Family-centred service in paediatric acquired brain injury rehabilitation: Bridging the gaps

Frontiers in Rehabilitation Sciences, Journal Year: 2022, Volume and Issue: 3

Published: Dec. 23, 2022

Children and adolescents who sustain an acquired brain injury (ABI) can experience acute ongoing difficulties in a range of cognitive functional domains, their families often significant life changes challenges. Family-centred service is therefore considered best practice paediatric ABI rehabilitation. Despite widespread acceptance family-centred this context, recent literature indicates that family needs are unrecognised unmet following ABI. Although was introduced the field developmental disability over five decades ago, there remains lack clarity about how approach implemented practice. Additionally, limited has discussed implementation rehabilitation despite key differences between disability, including nature timing onset, foci, impacts on families.In review, we aim to: (i) outline common sequelae with focus outcomes; (ii) summarise highlight opportunities for support involvement; (iii) discuss synthesise across to gaps knowledge practice; (v) identify clinical implications future research directions.There clear need greater consensus regarding This review highlights importance providing professional development clinicians increase competency practising manner, actively involve, empower within also emphasises services implementing relevant supports address where possible developing referral pathways so access further elsewhere when needed.

Language: Английский

Use of Goal Attainment Scaling to Measure Educational and Rehabilitation Improvements in Children with Multiple Disabilities

Behavioral Sciences, Journal Year: 2023, Volume and Issue: 13(8), P. 625 - 625

Published: July 27, 2023

With a focus on children with multiple disabilities (CMD), the purpose of this quality improvement project was to elevate educational measurement and practices involving CMD. Using goal attainment scaling (GAS) methodology, conducted within public charter school, Pattison's Academy for Comprehensive Education (PACE), focusing 31 CMD measuring student program effectiveness. For 2010-2011 2011-2012, improvements were demonstrated majority by meeting or exceeding their goals. Goal able capture in rehabilitation goals can provide an indication program's The use GAS has potential maximize participation across school setting where all United States commonly develop learn skills as well find meaning.

Language: Английский

Development and validation of the activities and participation children and adolescents –neck (APCAN) measure

Journal of Patient-Reported Outcomes, Journal Year: 2023, Volume and Issue: 7(1)

Published: Oct. 30, 2023

Neck pain is the fourth leading cause of years lost to disability in children warranting a comprehensive assessment neck and its impact on activities participation. Hence, purpose this study was develop new measure (i.e., Activities Participation Children Adolescents -neck [APCAN]) specific evaluating activity limitation participation restrictions adolescents establish content validity.Development validation APCAN completed four steps: (1) item development, (2) evaluation by experts, (3) validity calculation, (4) cognitive testing via interviews ensure readability comprehension items APCAN.An initial pool 52 created that revised 20 after modified Delphi process interviews. Each rated 0-10 numeric rating scale (0 = not difficult at all, 10 extremely difficult) with higher scores indicating perceived secondary pain. All retained ratio critical value overall index 0.88 excellent validity.The provides an easy use, functional limitations associated children.

Language: Английский