The emotional impact of COVID-19 on Australian cancer patients, their caregivers, and oncology health professionals over time: a longitudinal qualitative study DOI Creative Commons
Joanne Shaw, Polly E. Havard, Haryana M. Dhillon

et al.

Journal of Psychosocial Oncology Research and Practice, Journal Year: 2022, Volume and Issue: 4(4)

Published: Oct. 1, 2022

Abstract Background: Cross-sectional research has highlighted the emotional impacts of coronavirus disease 2019 (COVID-19) in cancer communities. The aim this study was to extend findings and provide a longitudinal perspective effects COVID-19 on range participants, including patients with cancer, their family members, oncology health professionals (HPs) Australia. Methods: This mixed-methods, incorporated semistructured interviews psychological well-being survey data collected at three time points between June 2020 October 2021. Results: Seventy-seven participants volunteered point 1 (T1; 32 patients, 16 caregivers, 29 HPs), 52 timepoint 2 (23 10 19 43 3 (19 8 HPs). Overall, were psychologically well; however, elevated depressive symptoms detected HPs by 3. Qualitative results toll for all participant groups over time. Three shared themes emerged: (1) balancing fear safety, (2) uncertainty an ever-changing situation, (3) fatigue due lack support sense isolation. An additional theme unique also identified: (4) dread what is come already exhausted workforce. Conclusion: Despite Australia's relatively low case numbers, community apparent. Longitudinal indicate consistency burden adding third interview. Participants challenged balance needs personal safety against priorities environment Over time, emerged, HPs, increased workloads left many feeling overwhelmed unsupported around future outcomes.

Language: Английский

Palliative care delivery changes during COVID-19 and enduring implications in oncology nursing: a rapid review DOI
Kristin Levoy, Anessa M. Foxwell, William E. Rosa

et al.

Current Opinion in Supportive and Palliative Care, Journal Year: 2022, Volume and Issue: 16(3), P. 94 - 101

Published: July 22, 2022

Purpose of review A rapid was conducted to synthesize evidence palliative care delivery changes during the COVID-19 pandemic. Changes were synthesized according eight domains high-quality and enduring implications for oncology nurses beyond pandemic discussed. Recent findings The most significant occurred in structure processes (Domain 1), where increased utilization telehealth critical circumventing barriers imposed by mitigation. suboptimal availability community-based psychosocial supports patients caregivers inadequate health system-based healthcare providers highlighted (Domains 3–5). also ushered an emphasis on need advance planning (ACP), integrating its earlier outpatient setting shifting policy promote subsequent virtual documentation 8) essential ensure preferences clarified accessible before crises occurred. Summary Continuing embrace sustain systems-level with respect telehealth, supports, ACP are bridging gaps underscored Oncology well positioned fill these providing evidence-based, throughout cancer continuum.

Language: Английский

Citations

10
Effectiveness of Group Spiritual Care on Leukemia Patients' Hope and Anxiety in Iran: A Randomized Controlled Trial DOI
Mohammad R. Torabi, Vahid Yousofvand, Reza Mohammadi

et al.

Journal of Religion and Health, Journal Year: 2023, Volume and Issue: 63(2), P. 1413 - 1432

Published: July 11, 2023

Language: Английский

Citations

6
The hidden psychosocial impact of caregiving with chronic haematological cancers: A qualitative study DOI Creative Commons
Orlaith Cormican, Maura Dowling

European Journal of Oncology Nursing, Journal Year: 2023, Volume and Issue: 64, P. 102319 - 102319

Published: March 17, 2023

People living with a chronic haematological malignancy (CHM) are longer due to the continued emergence of novel treatments. Their care is mostly delivered in an outpatient setting, and little known about their experience this disease trajectory. The aim qualitative study was explore carers' experiences, expressed needs psychosocial vulnerability.In-depth interviews purposive sample carers (n=11) explored experiences caring for someone CHM impact it had on lives. Reflexive thematic analysis guided data analysis.Two main themes were developed from interview data: 1) restructured living, 2) sustaining caring, six subthemes: shrinking world, constant carer, healthcare professional support, needing information, particularly early days, peer taking control.Caregivers patients undergo significant life change which often invisible others. Identifying at risk vulnerability recognising caregiver as member team steps towards addressing support population.

Language: Английский

Citations

4
An integrative review of adult cancer patients’ experiences of nursing telephone and virtual triage systems for symptom management DOI Creative Commons
Martina Piazza, Amanda Drury

European Journal of Oncology Nursing, Journal Year: 2023, Volume and Issue: 67, P. 102428 - 102428

Published: Oct. 13, 2023

PurposeTelephone and virtual triage services are becoming increasingly common in ambulatory oncology settings. Few studies have evaluated their implementation from the perspective of service users. This study aims to evaluate experiences engaging with nurse-delivered telephone systems for symptom management among people undergoing cancer treatment.MethodsAn integrative review was undertaken. MEDLINE, CINAHL, PsycInfo, Academic Search Complete Scopus were systematically searched. Twelve publications met inclusion criteria, data related patients' perceptions process extracted analysed.ResultsTelephone-based (n=7), app-based (n=5) video-based teleconferencing (n=2) positively overall, enhancing ease health system navigation, avoidance emergency department consultation, information, reassurance support provided self-management symptoms. However, several factors influenced users' engagement services, including confidence articulate symptoms, limited opening hours, waiting times initial or follow-up digital literacy. Collectively, these contributed delayed reporting under-reporting undermining potential impact services. Studies included variable intervention characteristics, qualification nurses delivering leading services.ConclusionsFuture evaluations must give greater consideration characterisation interventions ensure transferability, nursing roles qualifications. To effective optimal supportive care management, patients be prepared engage early. Future literacy on with, experience of, is investigated.

Language: Английский

Citations

4
Predicting psychological distress in advanced ovarian cancer patients during the COVID-19 pandemic DOI Creative Commons

Mike Rennoldson,

Michael Baliousis, Adam Potter

et al.

Supportive Care in Cancer, Journal Year: 2024, Volume and Issue: 32(7)

Published: July 1, 2024

This longitudinal study investigated distress rates in patients with advanced ovarian cancer during the COVID-19 pandemic and examined whether time, illness representations, coping strategies predicted levels.

Language: Английский

Citations

1
Decision Conflicts in Clinical Care during COVID-19: A Patient Perspective DOI Open Access
Jörg Haier, Johannes Beller, Kristina Adorjan

et al.

Healthcare, Journal Year: 2022, Volume and Issue: 10(6), P. 1019 - 1019

Published: May 31, 2022

(1) Background: Uncertainty is typical for a pandemic or similar healthcare crisis. This affects patients with resulting decisional conflicts and disturbed shared decision making during their treatment occurring to very different extent. Sociodemographic factors the individual perception of pandemic-related problems likely determine this dilemma can characterize vulnerable groups special susceptibility related consequences. (2) Methods: Cross-sectional data from OnCoVID questionnaire study were used involving 540 11 participating institutions covering all major regions in Germany. Participants actively involved clinical oncology psychiatry COVID-19 pandemic. Questionnaires covered five dimensions (conflicts uncertainty, resources, risk perception, consequences processes, patients) basic demographic (age, gender, stage educational background). Decision uncertainties distress operationalized using equidistant five-point scales. Data analysis was performed descriptive various multivariate approaches. (3) Results: A total 11.5% described intensive uncertainty decisions that significantly correlated anxiety, depression, loneliness stress. Younger female those higher status had highest values these stressors (p < 0.001). Only 15.3% (14.9% oncology, 16.2% psychiatry; p = 0.021) considered additional infections as important disease-related decisions. Regression identified determinants at dilemma, including information availability, level, age group requirement making. (4) Conclusions: In patients, induced specific accompanied by intensified stress psychological disturbances. Determinants vulnerability sex, younger age, education disease stages modifications, whereas availability sufficient prevented problems. The most criteria under conditions expected side effects/complications responses.

Language: Английский

Citations

5
Psychosocial effects of the corona pandemic on people with cancer: a qualitative study DOI Creative Commons
Catalina Hoppe,

Jens Büntzel,

Kerstin Paradies

et al.

Journal of Cancer Research and Clinical Oncology, Journal Year: 2023, Volume and Issue: 149(13), P. 11031 - 11039

Published: June 20, 2023

Abstract Introduction The Corona pandemic caused far-reaching changes since 2020. We wanted to find out which factors determined the psycho-social well-being of cancer patients during pandemic. Methods From May July 2021, structured interviews were conducted concerning lockdown, social limitations, virus itself, treatment situation, and opportunities. Results Twenty people took part in study (doctors, psychologists, nurses, workers, patients). One most important aspects was ban on visits. Others fear infection possibility vaccination. Wearing a mask seem have been worse for experts. Conflicts families about “right” behavior protect yourself from stressful issue patients, just as lack balance recreation free time . Conclusion Patients third wave corona become accustomed rules. Especially loneliness organization at home are stress factors.

Language: Английский

Citations

2
Fear of being infected with COVID-19 virus among the medical social workers and its relationship to their future orientation DOI Creative Commons
Yaser Snoubar, Oğuzhan Zengin

Frontiers in Psychology, Journal Year: 2022, Volume and Issue: 13

Published: Sept. 6, 2022

COVID-19 has been studied extensively for its direct effects on healthcare workers. Despite this, very little is known about the effect of fear future orientation. Studying medical social workers’ being infected with and their orientation was primary method used to examine this relationship. 204 Turkish workers pandemic’s front lines were included in total sample. Social found be extremely concerned contracting COVID-19. Although only gender a significant predictor infection, study also that female have higher infection than males. Also, no correlation exists between vaccination status There weak negative orientation, but general, had positive Medical front-line health care providers can use these findings develop effective culturally appropriate intervention programs reduce concerns foster forward-looking outlook.

Language: Английский

Citations

3
Emergency Department Visits among Cancer Patients during SARS-CoV-2 Pandemic DOI Open Access
Davide Valsecchi, Luca Porcu, ABDELRAHMAN KHATER

et al.

Cancers, Journal Year: 2023, Volume and Issue: 15(4), P. 1240 - 1240

Published: Feb. 15, 2023

The coronavirus disease 2019 (COVID-19) pandemic has had a global impact. Patients with cancer, their caregivers, and physicians need to balance the challenges associated COVID-19 while ensuring cancer care. Nevertheless, emotional distress hospital departmental reorganization could have led decrease in ED admissions even among oncological patients. Methods: We compared 72 days of 2020 same calendar 2021, defining 20% visits as clinically significant. studied cause for visit, its severity, outcome (admission vs. discharge death hospice/palliative care), tumor site, method arrival 3 time periods. Results: A significant was found 2019, before returning similar numbers 2021. Fear, anxiety, worry, addition reorganization, surely an important role delay visits, which resulted irreparable consequences.

Language: Английский

Citations

1
Stakeholder perspectives on the impact of COVID-19 on oncology services: a qualitative study DOI Creative Commons
Phyllis Butow, Polly E. Havard, Zoe Butt

et al.

Supportive Care in Cancer, Journal Year: 2023, Volume and Issue: 31(8)

Published: July 24, 2023

As COVID-19 spread across the globe, cancer services were required to rapidly pivot minimise risks without compromising outcomes for patients or staff. The aim of this study was document changes oncology as a result from perspectives both providers and receivers care during initial phase pandemic.Participants recruited between June December 2020 through an email invitation via professional consumer organisations, two hospital-based snowballing. Semi-structured interviews focused on health service their impacts, which then analysed by thematic analysis.Thirty-two patients, 16 carers 29 professionals recruited. Fifteen (n = 47%) had localised disease, 19 59%) currently receiving treatment. Oncology staff included oncologists, palliative physicians, nurses, allied psychosocial practitioners. Four themes arose data: safety, increased stress burnout, communication challenges quality care.There is ongoing need cancer-specific information single, trusted source inform medical practitioners patients/carers. More data are evidence-based guidelines future pandemics. All stakeholders require support avoid burnout.

Language: Английский

Citations

1