The consequences of COVID-19 lockdown for formal and informal resource utilization among home-dwelling people with dementia: results from the prospective PAN.DEM study DOI Creative Commons
Maarja Vislapuu, Renira C. Angeles, Line Iden Berge

et al.

BMC Health Services Research, Journal Year: 2021, Volume and Issue: 21(1)

Published: Sept. 22, 2021

COVID-19 isolated home-dwelling people with dementia (PwD) from home care services, respite care, and daytime activities. We aimed to investigate the consequences of these restrictions on informal (family, friends) formal (homecare staff) resource utilization among co-residing (e.g., spouses) visiting caregivers children).105 PwD (≥65 years old) their were included in prospective PANdemic DEMentia (PAN.DEM) study, which was initiated when ongoing stepped-wedge, cluster randomized [email protected] trial (N = 438) temporarily halted due pandemic. Primary outcome change assessed by Resource Utilization Dementia Care (RUD) instrument pre- (12 Dec. 2019 11 Mar. 2020) during lockdown periods (20 April 2020 15 May 2020). Degree cognitive impairment Mini-Mental Status Examination (MMSE), physical functioning independent living skills Physical Self-Maintenance Scale Lawton Instrumental Activities Daily Living Scale. Associations between utilization, socio-demographics, clinical variables descriptive statistics Ordinary Least Squares models (OLS).Mean age for 81.8 years; 61% female; 45.6% lived alone, mean MMSE score 20.8 (SD ± 3.7). co-residents (44%) younger (78.4 years) than those who alone (84.5 P < 0.001). During first 2 months lockdown, missed average 20.5 h a month (P 0.001) leading an approximately 100% increase particularly pronounced personal hygiene (6.9 vs. 11.4 days month, supervision (9.2 17.6 month; Visiting increased 1.9 11.5), but number providing ADL 7 per (β 6.9; CI, 0.39-13.1, 0.05) after adjusting caregiver demographics variables. Decrease nursing visible (- 6.1 -1.3 0.005). Higher function - 0.64, 1.26 0.02, 0.044) associated reduction service lockdown.The situation changed dramatically early phase pandemic, especially received less support homecare services caregivers. For future crises forthcoming post-pandemic period, health authorities must plan better identify prioritize greatest need.ClinicalTrials.gov ; NCT04043364 .

Language: Английский

Impact of the COVID-19 Pandemic on Older Adults: Rapid Review DOI Creative Commons
Audrey Lebrasseur, Noémie Fortin-Bédard, Josiane Lettre

et al.

JMIR Aging, Journal Year: 2021, Volume and Issue: 4(2), P. e26474 - e26474

Published: March 10, 2021

Background The COVID-19 pandemic has drastically changed the lives of countless members general population. Older adults are known to experience loneliness, age discrimination, and excessive worry. It is therefore reasonable anticipate that they would greater negative outcomes related given their increased isolation risk for complications than younger adults. Objective This study aims synthesize existing research on impact pandemic, associated protective measures, older secondary objective investigate with Alzheimer disease dementias. Methods A rapid review published literature was conducted October 6, 2020, through a search 6 online databases results from original studies regarding Human Development Model conceptual framework–Disability Creation Process used describe understand interactions between personal factors, environmental life habits. reported following Preferred Reporting Items Systematic Reviews Meta-analyses Statement. Results total 135 records were included initial strategy 13,452 individual studies. Of these, 113 (83.7%) determined be level 4 according levels evidence classification by Centre Evidence-Based Medicine. presence psychological symptoms, exacerbation ageism, physical deterioration aged populations in Decreased social fewer in-person during occasionally reduced quality depression. Difficulties accessing services, sleep disturbances, reduction activity also noted. Conclusions Our highlight need adequate measures. represent heterogeneous group, which could explain contradictory found literature. Individual, organizational, institutional strategies should established ensure able maintain contacts, preserve family ties, ability give or receive help current pandemic. Future focus specific consequences needs more at-risk inclusion, both public health recommendations considerations made policy makers.

Language: Английский

Citations

311

Informal caregivers during the COVID-19 pandemic perceive additional burden: findings from an ad-hoc survey in Germany DOI Creative Commons
Andrea Budnick, Christian Hering, Simon Eggert

et al.

BMC Health Services Research, Journal Year: 2021, Volume and Issue: 21(1)

Published: April 16, 2021

Abstract Background While the relation between care involvement of informal caregivers and caregiver burden is well-known, additional psychosocial related to during COVID-19 pandemic has not yet been investigated. Methods A total 1000 caregivers, recruited offline, participated in a cross-sectional online survey from April 21 May 2, 2020. Questionnaires were used assess COVID-19-specific changes situation, negative feelings problems with implementation measures, concerns/excessive demands, loss support, change caregivers’ own provision, comprehension & practicability information, relate these issues five indicators (i.e., being main caregiver, high expenditure time, level care, dementia, no professional help). Binomial multiple regression analyses applied. Results Across involvement, 25.5–39.7% reported that situation rather or greatly worsened pandemic, especially for those caring someone dementia usually relying on help. In model, mean number met was associated age (β = .18; CI .10–.25), excessive demands .10, .00–.19), measures .11, .04–.19), an increase caregiving by themselves .14, .03–.24) as well amount .18, .07–.29) support −.08, −.16–.00). No significant associations found gender, educational level, feelings, information. Conclusion Those who perceived extensive suffered most calling structural healthcare system now future. Trial registration This article does report results health intervention human participants.

Language: Английский

Citations

145

Protecting Nursing Homes and Long-Term Care Facilities From COVID-19: A Rapid Review of International Evidence DOI Creative Commons
Sally Hall Dykgraaf, Sethunya Matenge, Jane Desborough

et al.

Journal of the American Medical Directors Association, Journal Year: 2021, Volume and Issue: 22(10), P. 1969 - 1988

Published: Aug. 3, 2021

The COVID-19 pandemic has highlighted the extreme vulnerability of older people and other individuals who reside in long-term care, creating an urgent need for evidence-based policy that can adequately protect these community members. This study aimed to provide synthesized evidence support decision making.

Language: Английский

Citations

132

Long COVID and older people DOI Creative Commons

Victoria Mansell,

Sally Hall Dykgraaf, Michael Kidd

et al.

The Lancet Healthy Longevity, Journal Year: 2022, Volume and Issue: 3(12), P. e849 - e854

Published: Dec. 1, 2022

Long COVID is a poorly understood condition, with wide spectrum of effects on multiple body systems and variable presentation in different individuals. particular concern among older people (ie, aged 65 years or older), who are at greater risk than younger persisting symptoms associated COVID-19. In addition, COVID-19 might trigger exacerbate chronic conditions that occur commonly people, such as cardiovascular diseases, respiratory neurodegenerative conditions, functional decline. the disruptive for should not be underestimated; lockdowns other restrictions have reduced social interactions they also likely to lost spouse loved one during pandemic, which can contribute mental physical vaccination appears reduce long COVID, especially those living care facilities, remain up-to-date their vaccinations. Health-care staff consider differential diagnosis relevant rather assume increasing frailty, pursue early multidisciplinary assessment management symptoms. Addressing physical, psychological, sequelae will mitigate effect improve health quality life people.

Language: Английский

Citations

82

Life under lockdown and social restrictions - the experiences of people living with dementia and their carers during the COVID-19 pandemic in England DOI Creative Commons
Remco Tuijt, Rachael Frost, Jane Wilcock

et al.

BMC Geriatrics, Journal Year: 2021, Volume and Issue: 21(1)

Published: May 10, 2021

The impact of COVID-19 restrictions on people living with dementia and their carers is an emerging focus recent research determining how we can best support this population. People have faced service curtailment, increased risk for COVID-19, as well potential heightened deterioration. This study reports the experiences family during early months pandemic in England them.We recruited remotely interviewed 30 own homes 31 carers, via video or telephone call mid-2020. Data were transcribed analysed using thematic analysis.People often had a basic understanding but could difficulty translating into personalised risk-appraisal actions. Managing risks facing at home was largely done by exemplified changes to arrangements, which strain sustain caring relationships. Well-established familial relationships contributed wellbeing person carer, keeping simple routines that included leaving exercise stimulation. reported some negative psychological cognitive effects due imposed restrictions, such apathy, irritability, anxiety, fuelled lack social engagement.Structuring routine (remote) interactions where possible increase engagement improve dementia, especially those limited post-COVID-19 context. As care been restructured manage risks, additional carer may emerge result independence come attention professionals health services. highlighted importance maintaining adapting be useful learning professionals, although necessary who are impacted more severe worsening symptoms dementia.

Language: Английский

Citations

96

The Impact of COVID-19 on Informal Caregiving and Care Receiving Across Europe During the First Phase of the Pandemic DOI Creative Commons
Michael Bergmann, Mélanie Wagner

Frontiers in Public Health, Journal Year: 2021, Volume and Issue: 9

Published: June 16, 2021

Purpose: We analyzed the effects of COVID-19 as well its accompanying epidemiological control measures on health-related outcomes (physical and mental health) unmet care needs both caregivers recipients across Europe Israel by taking into account country differences. Methods: applied comparisons adjusted predictions, controlling for a large set relevant respondent characteristics, to investigate changes in physical health due COVID-19. Furthermore, multilevel regression models were used analyze effect individual contextual indicators probability reporting difficulties receiving care. For analyses, we data from 26 countries with 51,983 respondents over 50 years based eighth wave Survey Health, Aging Retirement (SHARE), which had be suspended March 2020, SHARE Corona fielded June August 2020. Results: During first phase pandemic spring/summer frequency providing personal parents increased almost all European countries, while children, turn, decreased. Parental who reported significantly more strains, that is, feeling sad/depressed anxious/nervous often since outbreak pandemic. With respect care, about one out five difficulty obtaining adequate outside household during The perception was associated differences regarding duration stay-at-home orders. In contrast, number confirmed deaths did not have significant perceiving related Conclusions: Our findings show extent burden exposed unintended consequences COVID-19-related measures. There is great need within this population interventions, effectively reduce symptoms anxiety or depression recipients. This should recognized (health) policymakers social organizations.

Language: Английский

Citations

95

Emotional and Mental Wellbeing Following COVID-19 Public Health Measures on People Living With Dementia and Carers DOI Creative Commons
Kerry Hanna, Clarissa Giebel,

Hilary Tetlow

et al.

Journal of Geriatric Psychiatry and Neurology, Journal Year: 2021, Volume and Issue: 35(3), P. 344 - 352

Published: Feb. 25, 2021

Background: To date, there appears to be no evidence on the longer-term impacts caused by COVID-19 and its related public health restrictions some of most vulnerable in our societies. The aim this research was explore change impact measures mental wellbeing people living with dementia (PLWD) unpaid carers. Method: Semi-structured, follow-up telephone interviews were conducted PLWD carers between June July 2020. Participants asked about their experiences accessing social support services during pandemic, daily lives. Results: 20 thematically analyzed, which produced 3 primary themes concerning emotional responses course pandemic: 1) Impact lockdown, 2) Changes following easing health, 3) long-term effect measures. Conclusions: findings from shed light psychological UK Government’s loss key impacting cohort mentally emotionally, displaying a need for better support, both PLWD.

Language: Английский

Citations

90

COVID-19-related social support service closures and mental well-being in older adults and those affected by dementia: a UK longitudinal survey DOI Creative Commons
Clarissa Giebel,

Daniel Pulford,

Claudia Cooper

et al.

BMJ Open, Journal Year: 2021, Volume and Issue: 11(1), P. e045889 - e045889

Published: Jan. 1, 2021

The COVID-19 pandemic has had a major impact on delivery of social support services. This might be expected to particularly affect older adults and people living with dementia (PLWD), reduce their well-being.To explore how service use by adults, carers PLWD, mental well-being changed over the first 3 months since outbreak.Unpaid carers, PLWD took part in longitudinal online or telephone survey collected between April May 2020, at two subsequent timepoints 6 12 weeks after baseline. Participants were asked about usage typical week prior (at baseline), past each three timepoints. They also completed measures levels depression, anxiety well-being.377 participants complete data all Social dropped shortly lockdown imposed timepoint 1 (T1), then increase again T3. access paid care was least affected COVID-19. Cases significantly across study period, while cases depression rose. Well-being increased for from T1 T3.Access services been pandemic, which is starting recover slowly. With differently groups, needs put place maintain better those vulnerable groups during ongoing pandemic.

Language: Английский

Citations

89

Changes in social support of pregnant and postnatal mothers during the COVID-19 pandemic DOI Open Access

Judy Zhou,

Kathryn L. Havens, Catherine P. Starnes

et al.

Midwifery, Journal Year: 2021, Volume and Issue: 103, P. 103162 - 103162

Published: Oct. 1, 2021

Language: Английский

Citations

86

The impact of Covid-19-related distancing on the well-being of nursing home residents and their family members: a qualitative study DOI Creative Commons
Jenny Paananen, Johanna Rannikko,

Maija Harju

et al.

International Journal of Nursing Studies Advances, Journal Year: 2021, Volume and Issue: 3, P. 100031 - 100031

Published: May 31, 2021

The aim of this study is to examine the consequences Covid-19-related isolation and social restrictions on well-being nursing home residents their family members, analyze how distancing has affected relationships members with staff.The data consist 41 thematic one-on-one interviews conducted during May-December 2020 residents. Convenience sampling was utilized by asking several homes in different parts Finland relay a contact request from researchers residents' members. main themes were lockdown visiting restrictions. Subthemes included frequency visits, other means interaction, changes loved ones staff, feelings aroused situation. audio recorded transcribed verbatim, resulting 794 pages data.The qualitative uses inductive content analysis. NVivo12 software facilitated systematic coding data.According aggravated pre-existing conditions: they reported sudden progression memory disorders significant deterioration physical abilities, for example. Both experienced anxiety, grief, severe stress, expressed concern that might die due lack activity. Family also frustrated about not being able touch relatives or participate care, therefore sometimes thought visits useless. New forms interaction introduced homes, appreciated. However, some perceived interactional protocols as unfair complained insufficient information.The findings underline need implement good protocol. Overall, results show measures taken protect health Covid-19 outbreak short-sighted terms dimension well-being. It important continue developing safe humane solutions when are place. Tweetable abstract: caused stress

Language: Английский

Citations

77