A systematic review on inequalities in accessing and using community-based social care in dementia

International Psychogeriatrics, Journal Year: 2023, Volume and Issue: 36(7), P. 540 - 563

Published: May 12, 2023

ABSTRACT Objectives: To evaluate and synthesize the evidence base on barriers facilitators to accessing using community-based social care in dementia. Design: Mixed-methods systematic review. Setting: Community-based (such as day care, respite paid home peer support groups). Participants: People living with dementia unpaid carers. Measurements: Seven databases were searched March 2022, including English German published from 2000 focusing inequalities for across globe. Titles abstracts screened by two reviewers, all full texts reviewers also. Study quality was assessed QualSyst. Results: From 3,904 records, 39 papers included. The majority of studies qualitative, 23 countries represented. Barriers could be categorized into following five categories/themes: situational, psychological, interpersonal, structural, cultural. notably more prominent than multifaceted, many factors hindering or facilitating access linked together. Conclusions: carers experience significant community, a varied approach multiple levels is required address systemic individual-level enable equitable all.

Language: Английский

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The Mental Health of Caregivers and Their Patients With Dementia During the COVID-19 Pandemic: A Systematic Review

Frontiers in Psychology, Journal Year: 2021, Volume and Issue: 12

Published: Dec. 24, 2021

Background: Coronavirus Disease 2019 (COVID-19) is a worldwide public health concern. It continues to spread rapidly throughout the world causing multiple physical and psychological consequences in population. Especially, people affected by severe psychiatric or neurological diseases are highly susceptible serious complications not only due direct effect of infection but also indirect COVID-19 following social distancing during lockdowns its general consequences. Indeed, lockdown difficulties using care services produced caregivers such as depression, anxiety, worsening quality life which turn ability manage patients. Our aim was systematically review patients with cognitive impairment dementia impact on their Methods: A systematic literature search conducted searching MEDLINE/PubMed, Scopus, Web Science two independent researchers Preferred Reporting Items for Systematic Reviews Meta-Analyses (PRISMA) statement guidelines. Data extraction assessment were performed. Papers screened eligibility abstract then those met inclusion criteria included this review. Results: The initial returned 410 records. After screening inclusion/exclusion applied, 315 excluded because they irrelevant, 30 reviews, meta-analyses, letters editors, editorials, guidelines, case reports, 10 duplicates. Then, 38 out 55 abstracts/full-text articles did simultaneously assess mental caregivers. In end, 17 papers deemed eligible present Conclusion: Based current literature, pandemic ensuing caused dementia, health, increasing burden, independently from severity disease relatives, resulted globally worsened.

Language: Английский

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The Effect of Prolonged Lockdown Due to COVID-19 on Greek Demented Patients of Different Stages and on Their Caregivers

Journal of Alzheimer s Disease, Journal Year: 2021, Volume and Issue: 83(2), P. 907 - 913

Published: July 20, 2021

Background: The impact of the new coronavirus disease (COVID-19) is deteriorating as time passes and virus keeps spreading, with people dementia their caregivers being affected significantly. Objective: aim this study was to examine effect prolonged isolation because COVID-19 pandemic on caregivers. Methods: Caregivers answered online questions regarding own physical psychological burden, person they take care of. Participants were mostly members seminars Athens Alzheimer’s Association. Questions referred overall decline persons of, changes in specific domains well. Further, participants asked about any between two major lockdown periods. Analysis performed including total sample then, by three different stages dementia. Results: A 339 took part study. Results indicated significant decline, both an aspect dementia, (mostly communication mood). Regarding caregivers, reported having significantly increased also, noticing change periods burden. dementia-stage group that occurred middle-stage late-stage group. Conclusion: An urgency for further support neurodegenerative disorders needed. Collaboration among workers, programs, governmental support, day-care centers should be planned ensure continuity those need during pandemic.

Language: Английский

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“A Different Way to Survive”: The Experiences of Family Caregivers of Persons Living With Dementia During the COVID-19 Pandemic

Journal of Family Nursing, Journal Year: 2022, Volume and Issue: 28(3), P. 243 - 257

Published: July 8, 2022

Family caregivers of persons living with dementia often experience challenges to their health and quality life related caregiving role. The COVID-19 pandemic added substantially the responsibilities family caregivers, potentially putting them at greater risk poor outcomes impeded life. To better understand impact on experiences a multimethods study was conducted. were invited complete cross-sectional survey subset respondents participate in focus groups for insight. A total 161 responded 30 participated groups. Qualitative data from used elucidate deeper insight into quantitative findings survey. Findings reflect that affected caregiver wellness, access care resources, identity, resilience.

Language: Английский

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Care for dementia patients and caregivers amid COVID-19 pandemic

Cerebral Circulation - Cognition and Behavior, Journal Year: 2022, Volume and Issue: 3, P. 100040 - 100040

Published: Jan. 1, 2022

Multiple efforts have been taken across the world to bridge gaps in evidence and provide recommendations for dementia care caregiver support during COVID-19 pandemic. We aimed review available literature on measures used alleviate negative impacts of pandemic care. searched three databases: PubMed, CINAHL PsycINFO identify studies that described strategies were recommended or persons with their caregivers included a total 37 papers, originating from high, middle low-income countries. also 6 papers exploring safety vaccinations. Infection prevention predominantly involved providing consistent reminders engage infection restrict wandering long-term settings reduce spread infection. Medical tele video consultations maintain monitor clinical stability. Guidance continuing rehabilitation activities through remotely conducted cognitive stimulating activities, physical exercises environmental modifications further highlighted by multiple studies/articles. In addition, advised teleconsultations psycho-educational programs. The has exposed health social systems world, but revealed enduring dedication clinicians, expert groups organizations modify adapt existing services meet needs periods emergency.

Language: Английский

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Depression, Anxiety and Sleep Alterations in Caregivers of Persons With Dementia After 1-Year of COVID-19 Pandemic

Frontiers in Psychiatry, Journal Year: 2022, Volume and Issue: 13

Published: Feb. 10, 2022

Background Social isolation due to COVID-19 pandemic has an important psychological impact particularly in persons with dementia and their informal caregivers. Aim To assess frequency severity of long-term stress-related symptoms caregivers patients 1-year after the beginning identify predictors outcomes. Methods Eighty-five were involved a longitudinal study follow-up during Italy. At baseline April 2020 telephone interview assessed socio-demographic characteristics self-perception distress symptoms. After 1 year, between March 2021, same standardized was delivered caregivers' sample. In addition, scales assessing levels depression anxiety (DASS-21), sleep disturbances (PSQI) coping strategies (COPE-NVI) administered 50 age sex-matched non-caregivers subjects. Linear regression analysis performed investigate power variables predict Results year increased respect baseline: (60 vs. 5, 9%; p < 0.001), (45, 9 29, 4%; = 0.035), irritability (49, 4 24, 7%; anguish (31, 7 10, 6%; 0.001). Frequency severe higher than ( 0.002) although mean comparable two groups. Long-term predicted by model built on information (r 2 0.53, 0.001) where being female (t −3.61, having lower education −2.15, 0.04), presence feelings overwhelm 2.29, 0.02) 2.12, 0.04) significant predictors. Female sex also predictive −2.7, 0.01) poor quality −2.17, 0.03). Discussion reported prevalence all acute phase lockdown, depression. Long-lasting stressful conditions may cause exhaustion resilience factors Planning interventions should support enable them continue role pandemic.

Language: Английский

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Effect of COVID-19 Related Social Isolation on Cognitive Decline in Neurocognitive Disorder Patients: A Systematic Review and Meta-Analysis

Neurology India, Journal Year: 2025, Volume and Issue: 73(1), P. 10 - 16

Published: Jan. 1, 2025

The COVID-19 lockdown placed individuals at significant risk of social isolation. Particularly, older people were more vulnerable to the deleterious effects on mental and physical health caused by pandemic quarantine, in which confinement was associated with aggravated cognitive function among adults. Correspondingly, it concerns repercussions patients dementia or Mild Cognitive Impairment (MCI) during pandemic. This study aimed assess hypothesis that might cause decline due isolation assessing changes Mini-Mental State Examination (MMSE) scores between pre post-pandemic era. We systematically searched PubMed, Embase, Cochrane Library for eligible studies from inception April 2023. included reporting MMSE MCI one year prior beginning after lockdown. Standardized mean differences (SMD) 95% confidence intervals (CI) pooled a random-effects model. Among 4,160 studies, twelve included, comprising 4,096 MCI. Patients exhibited compared pre-pandemic levels (SMD = 0.341, P < 0.001). Similarly, demonstrated an 0.315, 0.015). Sub-analyses types also indicated lockdown, 12-month follow-up revealed patients. During there overall amongst those when parameters.

Language: Английский

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When the Lights Went Out at Adult Day Centers: Perceived Change in Caregiver Well-Being During the COVID-19 Shutdowns

Journal of Adult Development, Journal Year: 2025, Volume and Issue: unknown

Published: April 17, 2025

Language: Английский

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Global trends in prevalence, disability adjusted life years, and risk factors for early onset dementia from 1990 to 2021

Scientific Reports, Journal Year: 2025, Volume and Issue: 15(1)

Published: April 18, 2025

This study aims to analyze temporal trends in the prevalence and disability-adjusted life year (DALY) burden of early-onset dementia (EOD) globally from 1990 2021 assess attributable burdens modifiable risk factors. Data Global Burden Disease Study (GBD) were used. EOD was defined as individuals aged 40-64. The analysis included case numbers, age-standardized rates (ASPRs), DALY (ASDRs) with 95% confidence intervals (CIs), stratified by global, regional, national levels, sociodemographic index (SDI), sex. Joinpoint regression evaluated average annual percent change (AAPC). Population fractions (PAFs) estimated proportion DALYs global number cases nearly doubled 2021, reaching 7.758 million (95% CI 5.827-10.081) 3.774 1.696-8.881) 2021. ASPR ASDR increased slightly 355.9 267.2-462.8) 173.3 77.9-407.7) per 100,000 In highest high-middle SDI countries at 387.6 291.1-506.8), while middle 182.9 82.2-431). fastest increase low low-middle 2010 AAPCs 0.42% 0.34-0.50) 0.36% 0.33-0.39), respectively. A significant negative correlation found between ASDR. During COVID-19 pandemic (2019-2021), high-SDI declined, other regions saw an accelerated increase. high fasting plasma glucose (FPG) most factor for EOD-related globally, PAFs body mass FPG increasing all since 1990, PAF smoking decreased. countries, particularly rising during pandemic. growing influence metabolic factors underscores need targeted public health policies resource allocation mitigate burden.

Language: Английский

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A Model for Dynamics in Caregivers' Personal Support Networks During the Pandemic

Personal Relationships, Journal Year: 2025, Volume and Issue: 32(2)

Published: April 20, 2025

ABSTRACT COVID‐19 public health measures significantly disrupted personal support relationships among community‐dwelling family dementia caregivers. In this research, a network analysis was carried out to understand the dynamics in of caregivers caring for persons living with (PLwD) during pandemic. The focuses on variables comprising caregivers' network, attributes their alters, and functional content social support, as well changes therein, before A total 78 took part study, leading an extensive 658 relationships. Bivariate multivariate regression analyses were performed identify characteristics associated received. influencing type tie caregiver provided. that presented greatest positive change partners. contrast, professionals most significant negative change. Finally, observed provided both emotional informational whereas least occurred offered instrumental support.

Language: Английский

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