Children's participation in school and leisure activities after paediatric acquired brain injury—Children's, parents' and teachers' experiences

Journal of Research in Special Educational Needs, Journal Year: 2025, Volume and Issue: unknown

Published: March 21, 2025

Abstract Children living with the consequences of paediatric acquired brain injury (pABI) may experience persistent challenges that impact their social interactions, academic performance and community integration. Participating in activities is paramount importance for development skills. The participants this qualitative interview study were recruited from Child Context Intervention study, a pragmatic randomised controlled trial aimed at improving daily lives children families chronic phase pABI, which involves face more than year following injury. This conducted after CICI intervention, to understand how pABI affects children's participation educational settings, as well faced by parents teachers benefits collaboration. findings show fatigue presents considerable barrier accommodating requires manage such collaboratively separately. also highlight timely access expertise about specialised support professionals when necessary facilitate effective collaboration among children, long‐term perspective mind.

Language: Английский

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Feasibility of a goal sharing digital platform designed to empower children with disability and their families: A qualitative, pre-implementation study

Digital Health, Journal Year: 2025, Volume and Issue: 11

Published: March 1, 2025

Family-centred goal setting is central to optimal care and outcomes for children with a disability. Digital innovations show promise increased engagement empowerment of families. While digital products have the potential improve collaboration, there are barriers which may prevent service providers families from using these resources. This study aimed to: (a) understand sharing experiences caregivers, (b) identify views on platform designed share goals disability between Semi-structured interviews (n = 12) were conducted paediatric caregivers in Australia. Transcripts analysed qualitative content analysis approach. Experiences reflected sub-categories: conversations listening families' needs; collaboration building relationships; adopting family-driven approach; big picture specific goals; communicating documenting need be meaningful; structured National Disability Insurance Scheme (NDIS) challenges barriers. Views captured by empower families; shared understanding; communication your own time; everything same place; accessible user friendly; functionality preferred features; workload; some might not engage it new technology. We developed an understanding how perspectives platform. These findings implications development implementation health

Language: Английский

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How are adolescents with acquired brain injury using computer-mediated communication?: a systematic review of the literature

Disability and Rehabilitation, Journal Year: 2025, Volume and Issue: unknown, P. 1 - 21

Published: April 17, 2025

To systematically review the literature on use of computer-mediated communication (CMC) for social participation by adolescents with acquired brain injury (ABI), characterize patterns use, perceived benefits and challenges, existing supports this population. Following PRISMA guidelines, we searched seven databases (CINAHL, Ovid Medline, APA PsycINFO, Allied Complementary Medicine Database (AMED), Embase, SpeechBITE Cochrane Systematic Reviews) grey from inception to January 2024, hand-searched references. The PCC framework guided inclusion English-language articles aged 13-18 ABI, focusing CMC in community or outpatient settings. Quality included studies was assessed using Critical Appraisal Skills Programme (CASP) checklists. Results were synthesized thematic analysis. Nine met criteria. Thematic analysis identified five major themes: navigating adolescent digital landscape, technology as a facilitator, leveraging parental involvement support autonomy, synergies within rehabilitation can ABI; however, significant knowledge gaps exist regarding access barriers effective supports. Further research is needed develop specialized training professionals ABI accessing safely.

Language: Английский

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Trajectory of Post-Traumatic Stress During the First Year after Pediatric Traumatic Brain or Orthopedic Injury

Journal of Neurotrauma, Journal Year: 2025, Volume and Issue: unknown

Published: April 22, 2025

Up to 50% of children sustaining physical injury develop post-traumatic stress symptoms (PTSS). Most studies PTSS have not included patients with traumatic brain (TBI); consequently, the influence type and severity on longitudinal course is unclear. To address this gap, we completed a prospective cohort study examining trajectory self-reported during first year after TBI or orthopedic (OI). Within biopsychosocial framework, examined in relation variables, demographic characteristics, pre-injury child family functioning. Patients ages 9-15 years OI were recruited from two level I pediatric trauma centers. Online surveys as soon possible following (mdn = 8 days). Caregivers rated family, sociodemographic, characteristics. Follow-up assessing children's using Children's PTSD Symptom Scale (CPSS) scheduled 3,6, 12 months injury. English-speaking families either online by telephone interview; Spanish-speaking interviewed. Baseline 303 families; 265 (87%) at least 1 follow-up comprised cohort. General linear mixed models group severity, age, sex, time assessment CPSS scores. Pre-injury estimates functioning predictors supplemental models. Participants (72% boys, mean [SD] age 12.7 [1.9] years) 204 (76 mild, 82 complicated-mild/moderate, 46 severe) 61 OI. Relative OI, had significantly elevated scores 3 (3.7 points, 95% confidence intervals [CI]: 1.1, 6.3); 6 (3.2, CI: 0.7, 5.7) (2.3, 0.1, 4.5). The primary model indicated that nonlinear CPSS. Mild (mTBI) highest scores; significant differences relative (4.6 1.6, 7.6); (5.7, 2.7, 8.6) 0.6, 5.8). This also revealed adolescent females higher than males. Differences younger males 4.9 (95% 8.3) 5.0 points 2.1, 8.0). In models, symptom burden was associated poorer baseline levels anxiety, affective problems, conduct problems. persisted for minority across recovery, particularly those mTBI. Screening should emphasize risk factors target greatest need trauma-focused intervention. Cost-effective, scalable, evidence-based interventions are essential meet American College Surgeons standards provide psychological screening treatment PTSS.

Language: Английский

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Child and family health-related quality of life and participation outcomes and goals after acquired brain injury: a cross-sectional survey

Brain Injury, Journal Year: 2024, Volume and Issue: 38(3), P. 217 - 226

Published: Feb. 16, 2024

Objective To explore longer-term health-related quality of life (HRQoL) and participation outcomes goals children young people (CYP) with acquired brain injuries (ABI) their families in a region the UK impact COVID-19 pandemic.

Language: Английский

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Children and families with chronic pediatric acquired brain injury in need of rehabilitation: characteristics and main challenges in daily life

Disability and Rehabilitation, Journal Year: 2024, Volume and Issue: unknown, P. 1 - 10

Published: July 13, 2024

Purpose To increase our understanding of child and parent characteristics, family functioning main challenges in daily life children families need rehabilitation the chronic phase pediatric acquired brain injury (pABI).

Language: Английский

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Family involvement in rehabilitation programmes for children and adolescents with acquired brain injury: A scoping literature review

Neuropsychological Rehabilitation, Journal Year: 2024, Volume and Issue: unknown, P. 1 - 54

Published: March 22, 2024

Paediatric acquired brain injury (ABI) can adversely impact families, and it is widely accepted that families should be involved in the rehabilitation of children/adolescents with ABI. However, there limited guidance about how to best involve paediatric ABI rehabilitation. Several programmes involving have been developed, but are no published reviews outlining their characteristics. This scoping literature review aimed synthesize information these develop an understanding them. Four databases were systematically searched identify sources evidence described family members. One hundred eight describing 42 included. Programmes categorized as: service coordination (n = 11), psychosocial 17), support groups 4), training/instruction 9), education 1). Families' involvement varied across programme development, delivery, evaluation stages. The findings this outline While outlines many approaches supporting also highlights need for models family-centred care better articulate clinicians services

Language: Английский

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Heads Together Online Peer Education (HOPE): co-design of a family-led, video-based resource for families affected by paediatric acquired brain injury

Brain Impairment, Journal Year: 2024, Volume and Issue: 25(2)

Published: Jan. 1, 2024

Background Many families of children with acquired brain injuries (ABI) desire opportunities to connect peers who have shared similar experiences, but such are often unavailable. Heads Together Online Peer Education (HOPE) is a co-designed online video-based resource that provides information and early support following paediatric ABI. This study part larger co-creation project using community-based participatory research approach develop implement HOPE for impacted by ABI in Australia. aimed explore parents' clinicians' perspectives regarding HOPE's usability, acceptability, future implementation.Methods Parents clinicians were recruited from state-wide, interdisciplinary rehabilitation service. eligible participate if their child had sustained an within 2 years recruitment. Participants accessed HOPE, completed the System Usability Scale (SUS), participated semi-structured interview. Transcripts analysed inductive content analysis.Results Ten parents 13 participated. Average SUS scores 80.5/100 81.73/100, respectively. satisfied family-centred delivery. They expressed having benefited offered suggestions its optimisation. Finally, participants reflected on how could be introduced used families, potential usefulness educating others about ABI.Conclusions was developed through family-led co-design process aims provide stages study's findings demonstrate usability acceptability end-users' will guide implementation.

Language: Английский

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Integrative Review of Music and Music Therapy Interventions on Functional Outcomes in Children with Acquired Brain Injury

Journal of Music Therapy, Journal Year: 2024, Volume and Issue: unknown

Published: July 9, 2024

Abstract Acquired brain injury (ABI) can result in a multitude of impairments to physical, cognitive, communicative, psychological, and psychosocial functioning. Music interventions are emerging as valuable form intervention the rehabilitation children with ABI, stimulating functions involved movement, cognition, speech, emotions, sensory perceptions. To date, literature detailing impact music therapy on functional outcomes ABI has not been reviewed systematically. address this, Whittemore Knafl’s five-stage integrative review framework was employed, which includes (a) problem identification, (b) search, (c) data evaluation, (d) analysis synthesis, (e) presentation findings. A total 388 articles were retrieved, 8 studies met inclusion criteria. Analysis synthesis resulted 3 overarching themes: using pediatric motivator rehabilitation, collaboration. The highlights pivotal role motivational catalyst that promotes adherence rehabilitative intervention. Nevertheless, it underscores significant gap empirical research within field, emphasizing necessity for larger, more rigorous studies.

Language: Английский

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Predicting and improving outcome in severe pediatric traumatic brain injury

Expert Review of Neurotherapeutics, Journal Year: 2024, Volume and Issue: 24(10), P. 963 - 983

Published: Aug. 14, 2024

Introduction Severe pediatric traumatic brain injury (spTBI), including abusive head trauma (AHT) in young children, is a major public health problem. Long-term consequences of spTBI include large variety physical, neurological, biological, cognitive, behavioral and social deficits impairments

Language: Английский

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