Factors associated with depression, anxiety, and satisfaction with life among Malaysian parental caregivers of adolescent psychiatric patients: A cross-sectional study

Cambridge Prisms Global Mental Health, Journal Year: 2024, Volume and Issue: 11

Published: Jan. 1, 2024

Depression and anxiety are prevalent mental health issues worldwide, especially among parental caregivers. By expanding the family stress model, this cross-sectional study investigated relevant factors associated with depressive symptoms, satisfaction life Malaysian caregivers of adolescent psychiatric patients. Data were collected through questionnaires (

Language: Английский

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The impact of Covid-19-related distancing on the well-being of nursing home residents and their family members: a qualitative study

International Journal of Nursing Studies Advances, Journal Year: 2021, Volume and Issue: 3, P. 100031 - 100031

Published: May 31, 2021

The aim of this study is to examine the consequences Covid-19-related isolation and social restrictions on well-being nursing home residents their family members, analyze how distancing has affected relationships members with staff.The data consist 41 thematic one-on-one interviews conducted during May-December 2020 residents. Convenience sampling was utilized by asking several homes in different parts Finland relay a contact request from researchers residents' members. main themes were lockdown visiting restrictions. Subthemes included frequency visits, other means interaction, changes loved ones staff, feelings aroused situation. audio recorded transcribed verbatim, resulting 794 pages data.The qualitative uses inductive content analysis. NVivo12 software facilitated systematic coding data.According aggravated pre-existing conditions: they reported sudden progression memory disorders significant deterioration physical abilities, for example. Both experienced anxiety, grief, severe stress, expressed concern that might die due lack activity. Family also frustrated about not being able touch relatives or participate care, therefore sometimes thought visits useless. New forms interaction introduced homes, appreciated. However, some perceived interactional protocols as unfair complained insufficient information.The findings underline need implement good protocol. Overall, results show measures taken protect health Covid-19 outbreak short-sighted terms dimension well-being. It important continue developing safe humane solutions when are place. Tweetable abstract: caused stress

Language: Английский

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Mortality, Morbidity and Health-Related Outcomes in Informal Caregivers Compared to Non-Caregivers: A Systematic Review

International Journal of Environmental Research and Public Health, Journal Year: 2022, Volume and Issue: 19(10), P. 5864 - 5864

Published: May 11, 2022

A systematic overview of mental and physical disorders informal caregivers based on population-based studies with good methodological quality is lacking. Therefore, our aim was to systematically summarize mortality, incidence, prevalence estimates chronic diseases in compared non-caregivers. Following PRISMA recommendations, we searched major healthcare databases (CINAHL, MEDLINE Web Science) for relevant published the last 10 years (without language restrictions) (PROSPERO registration number: CRD42020200314). We included only observational cross-sectional cohort low risk bias (risk scores 0-2 out max 8) that reported prevalence, odds ratio (OR), hazard (HR), mean- or sum-scores health-related outcomes For a thorough assessment, used validated checklist. The synthesis results conducted by grouping outcomes. 22 studies, which came predominately from USA Europe. Informal had significantly lower mortality than Regarding morbidity outcomes, large longitudinal German health-insurance evaluation showed increased statistically significant incidences severe stress, adjustment disorders, depression, spine pain conditions among In evaluations, caregiving seemed be associated higher occurrence depression anxiety (ranging 4 51% 2 38%, respectively), pain, hypertension, diabetes reduced life. Results review suggest may several disorders. However, these need interpreted caution, as cannot determine temporal relationships. rates non-caregivers due healthy-carer studies; however, other potential benefits deserve further attention researchers.

Language: Английский

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Impact of the COVID‐19 pandemic on family carers in the community: A scoping review

Health & Social Care in the Community, Journal Year: 2021, Volume and Issue: 30(4), P. 1275 - 1285

Published: Dec. 9, 2021

The COVID-19 pandemic has led to the closure or reduction in support services for family carers, resulting increased social isolation and stress this population. current scoping review aimed identify impact of upon carers provided them during pandemic. Four online databases (CINAHL, Medline, PsycINFO PubMed) were systematically searched on 16th December 2020 updated July 2021 articles written English published after January 2020, focused carer COVID-19. Google scholar reference lists relevant papers checked, key authors contacted further information. database searches identified 976 citations, which resulted 670 unique following removal duplicates. Title abstract screening 63 full-text review, 11 subsequently excluded, leaving 52 subject inductive thematic analysis. themes identified. Whilst a number issues that exacerbated by pandemic, others directly from it revealed. Few studies discussed measures only one trial evaluated an intervention. This identifies but there is dearth evidence inform appropriate tailored support. Governments need as priority group care reform commission co-produced, experience informed pathways reinstate services, potentially modelled plans example currently being considered paid healthcare workforce.

Language: Английский

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Double-duty caregivers enduring COVID-19 pandemic to endemic: “It’s just wearing me down”

PLoS ONE, Journal Year: 2024, Volume and Issue: 19(4), P. e0298584 - e0298584

Published: April 16, 2024

The COVID-19 pandemic has considerably strained health care providers and family caregivers. Double-duty caregivers give unpaid at home are employed as providers. This sequential mixed-method study, a survey followed by qualitative interviews, aimed to comprehensively understand the experiences of these Canadian double-duty amidst transition endemic phase. multi-section included standardized assessments such Caregiver Scale State Anxiety Scale, along with demographic, employment-related, work questions. Data analysis descriptive linear regression modeling statistics, content data. Out 415 respondents, majority were female (92.5%) married (77.3%), 54.9% aged 35 54 years 29.2% 55 64 years. 68.9% reported mental decline over past year, while 60.7% noted physical deteriorated. 75.9% participants self-rated their anxiety moderate high. final model explained 36.8% variance in participants’ levels. Factors contributing lower more personal supports, awareness limits, younger age, fewer weekly employment hours. Increased was linked poorer health, both perceptions consequences blurred boundaries. eighteen interviewees highlighted stress managing additional during pandemic. They difficulty navigating systems coordinating care. form significant portion healthcare workforce. Despite spotlight on caregiving pandemic, vital contributions well-being have remained unnoticed. Prioritizing welfare is crucial for they make up largest workforce, particularly evident ongoing workforce shortage.

Language: Английский

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The Experiences of Informal Carers during the COVID-19 Pandemic: A Qualitative Systematic Review

International Journal of Environmental Research and Public Health, Journal Year: 2022, Volume and Issue: 19(20), P. 13455 - 13455

Published: Oct. 18, 2022

To identify, critically appraise and synthesise the qualitative literature on experiences of informal carers people with long-term conditions during COVID-19 pandemic.A systematic review.Eight electronic databases were systematically searched (Medline, Embase, CINAHL, PubMed, PsychINFO, Web Science, Nursing Allied Health ASSIA) along Google Scholar handsearching via secondary sources.Eligible studies had to include (adults who are 65 or older), use a methodology be written in English.Retrieved papers quality assessed using Critical Appraisal Skills Programme checklist ranked for quality. Thematic analysis was used findings.Fourteen included, all from medical nursing journals (n = 5 specifically gerontology). Four main themes identified: (i) fear, (ii) uncertainty, (iii) burden (iv) staying connected. Caregiving demands have increased pandemic, as well negative emotions such fear uncertainty. At same time, less social support has been available, leading concerns about carers' wellbeing ability cope.Carers' needs exacerbated by pandemic. Greater practical emotional is needed both formal services community sources that considers their changing offers educational wellbeing. Strengths Limitations: (1) This first review explore depth caring range an international context. (2) The includes studies, study relative contributions. (3) Further research physical, financial impact pandemic bereaved which not captured this due lack empirical data available at time review.

Language: Английский

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The hidden patient

Journal of Family Medicine and Primary Care, Journal Year: 2022, Volume and Issue: 11(1), P. 5 - 9

Published: Jan. 1, 2022

Caregivers, or persons who provide unpaid support to a loved one could not manage live independently whose health well-being would deteriorate without this help, are increasingly common. These rates have only increased with the COVID-19 pandemic forcing many care for sick family members in short long term. Unfortunately, caregiving is associated significant burden and risks, caregivers themselves but also recipients of overwhelmed caregivers. risks been exacerbated by social isolation pandemic. Although interventions exist which proven reduce caregiver burden, education on these lacking, partly because there has memorable framework how In paper, an innovative teach clinicians about caring introduced, C.A.R.E. framework: Caregiver well-being, Advanced planning, Respite, Education. This simple will help providers become aware needs, comfortable addressing their able suggest burden. Knowledge should start medical students so that they can incorporate critical aspect primary into clinical practice early careers. If simply remember perform four interventions, our caregivers, then make impact lives both patients ones, during present thereafter.

Language: Английский

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Health-related quality of life in caregivers of community-dwelling individuals with disabilities or chronic conditions. A gender-differentiated analysis in a cross-sectional study

BMC Nursing, Journal Year: 2022, Volume and Issue: 21(1)

Published: March 29, 2022

Abstract Background Most care for people with chronic or disabling conditions living in the community is provided family context, and this traditionally by women. Providing informal has a negative impact on caregivers’ quality of life, which adds to existing health inequalities associated gender. The aim study was analyze factors health-related life caregivers determine their differences gender-differentiated analysis. Methods An observational, cross-sectional, multicenter conducted primary healthcare. A total 218 aged 65 years older were included, all whom assumed responsibility caring at least 6 months per year agreed participate CuidaCare study. dependent variable assessed EQ-5D. explanatory variables tested grouped into sociodemographic variables, subjective burden, caregiving role, social support related person. associations between these estimated fitting robust linear regression models. Separate analyses women men. Results 72.8% sample women, 27.2% mean score EQ-5D female 0.64 (0.31); male caregivers, it 0.79 (0.23). There gender frequency reported problems dimensions pain/comfort anxiety/depression. that also differed. Having positive depression screening negatively both genders: -0.31 points (95% CI: -0.47; -0.15) -0.48 -0.92; -0.03) caregivers. Perceived burden adjusted model (-0.12 points; 95% -0.19; -0.06), domestic help -0.05). Conclusions Gender are present caregiving. providing different so affect perceived life. It could be useful incorporates perspective design nursing interventions individualize improve Trial registration NCT 01478295 [ https://ClinicalTrials.gov ]. 23/11/2011.

Language: Английский

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Care burden, loneliness, and social isolation in caregivers of people with physical and brain health conditions in English‐speaking regions: Before and during the COVID‐19 pandemic

International Journal of Geriatric Psychiatry, Journal Year: 2022, Volume and Issue: 37(6)

Published: May 2, 2022

Abstract Background Public health restrictions due to the COVID‐19 (SARS CoV‐2) pandemic have disproportionately affected informal caregivers of people living with long term conditions. We aimed explore levels care burden, loneliness, and social isolation among enduring physical brain conditions in English‐speaking regions worldwide, by investigating outcomes before during pandemic. Methods A cross‐sectional anonymous online survey data from 2287 four (UK, Ireland, USA, New Zealand) included measures isolation, reported Analyses were descriptive, followed an ordinal regression model for predictors burden. Results Compared pre‐pandemic levels, all experienced a significant increase isolation. Caregivers both most burdened had highest loneliness compared either or condition only. The burden challenges was associated caregiver's gender, moderate severe emotional magnitude frequency pandemic, circumstances (cohabitation recipient, on ability provide care). Conclusions Health interventions should target caregivers' psychological outcomes, particularly women, accounting additional care, resulting pandemic‐related restrictions.

Language: Английский

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Neglected Needs of Family Caregivers during the COVID-19 Pandemic and What They Need Now: A Qualitative Study

Diseases, Journal Year: 2021, Volume and Issue: 9(4), P. 70 - 70

Published: Oct. 13, 2021

COVID-19 has had a negative impact on family caregivers, whether the care receivers lived with caregiver, in separate community home, supportive living, or long-term care. This qualitative study examines points of view caregivers who diverse settings. Family were asked to describe what could have been done support them during pandemic and suggest supports they need future as wanes. Thorne's interpretive methodology was employed examine current caregiver concerns. Thirty-two participated. thought under-resourced, continuing system delayed planning, that silos health systems made caregiving more difficult. want their roles be recognized policy, cite for improvements communication navigation. The growth demand contributions healthcare make it critical role funding, practice.

Language: Английский

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