Measuring hope and resilience in carers of people living with dementia: The positive psychology outcome measure for carers (PPOM-C)

Dementia, Journal Year: 2023, Volume and Issue: 22(5), P. 978 - 994

Published: March 18, 2023

Positive psychology outcome measures aim to quantitatively document the character strengths that people use maintain their wellbeing. aspects of caregiving including is gaining credence in dementia carer literature but there remain few psychometrically robust tools by which capture this. The current study evaluated psychometric properties a newly developed measure hope and resilience for family carers living with dementia.An online where (n = 267) completed adapted Psychology Outcome Measure - Carer version (PPOM-C), Hospital Anxiety Depression Scale subscale (HADS-D), Short Form Health Survey (SF-12), Multidimensional Perceived Social Support (MSPSS).Psychometric analysis indicated strong PPOM-C carers, two items dropped improve internal consistency. Convergent validity was established, correlations between hope, resilience, depression symptomology, quality life social support. A Confirmatory Factor Analysis acceptable model fit.The tool can be recommended large scale psychosocial research. this research practice will provide more nuanced understanding role how support wellbeing population.

Language: Английский

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Learning to use music as a resource: the experiences of people with dementia and their family care partners participating in a home-based skill-sharing music intervention: a HOMESIDE sub-study

Frontiers in Medicine, Journal Year: 2023, Volume and Issue: 10

Published: May 18, 2023

An increasing number of people with dementia receive informal care from family members to help them remain living in the community. Music therapy is particularly beneficial for supporting wellbeing dementia. However, little known about how music might support and their partners as dyads. This study explored experiences six dyads participating a 12-week home-based skill-sharing intervention facilitated by therapist. We examined during period 3–6 months following. was conducted within larger randomised control trial, HOMESIDE. Data collected through video-recorded music-based interviews, participant diaries, semi-structured interview. analysed using an abductive relational-centred research approach consideration Contextual Connection Model Health Musicking People Living Dementia Their Family Care Partners . The found fifteen themes that describe dyads’ supported sharing homes. These were organised into three global themes: (1) shaped complex influences; (2) connected musical ecosystem; (3) resource wellbeing. highlighted important role personalised facilitation therapeutic relationship learned use process trial error. implications skill-sharing, indirect direct practice are discussed.

Language: Английский

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Testing an Intervention to Improve Posthospital Outcomes in Persons Living With Dementia and Their Family Care Partners

Innovation in Aging, Journal Year: 2023, Volume and Issue: 7(7)

Published: Aug. 16, 2023

Hospitalized persons living with dementia are at risk for functional decline, behavioral symptoms of distress, and delirium, all persisting in the postacute period. In turn, family care partners (FCPs) experience increased anxiety lack preparedness caregiving, compounding existing strain burden. Family-centered Function-focused Care (Fam-FFC) purposefully engages FCPs assessment, decision-making, delivery, evaluation function-focused during after hospitalization (within 48 hours discharge, weekly telephone calls a total 7 additional weeks, then monthly 4 months). The objective this study was to test efficacy Fam-FFC.A cluster randomized controlled trial included 455 dyads 6 medical units 3 hospitals. Patient outcomes return baseline physical function, depressive symptoms, delirium severity. Family partner measures anxiety, strain, burden.Multilevel level modeling demonstrated that likelihood returning function across time Fam-FFC participants twice control group by end months (OR = 2.4, p .01, 95% CI 1.2-4.7). also associated fewer distress (b -1.1, SE 0.56, .05) but no differences amount moderate activity, Preparedness caregiving significantly only from 2 0.89, 0.45, d 0.21, overall .02) intervention group, burden.Family-centered may help prevent some decline hospitalized dementia. Further research is needed promote sustained improvements these more attention needs partner.

Language: Английский

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Developing a framework of concerns from people living with frailty, for the Measure Yourself Concerns and Wellbeing (MYCaW) person-centred outcome measure

BMJ Open Quality, Journal Year: 2024, Volume and Issue: 13(1), P. e002689 - e002689

Published: Jan. 1, 2024

Measure Yourself Concerns and Wellbeing is a validated person-centred outcome measure, piloted as core monitoring tool to understand what matters people living with frailty in Gloucestershire. This paper describes the acceptability of MYCaW used this setting, development framework for analysing personalised concerns from frailty.

Language: Английский

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The effects of individual music therapy in nursing home residents with dementia to improve general well-being: study protocol of a randomized controlled trial

BMC Geriatrics, Journal Year: 2024, Volume and Issue: 24(1)

Published: March 27, 2024

Abstract Background Dementia is often associated with Neuropsychiatric Symptoms (NPS) such as agitation, depression, hallucinations, anxiety, that can cause distress for the resident dementia in long-term care settings and impose emotional burden on environment. NPS are treated psychotropic drugs, which, however, frequently side effects. Alternatively, non-pharmacological interventions improve well-being maintain an optimal quality of life (QoL) those living dementia. Other QoL related outcomes, pain, discomfort sleep disruption relevant outcomes music trials well. Music therapy a intervention reduce well-being, its symptoms Methods The research will be conducted at eight nursing home facilities health organization Netherlands. A sample size 30 each group (experimental control group) required, totalling 60 residents increased to 80 when considering expected drop out follow up. participants receive min individual (MT) their own room by therapist twice week 12 weeks. attention volunteer Assessments done baseline, 6 weeks An independent observer, blinded or condition, assess directly observed (primary outcome) pain (secondary before after sessions. Nurses other secondary unblinded, i.e., perceived NPS, both assessed validated scales. duration indirectly wrist device called MotionWatch. Information about drug use derived from electronic medical chart review. Discussion main purpose this study effects controlled NPS. refer short-term consistent therapeutic goals longer term. We hope overcome limitations previous designs not facilitators were only therapists but also occupational nurses. This should lead more focused recommendations practice further into therapy. Trial registration trial registered International Clinical Trials Registry Platform (ICTRP) search portal Netherlands Registration number NL7708, date 04-05-2019.

Language: Английский

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