Supporting the mental health of children and young people with learning disabilities during COVID-19 DOI

Jacqui Wood,

Tracey Ann Hartley-Smith

Learning Disability Practice, Journal Year: 2022, Volume and Issue: 26(1), P. 17 - 23

Published: Oct. 13, 2022

This article explores the authors’ experiences of supporting mental health children and young people with learning disabilities during coronavirus disease 2019 (COVID-19) pandemic. The discusses prevalence risk factors for development issues in this group. It also describes some service improvement projects developed by a child adolescent team to support needs COVID-19 includes case study illustrate how flexible person-centred approach can population.

Language: Английский

From Aversive, Toward Appetitive: A Behavioral Conceptual Analysis of Compassion DOI

Hannah Kaplan‐Reimer,

Megan Duffy Cassella,

Melanie R. Schanke

et al.

Behavior Analysis in Practice, Journal Year: 2025, Volume and Issue: unknown

Published: March 25, 2025

Language: Английский

Citations

0
Psychotropic drugs intake in people aging with intellectual disability: Prevalence and predictors DOI
Laura Martínez García, Patricia Navas, Miguel Ángel Verdugo Alonso

et al.

Journal of Applied Research in Intellectual Disabilities, Journal Year: 2022, Volume and Issue: 35(5), P. 1109 - 1118

Published: April 5, 2022

Abstract Background Psychotropic medication is frequently administered to people with intellectual disability mental health and/or behavioural problems, instead of other non‐pharmacological interventions. This study describes the and problems aging disability, their psychotropic intake, factors contributing a greater intake. Method The sample consisted 991 over 45 years. Descriptive statistics multinominal logistic regression were carried out. Results Antipsychotics most used drug. Older mild living in institutions affected by more likely take larger amounts medication. Conclusions continue be widely especially those institutionalised settings. Future research should consider if intake could reduced providing better supports community

Language: Английский

Citations

16
Co-Occurring Mental Illness and Behavioral Support Needs in Adults with Intellectual and Developmental Disabilities DOI Open Access
Sarah Lineberry, Matthew Bogenschutz, Michael Broda

et al.

Community Mental Health Journal, Journal Year: 2023, Volume and Issue: 59(6), P. 1119 - 1128

Published: Feb. 5, 2023

Language: Английский

Citations

10
Two Genetic Mechanisms in Two Siblings with Intellectual Disability, Autism Spectrum Disorder, and Psychosis DOI Open Access
Yu‐Shu Huang,

Ting-Hsuan Fang,

Belle Kung

et al.

Journal of Personalized Medicine, Journal Year: 2022, Volume and Issue: 12(6), P. 1013 - 1013

Published: June 20, 2022

Intellectual disability (ID) and autism spectrum disorder (ASD) are complex neurodevelopmental disorders with high heritability. To search for the genetic deficits in two siblings affected ID ASD a family, we first performed genome-wide copy number variation (CNV) analysis using chromosomal microarray (CMA). We found 3.7 Mb microdeletion at 22q13.3 younger sister. This de novo resulted haploinsufficiency of SHANK3 several nearby genes involved neurodevelopment disorders. Hence, she was diagnosed Phelan-McDermid syndrome (PMS, OMIM#606232). further whole-genome sequencing (WGS) this family. did not detect pathogenic mutations significant impacts on phenotypes elder brother. Instead, identified rare, likely variants seven implicated disorders: KLHL17, TDO2, TRRAP, EIF3F, ATP10A, DICER1, CDH15. These were transmitted from his unaffected parents, indicating these have only moderate clinical effects. propose that worked together led to also suggest combination multiple effects is part mechanism

Language: Английский

Citations

10
Fostering inclusion in clinical and research procedures in children with neurodevelopmental disorders through augmentative and alternative communication: a narrative review and a proposal for visual aids application in brain stimulation DOI Creative Commons

Sara Passarini,

Fabio Quarin,

Giulia Lazzaro

et al.

medRxiv (Cold Spring Harbor Laboratory), Journal Year: 2024, Volume and Issue: unknown

Published: Nov. 2, 2024

Background and aims Children with neurodevelopmental disorders (NDDs) such as Autism Spectrum Disorder (ASD) Intellectual Disability (ID) may exhibit medical neurocognitive comorbidities requiring periodic check-ups. In addition, children NDDs often experience language difficulties that hamper an effective communication in the healthcare setting, potential deleterious effects on their compliance. turn, these challenges affect accessing resources receiving adequate short- long-term assistance for primary symptomatology any related comorbidities. Communication impairments also pose barriers involving clinical trials research procedures, those based use of Non-Invasive Brain Stimulation (NIBS). NIBS has shown various benefits across different conditions researchers are increasingly implementing its application, ASD other NDDs. Augmentative Alternative (AAC) be a valuable strategy to sustain participations procedures trials, promoting ethical principles equitable participation inclusion while adopting patient-centered approach. This systematically-conducted review aimed explore (i) ACC compliance during specifically focusing neuromodulation procedure NDDs; (ii) employment AAC tools settings. Methods Articles were searched from PubMed database. All found articles screened by title abstract, followed full text if they met criteria. Results The first search yielded no studies investigating among support comprehension implementation brain stimulation procedures. From second launched search, twelve reviewed. Almost majority eligible papers involved (67%), including small percentage ID (8%) or mixed etiology NNDs (25%). Of note, most included (8 out 12) focused dental care setting. Conclusion Despite methodological variability paucity exploring fostering this highlights AAC’s decreasing stress anxiety levels boosting adherence practices. Starting current literature evidence, protocol is proposed. Implications Promoting settings could beneficial approach enhance practice evidence-based literature. By developing NIBS, our proposal fill gaps. Ensuring crucial delivering gold standard care, adhering statements advancing scientific knowledge.

Language: Английский

Citations

1
Quality of life in adults with intellectual disabilities and mental health problems DOI
Izaskun Álvarez‐Aguado, Vanessa Vega Córdova, Maryam Farhang

et al.

British Journal of Learning Disabilities, Journal Year: 2022, Volume and Issue: 51(1), P. 53 - 61

Published: July 7, 2022

Abstract Background The number of people with intellectual disabilities and associated mental illness has increased considerably in recent years. This population presents greater obstacles than their peers without health problems accessing education, leisure, services. This, conditions quality life (QoL) makes them one the most vulnerable groups society. Methods study seeks to know level QoL 181 between ages 35 75, based on perceptions professionals who work different disability care services Chile. data were collected FUMAT scale. Findings dimensions self‐determination personal development obtained lowest scores. In addition, living rural settings, receiving regular support, or being a man was better QoL. Conclusions It would be desirable increase frequency which certain supports aimed at are provided. Likewise, exercise informed meaningful choices must encouraged.

Language: Английский

Citations

5
Health care for people with intellectual disability in Spain DOI Creative Commons
Laura E. Gómez, Lucía Morán, Patricia Solís García

et al.

Journal of Policy and Practice in Intellectual Disabilities, Journal Year: 2023, Volume and Issue: 21(1)

Published: Feb. 27, 2023

Abstract We describe the healthcare system for people with intellectual disability (ID) in Spain. First, we provide general population statistics before focusing on most recent prevalence data related to general, and ID particular. also discuss how health care is organized. Most of Spanish covered by public system, which structured into primary (first‐level services; easily accessible capable tackling common ailments) specialized (second‐level comprising complex costly diagnostic therapeutic resources). then explain Spain's legislation that promotes rights disabilities, highlighting importance United Nations Convention Rights Persons Disabilities (CRPD), enshrined General Law People their Social Inclusion (Royal Legislative Decree 1/2013). Second, organization support services, whose regulation highly given autonomous regions set own rules about coverage, financing. Third, present some studies allow a better understanding Spain, including summary ongoing #Rights4MeToo project. report specific right habilitation/rehabilitation. professionals providing them supports agreed problematic aspects were lack of: coordination across user‐friendly information maintain or improve health, psychological treatments, preventive medical check‐ups, knowledge among professionals. There need give priority access reduce waiting times, increase length appointments, create protocols prevention campaigns targeting them.

Language: Английский

Citations

2
Mental and Behavioral Health, and Crisis Services for People with Intellectual and Developmental Disabilities in Medicaid Home- and Community-Based Services DOI
Carli Friedman,

Carine M. Luxama

Journal of Autism and Developmental Disorders, Journal Year: 2024, Volume and Issue: unknown

Published: June 29, 2024

Language: Английский

Citations

0
Challenging clinical presentations in Autism Spectrum Disorders and Intellectual Disability: The case for specialist intensive community interventions as an alternative to institutional care DOI

Catherine Sholl,

Marinos Kyriakopoulos

Elsevier eBooks, Journal Year: 2024, Volume and Issue: unknown, P. 91 - 107

Published: Sept. 13, 2024

Language: Английский

Citations

0
Examining Use of Pharmacotherapy for Behavioral Support Among Americans with IDD Using Machine Learning DOI
Matthew Bogenschutz, Michael Broda, Parthenia Dinora

et al.

Journal of Mental Health Research in Intellectual Disabilities, Journal Year: 2024, Volume and Issue: unknown, P. 1 - 22

Published: Oct. 16, 2024

Background Adults with intellectual and developmental disabilities (IDD) often have behavioral support needs that must be met in order to live community settings. Pharmacotherapies are used meet such needs. We explored factors predict medication for among adults IDD.

Language: Английский

Citations

0