International Journal of Geriatric Psychiatry, Journal Year: 2019, Volume and Issue: 34(8), P. 1251 - 1261
Published: May 1, 2019
The objectives of the study are to investigate how different levels functional ability relate quality life, well-being, and satisfaction with conceptualised as reflecting capability "live well" in people dementia.
Language: Английский
Aging & Mental Health, Journal Year: 2020, Volume and Issue: 25(7), P. 1281 - 1288
Published: Sept. 21, 2020
Objectives Accessing social care and support services is key to the well-being of people living with dementia (PLWD) unpaid carers. COVID-19 has caused sudden closures or radical modifications these services, resulting in prolonged self-isolation. The aim this study was explore effects related service changes on lives PLWD
Language: Английский
Citations
257
Neurology and Therapy, Journal Year: 2022, Volume and Issue: 11(2), P. 525 - 551
Published: Feb. 22, 2022
Alzheimer's disease (AD) is the leading cause of cognitive impairment and dementia in older individuals (aged ≥ 65 years) throughout world. As a result these progressive deficits cognitive, emotional, physical function, AD can functional disability loss independence. To gain deeper understanding recent literature on burden AD, including that mild (MCI) due to we conducted comprehensive targeted review PubMed-indexed (2014 2021) examine humanistic economic (including MCI) North America, Europe, Asia. Our identified range factors associated with quality life (QoL): some were positively QoL, caregiver relationship, religiosity, social engagement, ability engage activities daily living (ADL), whereas other such as neuropsychiatric symptoms poorer QoL. While patient- proxy-rated QoL are highly correlated patients early dementia, declines more substantially severity worsens. The maintenance self-reported severe may be lack awareness or adaptation circumstances. Compared persons normal cognition, MCI greater cost burden, exhibit worse Key drivers societal include severity, dependence level, institutionalization, comorbidity burden. Evaluation impact hypothetical disease-modifying treatment delaying progression from has suggested savings.
Language: Английский
Citations
91
Quality of Life Research, Journal Year: 2020, Volume and Issue: 29(8), P. 2073 - 2087
Published: March 13, 2020
Abstract Purpose This study (a) assessed quality of life (QoL) in a patient sample with severe mental illness an integrated psychiatric care (IC) programme selected regions Germany, (b) compared QoL among diagnostic groups and (c) identified socio-demographic, anamnestic clinical characteristics associated QoL. Methods cross-sectional included severely mentally ill outpatients substantial impairments social functioning. Separate dimensions were the World Health Organisation’s generic 26-item (WHOQOL-BREF) instrument. Descriptive analyses variance (ANOVAs) conducted for overall as well group. Results A total 953 patients fully completed WHOQOL-BREF questionnaire. this was lower than general population (mean 34.1; 95% confidence interval (CI) 32.8 to 35.5), lowest unipolar depression 30.5; CI 28.9 32.2) highest dementia 53.0; 47.5 58.5). Main diagnosis, living situation (alone, partner/relatives, assisted), number disease episodes, source income, age global impression (CGI) scores potential predictors QoL, but explained only small part variation. Conclusion Aspects health that increase despite presence disorder are essential patients, complete freedom from cannot be expected. patient-centred outcome should used one component recovery measures evaluating treatment outcomes care.
Language: Английский
Citations
72
Health and Quality of Life Outcomes, Journal Year: 2020, Volume and Issue: 18(1)
Published: July 24, 2020
Abstract Background Enabling people with dementia to ‘live well’ is a policy and research priority in many countries. However, instruments for measuring outcomes of psychosocial interventions designed promote well-being are often derived from symptom-focused, loss/deficit approach, or broad quality life concepts. A pan-European working group called on the development an alternative asset/strengths-based conceptual framework dementia. This paper takes forward this recommendation by developing such using map relevant self-report outcome measures. Methods Three scoping reviews published studies were conducted iteratively. First, we examined literature lived experiences then wider application constructs. The synthesised findings generated domains Corresponding used scoped, categorised within their potential value was examined. Findings Six measurement 35 that have been identified. developed specifically dementia, five gerontological 24 literature. Fifteen one sub-scale psychometric properties amongst To date, 20 as measures, seven change over time. number identified utilise traditional retrospective Likert-scaling response formats, limiting use some groups Conclusion An assets/strengths-based presented, outlining structural selecting measures It provides foundation enhancing into processes interventions, including instrument development, more precise matching intervention aims measurement, newer technology-based ‘in-the-moment’ measurement.
Language: Английский
Citations
72
Cochrane library, Journal Year: 2023, Volume and Issue: 2023(6)
Published: June 29, 2023
Language: Английский
Citations
40
International Psychogeriatrics, Journal Year: 2023, Volume and Issue: 36(2), P. 92 - 118
Published: Nov. 23, 2023
ABSTRACT Background: Social connections have a significant impact on health across age groups, including older adults. Loneliness and social isolation are known risk factors for Alzheimer’s disease related dementias (ADRD). Yet, we did not find review focused meta-analyses systematic reviews of studies that had examined associations with cognitive decline trials technology-based other interventions to enhance in people ADRD. Study design: We conducted scoping 11 as possible determinants adults or at developing also eight persons results: The strongest evidence an association lower was engagement activities. There linking network size function decline, but it consistently significant. A number of, though all, reported marital status Surprisingly, showing support reduces the ADRD weak. To varying degrees, designed reduce loneliness improved activities well quality life no cognition. discuss strengths limitations included. Conclusions: seem be most consistent components improving among individuals Socially aid deserve more research.
Language: Английский
Citations
23
BMC Geriatrics, Journal Year: 2024, Volume and Issue: 24(1)
Published: Jan. 5, 2024
Abstract Background Most people with dementia have multiple health conditions. This study explores (1) number and type of condition(s) in overall relation to age, sex, type, cognition; (2) change conditions over two years; (3) whether time the at baseline is related social isolation, loneliness, quality life, and/or well-being. Methods Longitudinal data from IDEAL (Improving experience Dementia Enhancing Active Life) cohort were used. Participants comprised ( n = 1490) living community (at baseline) Great Britain. Health using Charlson Comorbidity Index, cognition, well-being assessed years. Mixed effects modelling was Results On average participants had 1.8 baseline, excluding dementia; increasing 2.5 Those vascular or mixed (Alzheimer’s vascular) more than those Alzheimer’s disease. People aged ≥ 80 < 65 At having associated increased poorer well-being, but either minimally not isolation. Number minimal no influence on these variables time. Conclusions generally lonelier,
Language: Английский
Citations
8
International Journal of Geriatric Psychiatry, Journal Year: 2019, Volume and Issue: 34(5), P. 666 - 673
Published: Feb. 1, 2019
Modifiable lifestyle risk factors are of great interest in the prevention and management Alzheimer's disease (AD). Loneliness social networks may influence onset AD, but little is known about this relationship people with AD. The current study aimed to explore between loneliness (social measures) cognitive psychopathology decline (AD outcomes) AD.Ninety-three participants mild moderate AD were recruited from memory clinics, a cross-sectional study. Social (measured by Lubben Network Scale-6), feelings De Jong Scale), cognition Standardized Mini-Mental State Examination), Neuropsychiatric Inventory) assessed an interview setting. Two multiple regressions bootstrap conducted on as outcome variables. Family friends subsets entered predictors age, gender, depression covariates.The friendship subset was significantly related (independent depression, loneliness, family network): B = 0.284, P 0.01. Neither nor predicted (Ps > 0.05).Maintaining or developing close network could be beneficial for Alternatively, greater dementia severity lead fewer friends. More research direction needed.
Language: Английский
Citations
71
Alzheimer Disease & Associated Disorders, Journal Year: 2018, Volume and Issue: 33(1), P. 36 - 41
Published: Dec. 6, 2018
We aimed to better understand what predicts the capability "live well" with dementia by identifying relative contribution of life domains associated subjective experience living well.We analyzed data from 1547 individuals mild-to-moderate in IDEAL cohort. generated a "living latent factor measures quality life, satisfaction and well-being. used multivariate modeling identify variables related well structural equation derive for 5 examine associations these well.All were individually well. When modeled together, psychological characteristics health domain was only independent predictor [effect size, 3.55; 95% confidence interval (CI): 2.93-4.17], effect sizes smaller physical fitness (1.23, CI: -0.10 2.58), social capitals, assets resources (0.67; -0.04 1.38), managing everyday (0.33; -0.06 0.71), location (0.08; -2.10 2.26).Psychological resources, social, environmental, factors that underpin positive states, are potentially important targets interventions initiatives aim improve dementia.
Language: Английский
Citations
62
Age and Ageing, Journal Year: 2020, Volume and Issue: 49(4), P. 664 - 671
Published: Feb. 13, 2020
Abstract Objectives inconsistency in outcome measurement dementia care trials impedes the comparisons of effectiveness between trials. The key aim this study is to establish an agreed standardised core set (COS) for use when evaluating non-pharmacological health and social interventions people with living at home. Method we used a mixed-methods research design, including substantive qualitative five stakeholders groups. We consulted many aspects research. applied modified two-round 54 item Delphi approach attain consensus on outcomes. COS was finalised face-to-face meeting 2018. Results 288 who completed round 1 (21 dementia, 58 partners, 137 relevant professionals, 60 researchers, 12 policy makers), 246 2 (85% response rate). Twenty participants attended meeting. reached inclusion 13 items. Conclusion identified items which are considered core; relate health. Providing there adequate measures, measuring these will enhance making trial evidence more useful. provide commissioners service planners information what types most likely be valued highly by dementia. Trial registration registered COMET initiative database.
Language: Английский
Citations
62