equity.
Cureus,
Journal Year:
2025,
Volume and Issue:
unknown
Published: March 25, 2025
Social
media
has
changed
the
digital
health
landscape,
altering
how
public
consumes
medical
information
and
sparking
concerns
about
reliability
of
information.
This
study
aims
to
assess
quality
online
related
bullous
pemphigoid
by
evaluating
content
type,
reliability,
user
engagement
across
different
social
platforms,
using
Quality
Evaluation
Scoring
Tool
(QUEST)
Discerning
Written
Consumer
Health
Information
(DISCERN)
questionnaires,
quantitative
tools
designed
measure
quality.
Among
six
platforms
analyzed,
educational
was
most
prevalent
on
YouTube
(Google
LLC,
Mountain
View,
California,
United
States)
(90.0%,
n=10)
Threads
(Meta
Platforms,
Inc.,
Menlo
Park,
(100.0%,
n=3),
while
TikTok
(ByteDance
Ltd.,
Beijing,
China)
(n=20)
featured
60.0%
30.0%
patient
experience
content.
X
(X
Corp.,
Bastrop,
Texas,
(n=18)
demonstrated
highest
with
a
mean
QUEST
score
16.8
(SD:
4.5)
DISCERN
28.9
6.7).
In
contrast,
had
lowest
9.0
3.0)
20.1
3.0).
Dunn's
test
Bonferroni
correction
revealed
that
scored
significantly
lower
than
in
both
(Mean
Difference:
-7.83,
p
<
0.0001)
scores
-8.83,
<0.001).
Instagram
(n=9)
outperformed
6.66,
<0.001.
These
findings
indicate
offers
reliable
information,
whereas
consistently
ranks
reliability.
Frontiers in Digital Health,
Journal Year:
2025,
Volume and Issue:
7
Published: April 14, 2025
Background
Social
media
(SM)
is
increasingly
used
in
the
healthcare
system
and
offers
various
benefits
for
patients
such
as
accessible
health
information
communication
with
other
professionals.
However,
SM
also
poses
risks,
including
dissemination
of
medical
misinformation
privacy
concerns.
This
turn
can
influence
patients’
health-related
decision-making
patient-physician
relationship.
There
limited
data
regarding
which
orthopedic
use
what
risks
they
perceive.
Methods
An
online
survey
was
conducted
from
April
to
December
2023
among
trauma
five
German
clinics.
The
questionnaire
32
variables
designed
assess
internet
usage
patterns,
platform
preferences,
perceived
risks.
Statistical
analysis
performed,
subgroup
analyses.
Results
A
total
267
participated,
82.0%
reporting
regular
use.
In
45.9%
general
questions
51.3%
orthopedic-related
questions.
most
platforms
were
conventional
websites,
YouTube,
Instagram,
messenger
apps.
infrequently
questions,
queries.
Only
13.7%
agreed
that
helped
decision-making,
31.1%
felt
confident
assessing
credibility
content.
Additionally,
58.6%
unsure
about
allowing
physicians
present
their
cases
on
SM,
62.3%
uncertain
posting
images.
Conclusion
Among
patients,
gain
low
given
study.
While
may
offer
valuable
information,
role
remains
due
concerns
over
content
privacy.
Video-based
seems
achieve
best
reach.
Future
research
should
explore
these
aspects
longitudinally
across
diverse
populations
better
understand
address
challenges
healthcare.
European Journal of Pain,
Journal Year:
2025,
Volume and Issue:
29(6)
Published: April 29, 2025
ABSTRACT
Background
Feasibility
and
effectiveness
of
online
pain
management
programs
for
chronic
widespread
conditions
have
been
shown;
yet,
there
are
no
empirically
evaluated
hypermobile
Ehlers–Danlos
syndrome
(hEDS)
or
hypermobility
spectrum
disorder
(HSD).
Bridging
this
gap,
the
Hypermobile
Online
Pain
managemEnt
(HOPE)
program
was
developed
with
stakeholder
input
to
be
pilot
tested.
Methods
We
conducted
a
randomised
controlled
trial
HOPE
assess
Intervention
Measure
(FIM),
Acceptability
(AIM)
Appropriateness
(IAM)
eight
clinical
outcomes.
participants
were
given
8
weeks
complete
12
self‐paced
modules,
while
control
continued
treatment
as
usual.
Participants
assessed
at
baseline,
post‐treatment
3
months
using
surveys.
Results
Seventy‐two
recruited
randomised.
Two
withdrew
before
starting,
leaving
34
controls
36
intervention
analysis.
In
all,
81%–91%
agreed/completely
agreed
that
feasible
mean
FIM
score
4.3/5
(SD
0.7),
62%–76%
it
acceptable
AIM
3.9/5
0.96)
67%–76%
appropriate
IAM
4.0/5
0.9).
Only
two
outcomes
significantly
improved
in
group,
moderate
small
effect
sizes
worst
intensity
(Cohen's
d
=
0.63)
impact
0.32)
post‐intervention,
respectively.
Conclusion
The
seemed
feasible,
appropriate,
preliminary
improvements
hypermobility.
Our
findings
warrant
fully
powered
further
explore
intervention.
Significance
Statement
is
high
concern
among
people
(HSD),
yet
limited
resources
them.
This
novel
important
guiding
creation
evidence‐based
stakeholder‐relevant
resources.
Promising
results
suggest
importance
refinement
retesting
its
wider
implementation
hEDS/HSD
population
so
empower
them
self‐management.
Research Square (Research Square),
Journal Year:
2024,
Volume and Issue:
unknown
Published: May 21, 2024
AbstractBackground:
Over
the
past
decade,
social
media
data
have
gained
special
interest
across
various
sectors,
specially
in
medicine
where
these
are
being
utilized
for
a
variety
of
purposes,
including
surveillance,
pharmacovigilance,
or
patient
recruitment.
Among
platforms,
Reddit
is
one
most
widely
used
worldwide.
The
way
which
this
network
organises
information,
specific
subreddits,
makes
it
possible
to
estimate
popularity
and
relevance
topics,
medical
ones.
Although
there
been
multiple
studies
rheumatology
using
media,
none
detailed
different
rheumatology-specific
communities
that
exist
within
Reddit.
Therefore,
objective
study
was
twofold:
find
rheumatology-related
describe
their
characteristics,
number
subscribers,
users,
temporal
behavior
among
others.
Methods:
The
search
engine,
along
with
list
21
commonly
terms,
identify
candidate
subreddits.
subreddit's
name,
creation
date,
public
status,
size,
activity
since
May
2023
2024
information
collected.
Exclusion
criteria
were
applied
narrow
down
results.
Only
subreddits
over
1000
active,
strong
affinity
recoverable
through
Pushshift.io
extracted.
Different
metrics
statistics
computed
characterise
identified
previous
step
(e.g.,
users
who
participate
each
subreddit,
messages,
thread
length,
word
count
per
submissions,
activities,
commented
threads
subreddit
so
on).
Continuous
variables
summarised
median
first
third
quartiles
(Q1–Q3).
Results:
Of
83
potential
20
met
inclusion
criteria.
oldest
r/Fibromyalgia.
subscribers
ranged
from
2k
(r/Behcets)
70k
(r/Fibromyalgia)
ratio
comments/submissions
higher
r/ankylosingspondylitis
(12.36).
Almost
exponential
growth
seen
all
2016-2017.
r/Fibromyalgia
has
highest
messages
day.
Peak
occurs
between
16:00
23:00
majority
concentrated
second
half
year.
patient's
age
common
concern
Another
majorn
COVID
vaccine
its
impact
on
patients
RMDs
(i.e.,
r/mctd,
r/costochondritis,
r/Sjogrens,
r/Uveitis).
Some
posts
r/gout
Ask
Me
Anything
sessions,
professionals
respond
questions.
This
highlights
exchanging
healthcare
via
media.
Conclusions:
provides
valuable
platform
studying
concerns,
needs,
perceptions
about
as
evidenced
by
diversity
communities,
extent
size.
paper
contributes
understand
how
rheumatic
musculoskeletal
utilize
discuss
health-related
potentially
informing
better
support
engagement
strategies
digital
spaces.
International Journal for Equity in Health,
Journal Year:
2024,
Volume and Issue:
23(1)
Published: Aug. 9, 2024
Kerala,
a
southern
state
in
India,
is
known
to
be
atypical
due
its
high
literacy
rate
and
advanced
social
development
indicators.
Facing
competition
from
dominant
private
healthcare
system,
recent
government
health
system
reforms
have
focused
on
providing
free,
high-quality
universal
the
public
sector.
We
carried
out
an
analysis
ascertain
initial
impacts
of
these
measures
among
'hard
reach
groups'
as
part
larger
policy
systems
research
study,
with
focus
sector
service
utilisation.
Journal of Medical Internet Research,
Journal Year:
2024,
Volume and Issue:
26, P. e55965 - e55965
Published: Aug. 19, 2024
Background
Social
media,
including
online
health
communities
(OHCs),
are
widely
used
among
both
healthy
people
and
those
with
conditions.
Platforms
like
Twitter
(recently
renamed
X)
have
become
powerful
tools
for
mental
(OMHCs),
enabling
users
to
exchange
information,
express
feelings,
socialize.
Recognized
as
empowering
processes,
these
activities
could
empower
consumers,
their
families
friends,
society.
However,
it
remains
unclear
how
OMHCs
diverse
population
levels
groups.
Objective
This
study
aimed
develop
an
understanding
of
empowerment
processes
conducted
within
on
by
identifying
members
who
shape
communities,
detecting
the
types
aligned
groups
outlined
in
Strategy
1
Integrated
People-Centred
Health
Services
(IPCHS)
framework
World
Organization
(WHO),
clarifying
members’
involvement
tendencies
processes.
Methods
We
our
analysis
a
OMHC
called
#bipolarclub.
captured
2068
original
tweets
using
its
hashtag
#bipolarclub
between
December
19,
2022,
January
15,
2023.
After
screening,
547
eligible
182
authors
were
analyzed.
Using
qualitative
content
analysis,
community
classified
examining
authors’
profiles,
identified
analyzing
categorized
according
WHO’s
1.
Members’
examined
through
contributions
Results
The
unveiled
5
main
classifications
members,
majority
individual
(n=138,
75.8%),
followed
care–related
(n=39,
21.4%).
All
declared
that
they
experience
conditions,
general
practitioner
consumers
peers
rather
than
professional
services.
revealed
3
categories:
individual-level
(6
2
subprocesses),
informal
carer
(1
process
friends),
society-level
subprocesses).
also
demonstrated
distinct
influenced
identities,
engaging
self-expression
family
awareness
support
supporting
societal
awareness.
Conclusions
examination
highlights
capability
Twitter-based
(including
from
underserved
marginalized
populations),
society,
aligning
agenda.
underscores
potential
benefits
leveraging
such
objectives.
pioneering
is
very
first
analyze
single
can
populations,
offering
various
care
stakeholders
valuable
guidance
aiding
them
developing
consumer-oriented
programs
OMHCs.
propose
structured
classifies
OMHCs,
inspired
(IPCHS
framework).