Impact of COVID-19 on the Health and Well-being of Informal Caregivers of People with Dementia: A Rapid Systematic Review

Gerontology and Geriatric Medicine, Journal Year: 2021, Volume and Issue: 7

Published: Jan. 1, 2021

Background: In December 2019, the severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2), or COVID-19, raised worldwide concern. Since then, COVID-19 pandemic has negatively influenced health and wellness across globe caused nearly three million deaths. This study focuses on informal caregivers of people with dementia, a disease that affects about 50 older adults requires much caregiving support. Objective: Examine current literature impact well-being for dementia. Method: rapid review was conducted five electronic databases quantitative qualitative articles published through March 15, 2021. Results: The 10 studies included in this reported descriptive data from globe; however, no existed U.S. East Asia countries. All examined psychological rather than physical highlighted risk protective factors areas psychosocial (resilience, neuropsychiatric, social isolation), sociodemographic (gender education), environmental (home confinement, living arrangement, dementia stage). Conclusion: had considerable negative namely causing more depression anxiety pre-pandemic.

Language: Английский

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Being the Family Caregiver of a Patient With Dementia During the Coronavirus Disease 2019 Lockdown

Frontiers in Aging Neuroscience, Journal Year: 2021, Volume and Issue: 13

Published: April 20, 2021

Background: Family caregivers of patients with dementia are at high risk stress and burden, quarantine due to the coronavirus disease 2019 (COVID-19) pandemic may have increased psychological disturbances in this population. The current study was carried out during national lockdown declared March 2020 by Italian government as a containment measure first wave is nationwide survey on impact COVID-19 mental health informal caregivers. Methods: Eighty-seven centers evenly distributed territory enrolled 4,710 caregiver–patient pairs. Caregivers underwent telephone interview assessing classical symptoms caregiver concern for consequences infection patient’s health. We calculated prevalence regressed them various potential factors: caregivers’ sociodemographic characteristics lifestyle, patients’ clinical features, lockdown-related elements, like discontinuity medical care. Results: Approximately 90% reported least one symptom stress, nearly 30% four or more symptoms. most prevalent were (75%) anxiety (46%). main factors identified conflicting relationship patient assistance, but caregiver’s female sex, younger age, lower education, cohabitation also had an impact. Availability help from institutions private individuals showed protective effect against sense abandonment detrimental about contract COVID-19. only factor mild severity, which associated feeling isolated abandoned; type dementia, other hand, did not affect risk. Conclusion: Our results demonstrate large family both situations higher should be taken into account planning interventions support quarantined families patients.

Language: Английский

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The effects of the COVID-19 pandemic on neuropsychiatric symptoms in dementia and carer mental health: an international multicentre study

Scientific Reports, Journal Year: 2022, Volume and Issue: 12(1)

Published: Feb. 14, 2022

Abstract As a global health emergency, the rapid spread of novel coronavirus disease (COVID-19) led to implementation widespread restrictions (e.g., quarantine, physical/social distancing measures). However, while these reduce viral COVID-19, they may exacerbate behavioural and cognitive symptoms in dementia patients increase pressure on caregiving. Here, we aimed assess impact COVID-19 related both carers people living with across world. We conducted an international survey (Australia, Germany, Spain, Netherlands) dementia. People experienced worsened neuropsychiatric since outbreak most commonly, depression, apathy, delusions, anxiety, irritability, agitation. Regression analyses revealed that limited understanding situation not carer was associated symptoms. Carers also reported decline their own mental health, increased stress reduced social networks as result restrictions. uncertainty about future loneliness were health. Findings from this study will inform strategies for development support services compassionate protocols meet evolving needs those carers.

Language: Английский

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Links between COVID-19 and Parkinson’s disease/Alzheimer’s disease: reciprocal impacts, medical care strategies and underlying mechanisms

Translational Neurodegeneration, Journal Year: 2023, Volume and Issue: 12(1)

Published: Jan. 30, 2023

Abstract The impact of coronavirus disease 2019 (COVID-19) pandemic on patients with neurodegenerative diseases and the specific neurological manifestations COVID-19 have aroused great interest. However, there are still many issues concern to be clarified. Therefore, we review current literature complex relationship between an emphasis Parkinson’s (PD) Alzheimer’s (AD). We summarize infection symptom severity, progression, mortality rate PD AD, discuss whether could trigger AD. In addition, susceptibility prognosis in AD also included. order achieve better management patients, modifications care strategies, drug therapies, vaccines during listed. At last, mechanisms underlying link reviewed.

Language: Английский

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Impact of the COVID‐19 pandemic on family carers in the community: A scoping review

Health & Social Care in the Community, Journal Year: 2021, Volume and Issue: 30(4), P. 1275 - 1285

Published: Dec. 9, 2021

The COVID-19 pandemic has led to the closure or reduction in support services for family carers, resulting increased social isolation and stress this population. current scoping review aimed identify impact of upon carers provided them during pandemic. Four online databases (CINAHL, Medline, PsycINFO PubMed) were systematically searched on 16th December 2020 updated July 2021 articles written English published after January 2020, focused carer COVID-19. Google scholar reference lists relevant papers checked, key authors contacted further information. database searches identified 976 citations, which resulted 670 unique following removal duplicates. Title abstract screening 63 full-text review, 11 subsequently excluded, leaving 52 subject inductive thematic analysis. themes identified. Whilst a number issues that exacerbated by pandemic, others directly from it revealed. Few studies discussed measures only one trial evaluated an intervention. This identifies but there is dearth evidence inform appropriate tailored support. Governments need as priority group care reform commission co-produced, experience informed pathways reinstate services, potentially modelled plans example currently being considered paid healthcare workforce.

Language: Английский

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Guilt, tears and burnout—Impact of UK care home restrictions on the mental well‐being of staff, families and residents

Journal of Advanced Nursing, Journal Year: 2022, Volume and Issue: 78(7), P. 2191 - 2202

Published: Feb. 21, 2022

The aim of this study was to explore the impact pandemic on emotional and mental well-being family carers, care home staff residents, in light changing restrictions, increased testing vaccination rollout UK.Longitudinal, qualitative semi-structured interview study.Remote interviews were conducted with carers residents dementia from different homes across UK. Baseline follow-up October/November 2020 March 2021, respectively. Data analysed using inductive thematic analysis involving members public caring experiences.In all, 42 participated at baseline, 20 followed up. We identified four themes: (1) Developing anger frustration; (2) Impact relationships; (3) Stress burnout; (4) Behavioural changes, perceived residents. health everyone involved, including has been negatively affected, relationships between have severely strained. There a general lack adequate support, little relief.The had detrimental lives those surrounding homes-from carers. Consideration should be given how best support needs all three groups, by providing easily accessible for all. This also focus rebuilding staff.This is first paper highlight effects long-lasting miscommunicated restrictions staff, urgent need continued support.

Language: Английский

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The impact of social isolation from COVID-19-related public health measures on cognitive function and mental health among older adults: A systematic review and meta-analysis

Ageing Research Reviews, Journal Year: 2022, Volume and Issue: 85, P. 101839 - 101839

Published: Dec. 31, 2022

We aimed to estimate the impact of social isolation on cognitive function and mental health among older adults during two-year-and-a-half COVID-19 period. Pubmed Central, Medline, CINAHL Plus PsychINFO were searched between March 1, 2020, September 30, 2022. included all studies that assessed proportions with mean or median a minimum age above 60 reporting worsening health. Thirty-two from 18 countries met eligibility criteria for meta-analyses. found dementia who experienced impairment exacerbation new onset behavioral psychological symptoms (BPSD) approximately twice larger than HC experiencing SCD Stage dementia, care options, severity mobility restriction measures did not yield significant differences in number BPSD, while length BPSD but impairment. Our study highlights adults. Public strategies should prioritize efforts promote healthy lifestyles proactive assessments.

Language: Английский

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“Nobody Seems to Know Where to Even Turn To”: Barriers in Accessing and Utilising Dementia Care Services in England and The Netherlands

International Journal of Environmental Research and Public Health, Journal Year: 2021, Volume and Issue: 18(22), P. 12233 - 12233

Published: Nov. 22, 2021

Background: Accessing post-diagnostic care can be difficult for people with dementia and their informal carers. Little is known, however, about the determinants of barriers to access, how these might vary between countries. The aim this study was explore potential inequalities in access formal services England Netherlands, specifically from more disadvantaged areas. Methods: This a mixed-methods study, involving semi-structured qualitative interviews carer questionnaire. People carers were recruited by clinicians. postal survey co-produced dementia, carers, health professionals. asked own relatives dementia’s, social support service usage financing; as well they made aware whether required support. Qualitative transcripts analysed two researchers each country using thematic analysis. Results: A total 103 questionnaires received post 13 conducted family January 2020 April 2020. Many accessed via self-funding. Thematic analysis generated five core themes: Health literacy; Having faith lack faith; Service suitability; Structural issues surrounding provision; Financing care. One major difference both country’s systems case manager network which benefitted rarely UK. Conclusions: need supported better accessing UK whilst some learning taken improve access.

Language: Английский

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Care burden, loneliness, and social isolation in caregivers of people with physical and brain health conditions in English‐speaking regions: Before and during the COVID‐19 pandemic

International Journal of Geriatric Psychiatry, Journal Year: 2022, Volume and Issue: 37(6)

Published: May 2, 2022

Abstract Background Public health restrictions due to the COVID‐19 (SARS CoV‐2) pandemic have disproportionately affected informal caregivers of people living with long term conditions. We aimed explore levels care burden, loneliness, and social isolation among enduring physical brain conditions in English‐speaking regions worldwide, by investigating outcomes before during pandemic. Methods A cross‐sectional anonymous online survey data from 2287 four (UK, Ireland, USA, New Zealand) included measures isolation, reported Analyses were descriptive, followed an ordinal regression model for predictors burden. Results Compared pre‐pandemic levels, all experienced a significant increase isolation. Caregivers both most burdened had highest loneliness compared either or condition only. The burden challenges was associated caregiver's gender, moderate severe emotional magnitude frequency pandemic, circumstances (cohabitation recipient, on ability provide care). Conclusions Health interventions should target caregivers' psychological outcomes, particularly women, accounting additional care, resulting pandemic‐related restrictions.

Language: Английский

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COVID-19 Accelerated Cognitive Decline in Elderly Patients with Pre-Existing Dementia Followed up in an Outpatient Memory Care Facility

Journal of Clinical Medicine, Journal Year: 2023, Volume and Issue: 12(5), P. 1845 - 1845

Published: Feb. 25, 2023

Coronavirus disease 2019 (COVID-19) may affect the cognitive function and activities of daily living (ADL) elderly patients. This study aimed to establish COVID-19 effect on decline velocity ADL changes in patients with dementia followed up an outpatient memory care facility.In total, 111 consecutive (age 82 ± 5 years, 32% males) a baseline visit before infection were divided into those who had or did not have COVID-19. Cognitive was defined as five-point loss Mini-Mental State Examination (MMSE) score comprising basic instrumental indexes (BADL IADL, respectively). weighted for confounding variables by propensity score, whereas change MMSE analyzed using multivariate mixed-effect linear regression.COVID-19 occurred 31 44. about three half times more frequent (weighted hazard ratio 3.56, 95% confidence interval 1.50-8.59, p = 0.004). The lowered average 1.7 points/year, independently COVID-19, but it twice faster (3.3 vs. respectively, < 0.050). BADL IADL less than 1 point/year, occurrence. Patients higher incidence new institutionalization (45% versus 20%, 0.016, respectively).COVID-19 significant impact accelerated reduction dementia.

Language: Английский

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