Journal of Pain and Symptom Management, Journal Year: 2024, Volume and Issue: unknown
Published: Oct. 1, 2024
The provision of appropriate psychosocial support has a significant impact on quality life for informal caregivers terminally ill patients. Long-distance have specific wishes and needs support.
Language: Английский
Frontiers in Public Health, Journal Year: 2025, Volume and Issue: 13
Published: Feb. 7, 2025
To explore the palliative care education experiences of doctors, nurses, and community residents. A semi-structured interview was conducted with 2 8 nurses 9 residents in Jinan. Content analysis behavior change wheel theory were used to analyze content. Motivation: The road be taken; Emotional touch personal experiences; Prepare early; Not now. Capability: Multiple cognition; Need for a topic catalyst; Trust bias; Disconnect between learning application; Treading on thin ice. Opportunity: Willing but unable; larger voice greater participation. Community requires attention. exhibit diverse perceptions attitudes toward care, reflecting influence sociocultural factors. Innovating content format educational resources enhancing medical staff will facilitate care.
Language: Английский
Citations
0
Journal of Hospice and Palliative Nursing, Journal Year: 2025, Volume and Issue: unknown
Published: April 23, 2025
This rapid review provides an overview of active family engagement (defined as supporting the patient psychologically, physically, spiritually, or emotionally) in hospice and end-of-life care settings across lifespan. A librarian-assisted search CINAHL (Cumulative Index to Nursing Allied Health Literature) database over past 5 years (English language only) yielded 1928 articles; 22 these articles met inclusion criteria for data extraction. The reviewed literature emphasized importance care, highlighting need effective communication, emotional support, tailored interventions that nurses may use support caregivers. highlighted opportunities further educate train palliative on evidence-based replicable approaches families they deliver at end life.
Language: Английский
Citations
0
Journal of Palliative Medicine, Journal Year: 2024, Volume and Issue: 27(9), P. 1229 - 1246
Published: April 10, 2024
Due to their remote location, rural-dwelling family caregivers (FCGs) experience geographic and psychosocial challenges when providing home-based palliative end-of-life (PEOL) care for recipient. Limited research has evaluated the social environmental factors that may compound FCG burden contribute adverse emotional health outcomes among PEOL FCGs.
Language: Английский
Citations
2
American Journal of Hospice and Palliative Medicine®, Journal Year: 2024, Volume and Issue: 41(12), P. 1400 - 1407
Published: Feb. 6, 2024
Hospice family caregivers (HFCGs) support the needs of their loved ones but are at risk developing distress and anxiety. NOVELA is a four-chapter telenovela-style educational video to topics related hospice caregiving. Telehealth visits scheduled in 4 weekly sessions consisting chapter subsequent discussion with an interventionist. This feasibility pilot study tested NOVELA's effect change HFCGs' outcomes, session outcome measure completion (defined priori as >70%).
Language: Английский
Citations
0
Palliative Medicine Reports, Journal Year: 2024, Volume and Issue: 5(1), P. 162 - 170
Published: April 1, 2024
The Effective Management of Pain by Overcoming Worries to Enable Relief (EMPOWER) intervention is an evidence-supported approach for addressing barriers pain management (e.g., patient/family concerns about addiction) at the end life. Such appear more pronounced among Spanish-speaking individuals. This study aimed (1) translate EMPOWER materials into Spanish, (2) disseminate hospices with ≥25% Hispanic patients, and (3) survey use usefulness materials.
Language: Английский
Citations
0
Journal of Hospice and Palliative Nursing, Journal Year: 2024, Volume and Issue: 26(4), P. 224 - 230
Published: May 31, 2024
Black caregivers face distinct challenges in symptom management when providing end-of-life care. Educational interventions may improve caregiver preparedness and competency by information on management. This study pilot tested 4 culturally tailored educational videos about for receiving home hospice care at a large, urban, nonprofit organization to determine feasibility acceptability, along with their potential impact outcomes. All participants (N = 10) agreed watch the found be helpful; 90% (n 9) shared that they would recommend them other Total scores increased from mean score of 23.5 preintervention 28.3 postintervention. Caregiver 13.8 14.3 Caregivers' comfort knowledge postintervention all 7 topics presented videos. it was feasible acceptable show related issues regarding Many helpful relatable. There were trends toward improvement competency. Future studies examining efficacy are needed this intervention.
Language: Английский
Citations
0
Palliative Medicine Reports, Journal Year: 2024, Volume and Issue: 5(1), P. 238 - 246
Published: May 1, 2024
Background: Nearly half of more than 1.7 million older Americans who receive hospice care each year have a primary or comorbid diagnosis dementia. Pain is often undertreated in this patient population owing to myriad factors, including unmet informational needs among family caregivers.
Language: Английский
Citations
0
Journal of Pain and Symptom Management, Journal Year: 2024, Volume and Issue: unknown
Published: Oct. 1, 2024
The provision of appropriate psychosocial support has a significant impact on quality life for informal caregivers terminally ill patients. Long-distance have specific wishes and needs support.
Language: Английский
Citations
0